Lupus Foundation of America (@LupusOrg) header
Lupus Foundation of America (@LupusOrg) profile picture

Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.

Washington DC
Joined February 2009
Photo by Lupus Foundation of America (@LupusOrg)Photo by Lupus Foundation of America (@LupusOrg)Photo by Lupus Foundation of America (@LupusOrg)Photo by Lupus Foundation of America (@LupusOrg)Photo by Lupus Foundation of America (@LupusOrg)Photo by Lupus Foundation of America (@LupusOrg)Photo by Lupus Foundation of America (@LupusOrg)Photo by Lupus Foundation of America (@LupusOrg)Photo by Lupus Foundation of America (@LupusOrg)Photo by Lupus Foundation of America (@LupusOrg)
New #ACR26 research by LFA's Joy Buie introduces 20 consensus-informed metrics to help rheumatology institutions track workforce expansion, retention, leadership and community impact over time in disease areas like #lupus. Learn more: buff.ly/dUR9Ikp
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New LFA #ACR26 research explored how people with severe #lupus weigh CAR T-cell therapy. Participants prioritized safety, durability of benefit, expert lupus care and financial support when considering treatment. Learn more: buff.ly/dUR9Ikp
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New #ACR26 research shows culturally tailored outreach may help participation in #lupus research. A Research Accelerated by You (RAY®) campaign increased outbound clicks by 47% and the share of registrants from underrepresented groups. Learn more: buff.ly/dUR9Ikp
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What do people with #lupus need to make informed treatment decisions? New #ACR26 findings highlight clear information on benefits, risks, cost and access, and the importance of shared decision-making with providers. Learn more: buff.ly/dUR9Ikp
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🏃💜 2 weeks until @Philly_Marathon Weekend! Our Racing to End Lupus runners have raised over $50K to help end #lupus. Let’s cheer them on as they put their training into action, raising funds and lupus awareness! Learn how you can join us next year: buff.ly/Dc3FsVv
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We're proud to share our research at #ACR26 (@ACRheum)! Our studies explore #lupus diagnosis, treatment, access to care & patient priorities, reflecting collaboration between researchers, clinicians & people with lupus. Learn more about our research: buff.ly/dUR9Ikp
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🏃💜 Congrats to our Racing to End Lupus team for completing the 2026 TCS @NYCMarathon! They took on 26.2 miles to raise funds and awareness for people with #lupus. Thank you to everyone who supported them! Learn how to join us next year: buff.ly/muofxyD #TCSNYCMarathon
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We are at #ACR26 (@ACRheum)! Our team is presenting eight abstracts on #LupusResearch, from diagnosis and treatment to access to care and more. Learn more about the research we’re presenting and its potential to advance lupus care and treatment: buff.ly/dUR9Ikp
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One week until #TwitchCon! 🎮 Find us at booth 3444-CH in the Charity Zone to connect with the team, catch up with GOTEL alumni and learn how you can get involved with #GameOnToEndLupus. We can’t wait to see you in San Diego! 💜
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#FactFriday 💜 Pain can affect daily activities for people with #lupus, but there are ways to manage it. Working with your doctor to identify the cause and explore options like physical therapy, sleep and at-home strategies can help. Learn more: buff.ly/SLuWbTN
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Mark your calendars! On December 1, join us for #GivingTuesday to raise #lupus awareness, fuel research, and provide resources and support to people affected by lupus. 📅 Save the date and make a difference: buff.ly/b57OaBE
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💜 This #NationalFamilyCaregiversMonth, we recognize care partners supporting loved ones with #lupus. Our Caregivers Information Center offers tips & resources to help you build a support network and care for yourself. Learn more: buff.ly/2OKzyUX
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Update: The @US_FDA has granted breakthrough therapy designation to CIMZIA® (certolizumab pegol) for the prevention of adverse pregnancy outcomes in women with antiphospholipid syndrome and #lupus anticoagulant. Read the announcement: buff.ly/uFn8W6y
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🚨💊 Medicare Part D Open Enrollment is underway! Medicare Part D covers prescriptions for over 56 million Americans, including people with #lupus. Read our updated blog for resources to help you compare plans and make informed decisions before 12/7: buff.ly/qyqzrSh
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💜 November is #NationalHospiceandPalliativeCareMonth! Did you know palliative care isn’t just for end-of-life care? For people living with #lupus, it can help manage symptoms, provide support, and improve quality of life at any stage. Learn more: buff.ly/hRbZevH
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🆕 A new episode of The Expert Series is live! Dr. George Tsokos explains how #lupus arthritis differs from other forms of arthritis and discusses common symptoms, flare triggers, lifestyle strategies, and more. 🎧 Listen now: buff.ly/QSk3cQM
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This episode of The Expert Series was sponsored by @Biogen. The Lupus Foundation of America would like to thank Biogen for their support of education programs for people with lupus.
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Join us in recognizing #NativeAmericanHeritageMonth! 💜 #Lupus disproportionately affects American Indian and Alaska Native (AI/AN) communities. Explore our latest blog for resources to help raise awareness and improve outcomes: buff.ly/vJIJvTa
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🏃💜 NYC, come cheer with us! Our Racing to End Lupus team is taking on the TCS @NYCMarathon tomorrow! 📍 Join our cheer section in Long Island City, Queens, just before mile 14 at Vernon Blvd & 47th Rd. Look for our purple Racing to End Lupus signs and banners! #TCSNYCMarathon
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