@iamalsorg

I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.

iamals.org/
Joined November 2018
  • Tweets7.7K
  • Following718
  • Followers27K
2.4KMedia
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
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Want to help us pass more critical ALS legislation? Become a Consented Constituent today! It's low-commitment and low-effort. With just 2 minutes of your time, you can help move the needle for ALS! Join the movement: bit.ly/ALSconstituents
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ALS can be overwhelming and isolating. At I AM ALS, you can find community and the support you need. Our Peer Support Program offers helpful info, resources, and a listening ear, plus check-ins to make sure you’re cared for. Request ALS Support today: bit.ly/peerintake
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Caregivers! November is National Family Caregivers Month, and we're centering YOUR experiences. Join us for two caregiver-led conversations: Nov 4, 8 PM ET | Getting Started: bit.ly/NCM-1 Nov 18, 8 PM ET | Navigating the Journey: bit.ly/NCM-2
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I AM ALS CEO Andrea Goodman on the historic news of renewing ACT for ALS, with 5 more years of impact. Thank your legislators for making this possible: bit.ly/A4A-TY (case-sensitive) Thank you @fox5dc for covering this powerful story!
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“ALS is what I have, not who I am.” — Neil | living with ALS ACT for ALS offers hope and an accelerated path to finding cures for thousands of people like Neil. Thank your lawmakers for passing it → bit.ly/A4A-TY
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Our stories are the foundation of everything we've achieved together. When we share them, we give ALS a human face and send a message no one can ignore: we need a cure NOW. Help us end ALS. Share your ALS story today: bit.ly/story-26
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🚨 ACT for ALS UPDATE! Thanks to the I AM ALS community's advocacy, Congress passed ACT for ALS. But our work isn't done: ALS must stay a priority on Capitol Hill to keep ACT fully funded. Tell Congress to prioritize ALS funding this December: bit.ly/ALSFY-27
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Current policy requires Veterans to live with ALS for 8 years for their spouses to get DIC benefits. Most people with ALS live only 2- 5 years; ALS Veterans' spouses usually don’t qualify. Tell your lawmakers to cosponsor Justice for ALS Veterans: bit.ly/ALSvets
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“My grandmother was no stranger to hardship, but she met every trial with unmatched grace and strength before her battle with ALS ended in 2021. ALS took her ability to move and breathe, but it never touched her heart, faith, or gentle spirit”—Kaylie | lost her grandmother to ALS
A smiling, waving older blonde lady stands in front of a house window. She is wearing a pink hoodie.

ALT A smiling, waving older blonde lady stands in front of a house window. She is wearing a pink hoodie.

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Our incredible community member Dave Hardin put a fun twist on the Ice Bucket Challenge! Great food, freezing water dumped out of tractors, and funds and awareness raised for ALS. 💙 Join the movement: bit.ly/ALS-next
A group of people sitting on chairs outdoors, getting splashed with water from a tractor bucket. Two tractors are in the background, each holding water in their buckets. Some individuals are standing nearby, watching. The scene is set on a grassy field with trees in the distance.

ALT A group of people sitting on chairs outdoors, getting splashed with water from a tractor bucket. Two tractors are in the background, each holding water in their buckets. Some individuals are standing nearby, watching. The scene is set on a grassy field with trees in the distance.

A person in a motorized wheelchair is in front of a fire truck with "Fire and Rescue" on it. The sky is blue with some clouds.

ALT A person in a motorized wheelchair is in front of a fire truck with "Fire and Rescue" on it. The sky is blue with some clouds.

A group of people, including children, are gathered outside a silver food truck. One person has a shirt with "Everyday Followers of Jesus" written on the back. A building with signs for "Infants - K5 Grade" and "Auditorium" is visible in the background. The sky is clear and sunny.

ALT A group of people, including children, are gathered outside a silver food truck. One person has a shirt with "Everyday Followers of Jesus" written on the back. A building with signs for "Infants - K5 Grade" and "Auditorium" is visible in the background. The sky is clear and sunny.

A group of people sitting on chairs outdoors, getting splashed with water from a tractor bucket. Two tractors are in the background, each holding water in their buckets. Some individuals are standing nearby, smiling or laughing. The scene is set on a grassy field with trees in the distance.

ALT A group of people sitting on chairs outdoors, getting splashed with water from a tractor bucket. Two tractors are in the background, each holding water in their buckets. Some individuals are standing nearby, smiling or laughing. The scene is set on a grassy field with trees in the distance.

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Our advocacy has changed what’s possible in ALS, one small action at a time. Join this movement and help end ALS in a few minutes: (1) sign up for our newsletter, (2) get quick online actions, (3) do them your way. Sign up TODAY: bit.ly/news4ALS
The image promotes a newsletter sign-up for ALS awareness. It features the phrase "Fuel the movement to end ALS!" and a URL link "bit.ly/News4ALS." There's a snapshot of a newsletter titled "ALS Week of Impact 2026," dated September 14-20. The logos of "I AM ALS" and social media sharing suggestions are included.

ALT The image promotes a newsletter sign-up for ALS awareness. It features the phrase "Fuel the movement to end ALS!" and a URL link "bit.ly/News4ALS." There's a snapshot of a newsletter titled "ALS Week of Impact 2026," dated September 14-20. The logos of "I AM ALS" and social media sharing suggestions are included.

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A NEW STEP FORWARD! 💡 CNM-Au8, a promising @CleneNano therapy available through ACT for ALS-funded expanded access programs, has been submitted to the FDA. If approved, it could reach everyone in the U.S. living with ALS in 2027. People with ALS don’t have time to wait.
A graphic promoting Clene's CNM-Au8 as part of the ACT for ALS program. It states the treatment is submitted to the FDA for approval, with potential availability for all individuals with ALS in the U.S. by 2027. Features decorative arrows, a starburst, and the I AM ALS logo.

ALT A graphic promoting Clene's CNM-Au8 as part of the ACT for ALS program. It states the treatment is submitted to the FDA for approval, with potential availability for all individuals with ALS in the U.S. by 2027. Features decorative arrows, a starburst, and the I AM ALS logo.

The image features the "I AM ALS" logo at the top, followed by text emphasizing the importance of FDA review. It highlights the efforts of ALS research funding and expanded access programs. A decorative arrow and abstract shapes are included.

ALT The image features the "I AM ALS" logo at the top, followed by text emphasizing the importance of FDA review. It highlights the efforts of ALS research funding and expanded access programs. A decorative arrow and abstract shapes are included.

Blue background with white and black starburst designs. Text reads: "I am ALS. We'll keep pushing to make sure the community's voice is heard at every step. For everyone living with ALS today and diagnosed tomorrow, promising therapies like CNM-Au8 are our hope for a future with curative treatments.

ALT Blue background with white and black starburst designs. Text reads: "I am ALS. We'll keep pushing to make sure the community's voice is heard at every step. For everyone living with ALS today and diagnosed tomorrow, promising therapies like CNM-Au8 are our hope for a future with curative treatments.

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A NEW STEP FORWARD! Clene’s CNM-Au8, available through ACT for ALS-funded EAPs, has been submitted to the FDA. If approved, it could reach everyone in the U.S. living with ALS in 2027. People with ALS don’t have time to wait. We urge a timely review.
Clene Nanomedicine@CleneNanoOct 19
A major milestone for Clene: We’ve submitted an NDA to the FDA seeking accelerated approval of investigational CNM-Au8® for ALS. Thank you to the patients, families and partners who helped make this step possible. Read More: invest.clene.com/news-releas…
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Calling ALL ALS Advocates 📢 Small online actions add up to historic wins. With just a few minutes of your time, you can get us closer to a world without ALS! 💙 Become a consented constituent today 👉 bit.ly/ALSconstituents
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Caregivers! You’re invited to two caregiver-led conversations with the I AM ALS community ✨ Getting Started | Nov 4 at 8PM ET bit.ly/NCM-1 Navigating the Journey | Nov 18 at 8PM ET bit.ly/NCM-2 Connect with caregivers who have been there. RSVP today!
Promotional graphic for I AM ALS featuring two people embracing. Text reads: 'Caregivers—join the conversation! Meet other caregivers, learn and share practical ways to navigate ALS, or just exist in a space curated just for you.' Event details include 'Nov 4 | 8pm ET, Getting Started: bit.ly/NCM-1' and 'Nov 18 | 8pm ET, Navigating the Journey: bit.ly/NCM-2.' Both links are case-sensitive.

ALT Promotional graphic for I AM ALS featuring two people embracing. Text reads: 'Caregivers—join the conversation! Meet other caregivers, learn and share practical ways to navigate ALS, or just exist in a space curated just for you.' Event details include 'Nov 4 | 8pm ET, Getting Started: bit.ly/NCM-1' and 'Nov 18 | 8pm ET, Navigating the Journey: bit.ly/NCM-2.' Both links are case-sensitive.

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Our powerhouse @nycmarathon runners breezed past their $75,000 goal by over $12,000 and counting, with over 2 weeks left until race day! Support our phenomenal TCS NYC Marathon 2026 team: bit.ly/Marathon-26 (case-sensitive)
A collage featuring 4 photos of smiling adults wearing the blue t-shirt with orange "I AM ALS letters printed on them—Left-right, up-down: Will Plews-Ogan, Howard "Howie" Track, Kellie Murphy, and Jenny DeVaughn.

ALT A collage featuring 4 photos of smiling adults wearing the blue t-shirt with orange "I AM ALS letters printed on them—Left-right, up-down: Will Plews-Ogan, Howard "Howie" Track, Kellie Murphy, and Jenny DeVaughn.

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The I AM ALS community’s advocacy work is up for an @anthemawards Community Voice Award, and we need YOUR help to win! A win would help more people impacted by ALS find us. Vote by Oct 29: bit.ly/IAA-Anthem. Find “Push for Progress” and click “Celebrate”!
The image shows a smartphone displaying the Anthem Awards website, highlighting I AM ALS' Anthem Awards finalist status. A message expresses gratitude for advocacy and encourages voting by October 29 by finding the "I AM ALS' Push for Progress" entry at the bit.ly/IAA-Anthem link. The design includes a green and purple advocacy symbol and the I AM ALS logo.

ALT The image shows a smartphone displaying the Anthem Awards website, highlighting I AM ALS' Anthem Awards finalist status. A message expresses gratitude for advocacy and encourages voting by October 29 by finding the "I AM ALS' Push for Progress" entry at the bit.ly/IAA-Anthem link. The design includes a green and purple advocacy symbol and the I AM ALS logo.

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The thank yous continue! Volunteers, co-chairs, advocates, friends, and everyone who found us through the petition: you helped get ACT for ALS across the finish line—THANK YOU! 💙 Now thank your lawmakers for standing with the I AM ALS community: bit.ly/A4A-TY
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The I AM ALS community is here to support you through ALS. Need someone to talk to? We have a support group for you. Want 1-on-1 support? We’ll match you with a trained Peer Mentor or Peer Support Specialist impacted with ALS themselves. bit.ly/GetALSSupport
A group of people wearing "I Am ALS" shirts pose together for a photo. Text above reads, "Get the ALS support you need, straight from the ALS community. Support groups - Trained Peer Mentors - Resources and much more!" Below, there's a call to action: "Connect with us ↓ bit.ly/GetALSSupport (case-sensitive).

ALT A group of people wearing "I Am ALS" shirts pose together for a photo. Text above reads, "Get the ALS support you need, straight from the ALS community. Support groups - Trained Peer Mentors - Resources and much more!" Below, there's a call to action: "Connect with us ↓ bit.ly/GetALSSupport (case-sensitive).

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The Healthy Brains Act would help us better understand the root causes of ALS and other neurodegenerative diseases. Once passed, it will launch the first-ever research program on environmental risk factors. Tell your legislators to support it → bit.ly/HBA-26
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