Action for A-T (@ActionforAT) header
Action for A-T (@ActionforAT) profile picture

Raising money for medical research into Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death.

UK
Joined January 2012
Photo by Action for A-T (@ActionforAT)Photo by Action for A-T (@ActionforAT)Photo by Action for A-T (@ActionforAT)Photo by Action for A-T (@ActionforAT)Photo by Action for A-T (@ActionforAT)Photo by Action for A-T (@ActionforAT)Photo by Action for A-T (@ActionforAT)Photo by Action for A-T (@ActionforAT)Photo by Action for A-T (@ActionforAT)Photo by Action for A-T (@ActionforAT)
We’re proud to be partnering with @GOSHCharity to fund vital new research into A‑T at the @ManchesterUniv. See actionforat.org/targeting-uf… None of this happens without the generosity of our supporters. Together, we’re moving A‑T research forward. 💛 #ATresearch #ActionForAT #GOSH
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One of ongoing corporate partnerships providing support for our A-T research programme.
We’re proud to support our charity partners, Action For A-T, and to have helped raise £22,500 throughout 2025. To learn more about the incredible work they do, head over to @ActionForAT.
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Researchers working to transform outcomes for children with Ataxia‑Telangiectasia (A‑T) — this is your last chance to submit an outline application for the @ActionforAT & @actionmedres Joint Grant Round. 📅 Deadline: 28 January action.org.uk/research/apply…
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📷New Joint Grant Call Now Open📷 Thanks to your generous support, @ActionforAT & @actionmedres have joined forces to fund cutting-edge projects that aim to transform the lives of children and young people living with A-T. Visit action.org.uk/research/apply… to apply or find out more.
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Thanks to everyone who has supported Action for A-T through the @BigGive Xmas Campaign — £6,760 so far but there are still plenty of matched funds available. That means every pound you give will be doubled helping us accelerate research into A-T. Visit donate.biggive.org/campaign/…
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Huge thanks to our friends at the @TheQuietSite who kindly donated glamping packages for auction in 2025. Their award winning #lakedistrict site was a big hit with our event guests raising £3065 for more A-T research. Please get in touch if your company could help us in 2026.
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Huge congratulations to Chris Spedding for completing the New York Marathon yesterday. Please also join us in thanking Chris as his efforts generated £3,800 for more A-T Research. Rest well Chris, you deserve it. #runningforresearch #ataxiatelangiectasia #charityrunner #newyork
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Huge thanks to Stephen Russell of Clarion Golf & everyone who attended the Clarion Pairs event at @WoburnGC yesterday for our final golf day of 2025. £13k was raised & these funds will be committed to new A-T research shortly. See you on the fairways in 2026. #charitygolf
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Run for Research in the 2026 TCS London Marathon! Action for A-T has 4 guaranteed places available — and they’re waiting for passionate runners like YOU. Visit actionforat.org/2026-04-26-t… for more details.
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Huge congratulations to the @Brightwake team for completing their 272km, "Way of the Roses" cycle ride from Morecambe to Bridlington. The team battled through some tough conditions, over 3 days, but all completed the ride safely raising £10,391 for more A-T research 💪🙌🙏
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The team at @Brightwake are cycling 270km for @ActionforAT — inspired by Emilia, diagnosed with A-T at just 6 weeks old 💙 Every mile = hope. Every donation = progress. Thank you, @Brightwake, for riding with heart 🙌 #BrightwakeForAT #CycleForACure #EmiliasJourney #RareDisease
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One week on from the Constellation Automotive Group walk & cycle event, we are delighted to confirm that £100,000 was raised for more A-T research. We are so grateful to everyone who took part plus sponsors & volunteers for their incredible support. @cinchuk @MarshallMotorGp
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The sun shone, the greens ran true & the donations were generous at the stunning @royalautomobileclub yesterday. £13,200 was raised for more A-T research. Thanks to everyone who supported and congratulations to all of the prize winners #charitygolf
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Huge congratulations to all the @QuestLondon students who graduated today. Their fundraising efforts raised over £17k for more A-T research we are so grateful for their generous support. Enjoy the party tonight guys, you’ve earned it. #teamwork #ataxiatelangiectasia @rorybremner
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Huge thanks to our good friends at @StewartGolf and their generous customers for helping us raise £15,000 via their online auction. These funds will be committed to new A-T research in the coming weeks. #CharityGolf #CollaborationForACure #ataxiatelangiectasia #thankyou
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🚴‍♂️ Roger Sibley is cycling 2,000 km around Europe to support @ActionforAT and raise awareness for children with #AtaxiaTelangiectasia 💙 Follow his journey & help turn every km into a step toward a cure: 🔗 blog.rogerrides4at.org/ #RogerRides4AT #RareDisease #CycleForACause
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Today we’re proudly going #RedForResearchDay2025! Every red outfit worn supports vital research into rare diseases like Ataxia-Telangiectasia (A-T). Join us, wear red, and help drive forward the science that gives hope. 🔬❤️ #RareDiseaseResearch #ATawareness
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The @LondonMarathon ballot results are being sent this week & entrants will find out if they have secured a place. If you or someone you know would like to join the 2026 @ActionforAT team please ask them to get in touch as we have a number of places available. #runningforresearch
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Please visit our online auction site to view the amazing prizes on offer.
Throwback to our last golf day with @ActionforAT at The Oxfordshire ⛳️ Our 2025 auction, in support of Action For A-T is now live with a variety of incredible prizes and experiences on offer. Check out the full list of auction items here: tinyurl.com/2skp5tkb
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