ERN-LUNG Goes East: Romania joined our network!
It is with great pleasure to welcome our new supporting partner, “Dr. Victor Babeș” Clinical Hospital for Infectious and Pulmonary Diseases in Timișoara. This is an important milestone in our "Go East" project!
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ERN-LUNG's Network Coordination Team and patient representatives discussing updates on ongoing projects at the #ERSCongress
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The #ERSCongress2025 is taking place from 27 September – 1 October 2025 at the #RAIAmsterdam and #ErnLung is very excited to join this event and is looking forward to connecting with many experts and patient representatives from around the world
ERN-LUNG retweeted
📖 The ERS Monograph on “Pulmonary Hypertension” has now been published!
This Monograph captures the diversity of pulmonary hypertension in a rapidly changing field.
Order your copy: bit.ly/44HgEfA
#respiratoryhealth #lunghealth #pulmonary #hypertension
ERN-LUNG retweeted
⚡ Share your expertise at the Manchester Rare Disease Showcase!
Apply for a lightning talk – a 5-min presentation to:
🔬 Showcase research
💊 Highlight innovations
🤝 Share collaborations
🌍 Inspire connections
⏰ Deadline: 29 Sept
🔗 ow.ly/Bsk350WV8Nq
Five global experts. Five perspectives on the future of lung health. From redefining lung assessment to tackling access to medicines, these are insights you won’t want to miss. 🗓 25 Sept | 13:00 BST
👉 Register now: bit.ly/WLDWebinar
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From 25–28 May 2026, Barcelona will host the next EURORDIS Open Academy Schools. Applications for the Medicines Research & Development School and the Scientific Innovation & Translation School open on 8 September 2025. Apply now: openacademy.eurordis.org/ope…
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Save the date!
The Wednesday special programme at the #ERSCongress 2025 will ask the question, "What can @ErnLung offer for the future?"
This session will highlight how the network can tighten links, improve its relevance, and address future challenges.
Learn more: bit.ly/3yNAIiN
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ERDERA FAIR Training Program 2025 – 2027 Part 1 opens registration - find out more: erdera.org/news/fair-trainin…
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ERDERA has launched a new online survey to explore how rare disease patient organisations can contribute to publicly funded research. Open until mid-July Confidential. Co-created with patients.
Take the survey: shorturl.at/ePVuL
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Don´t miss the ERS Wednesday special program where ERN-LUNG will be discussing what they can offer for the future...
Find out more:
k4.ersnet.org/prod/v2/Front/…
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List of ERDERA underrepresented countries🌍: Bulgaria, Cyprus, Czechia, Estonia, Greece, Georgia, Hungary, Ireland, Latvia, Lithuania, Morocco, Poland, Portugal, Romania, Serbia, Slovakia, Slovenia, Türkiye.
Interested? 👉forms.office.com/e/3u9akmHyt…
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May 5, World Pulmonary Hypertension Day is a global effort to raise awareness of PH, a condition that affects the lungs and heart. Led by PHA Europe, the global campaign brings together PH organizations and advocates to coordinate global efforts around awareness and education.
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Very fruitful discussions during the recently formed LAM working group. Did you know that LAM (Lymphangioleiomyomatosis) is a rare lung disease and affects mostly women of childbearing age?
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ERN-LUNG retweeted
Delighted to meet so many patient advocates attending the 9th Annual @ErnLung Board meeting whilst representing @EU_IPFF & the @EuropeanLung foundation
ERN-LUNG retweeted
Today we are in Paris at the @ErnLung Annual Board Meeting.
We’re here with other partners discussing how we have raised awareness of rare diseases this year and what more needs to be done.
📸 Gergely Meszaros, ERN-LUNG project manager, giving an update on recent activities.
