Our mission is to lead the way in finding a cure for TANGO2 related disease. #raredisease
Middletown, CT
Joined December 2017
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T2RF was proud to be represented at the 2026 NORD Breakthrough Summit in Washington, DC! 💜
We’re grateful for opportunities like this to connect with the broader rare disease community and share the tools helping move TANGO2 research forward.
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⏰ Last chance to apply for T2RF Research Grant Cycle 7!
Letters of Intent are due November 6, 2026, at 5:00 PM EST. T2RF funding supports seed and pilot projects exploring promising new ideas related to TANGO2 Deficiency Disorder.
👉 Learn more: tango2research.org/research/…
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We’re getting into the Halloween spirit over here! Thea is trying out her witch costume and giving us her very best evil stare! Is anyone else getting their costumes ready?
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Grant Cycle 7 is officially open! 🎉
The TANGO2 Research Foundation Research Grant Program provides funding for seed and pilot research projects that explore promising new ideas and help advance TDD research. Letters of Intent are due November 6, 2026.
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Many researchers would agree a significant issue within the TANGO2 Deficiency Disorder community is lipid imbalances. But what does that mean?
👉In case you missed it, find out in our blog! bit.ly/457WbO6
#TANGO2researchfoundation
#TANGO2Community
#RareDiseases
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🎥 Watch the full Talk Pittsburgh interview and see how love, research, and community are changing the story for families like John’s:
👉 m.youtube.com/watch?v=W2VhIR…
#TANGO2ResearchFoundation
#TANGO2Warrior
#RareDiseaseAwareness
#TalkPittsburgh
#UPMC
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🎉🎂 Happy 31st Birthday, Asha! 🎂🎉
Today we’re celebrating an incredible milestone for an equally incredible TANGO2 warrior—Asha is officially 31! ✨
#TANGO2ResearchFoundation
#TANGO2Warrior
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Don't miss this opportunity to be part of a transformative conversation. Sign up now, dive into our forum, and tap into a global reservoir of knowledge and support!
🔗 Get started here: bit.ly/3SLMp0G
#TANGO2ResearchFoundation
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🎉✨ Happy 14th Birthday, Tabby! ✨🎉
Today we’re celebrating an amazing TANGO2 Warrior as Tabby turns 14! 💙🎂
#TANGO2ResearchFoundation
#TANGO2Warrior
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🎉🎂 Happy 3rd Birthday, Caelan! 🎂🎉
Today we’re celebrating a very special little TANGO2 Warrior all the way from West Palm Beach, Florida—Caelan is turning THREE! 💙✨
#TANGO2ResearchFoundation
#TANGO2Warrior
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The T2RF TDD Research Pathways Grant provides funding for pilot projects and innovative studies that expand scientific understanding and improve outcomes for individuals living with TANGO2 deficiency disorder. 🔬
Learn more here 👉️ tango2research.org/research/…
By sharing your loved one’s story and photos, you allow us to keep their spirit alive and inspire others facing similar journeys. If you’d like to honor your TANGO2 angel, please visit our website here: bit.ly/4hILade to submit their story and photo.
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Ready to make a stylish impact? Head over to our website, grab your favorite items, and show off your support for TANGO2 in the most fashionable way possible: tango2research.org/about-us/…
#TANGO2ResearchFoundation
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Help us fund life-saving research, and get more answers to all of the unknowns.
Visit tango2research.org
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How do you keep all your child’s important health info organized—apps, binders, spreadsheets, color-coded tabs? 🧠📲
#TANGO2ResearchFoundation
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🎉🎂 Happy 10th Birthday, Rafaela! 🎂🎉
Today, we’re sending the biggest birthday wishes to the one and only Rafaela—a bright, brave, and beautiful TANGO2 warrior who turns 10 today!
#TANGO2ResearchFoundation
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Got a birthday coming up? This year, consider creating a birthday fundraiser to support the TANGO2 Research Foundation and help fuel the vital work we’re doing to find a cure.
tango2research.org/birthday/
#TANGO2ResearchFoundation
#TANGO2Community
#TANGO2
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