This is us, the MND Association. Renewed, united and driven every day to make change happen. Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.

As the clocks go back, take an hour to think ahead. 🕒 We sat down with MND Connect Advisor Ellie to discuss preparing for winter with MND. From making sure prescriptions are up to date to planning for seasonal challenges, a little preparation now could help make the months ahead easier to manage. 🧡

Dancing, friends and family. These are the things that matter most to Lorraine. Meet the incredible people behind our national campaign. #Strictly

As we head into winter, it's worth checking the latest guidance on flu and COVID-19 vaccinations if you're affected by MND. Find out more. 🔗mndassociation.org/support-a…

Through their Swag Bags with Purpose campaign, @ScampandDude & @katelawler have raised over £8,000 for people affected by MND🧡 £10 from every Scamp & Dude X Kate Lawler bag supports our vital work. Thank you, Kate! Get yours: 🔗 scampanddude.com/products/sc…

At yesterday's meeting with the National Institute for Health and Care Excellence (NICE), Sean Davies, who has SOD1 MND, spoke about the difference tofersen has made to his life. As we wait for NICE’s interim decision on whether the treatment will be available on the NHS, Sean shares his thoughts on the day.

Today, we attended a National Institute for Health and Care Excellence (NICE) committee appraisal listening to the evidence for making tofersen available on the NHS people with SOD1 MND. Here, Professor Al-Chalabi, from @KingsCollegeLon gives us a recap of how the meeting went, and we'll keep you updated as things progress.

From LEGO® gene sequencers to eye gaze tech, how we inspired the next generation of MND researchers at New Scientist Live. 🔬 Read more🔗 mndassociation.org/media/lat…

Every day, we support people with motor neurone disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.

Tahira loved gardening with her grandchildren. But because of MND, now her hands can't grip a trowel. Help us stop it. Head to mndassoc.org/life-stripped-a…

Jaki is a born performer, taking to the boards as Nancy in Oliver! Now, MND has stripped away the things she loved - like performing. Help us stop it. Visit mndassoc.org/life-stripped-a… .

Before MND stripped away the things she loved, Jaki loved to sing. 🎶 Imagine losing the ability to do something that brings you joy. What's one thing you'd hate to no longer be able to do? #WorldSingingDay

Go Oscar go! 🧡👏 After being inspired by reading ‘Try’, the children's book written by Sir Kev, 7 year old Oscar set himself a challenge to raise money for MND: walking every day for 7 days! And that’s just the beginning - he plans to walk 77 miles before Christmas to continue to raise vital funds. We’re so proud to have you on the team Oscar, thank you for everything you are doing. 🧡 To donate to Oscar incredible challenge, click here. 🔗 fundraising.mndassociation.o…

Steve is a natural born drummer, but now he can't hold his sticks. MND stripped away the life he loves. Help us stop it. Learn more here: mndassoc.org/life-stripped-a…

Go behind the scenes of our new brand campaign with MND Association Head of Brand and Marketing, Siobhan Gray, in our latest blog. 👉mndassociation.org/media/lat…

This party conference season, we met with over 150 MPs, councillors and peers across the political spectrum so people affected by MND are heard by those who can make real change happen. Here's a message from our Director of Engagement, Richard, to say thank you for the part YOU played.