We encourage you to continue engaging with us here, where we can still share resources, stories, and updates.
Thank you for being a part of the cysticfibrosis . com community!
Wishing you all the best in health and happiness,
From all of us at cysticfibrosis . com
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In good news, as of now, this isn’t the end of our community! Our social media pages will remain open as a space for connection, support, and sharing among individuals impacted by cystic fibrosis.
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While it’s bittersweet to say goodbye to the forums that brought us together, we are thankful for the connections, support, and shared experiences along the way.
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Important Update: Website and Forum Closure
To our valued community,
We wanted to let you know that cysticfibrosis.com is no longer active & has been closed.
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Dr. Bonnie W. Ramsey, Professor and Senior Advisor to the CFF Therapeutics Development Network, receives the prestigious 2025 American Pediatric Society John Howland Award!
To read more, click here: bit.ly/3NTThpJ
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Watch the recording here: youtube.com/@CysticFibrosisF…
#CureCF #CF #cysticfibrosis #65Roses #Health #Educate #Spoonie #NACFC
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From the archives of the 1990's - Oh how far we've come!
Do you have interesting articles to share?! Let us know!
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#CureCF #cysticfibrosis #65Roses #CF #Support #Educate #Hope #Fromthearchives
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In addition to oral food and supplements, sometimes extra help is needed by tube feedings
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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People with CF can get a unique type of #diabetes, cystic fibrosis related diabetes or #CFRD
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Vitamins, minerals, and supplements are important
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Caring for bone health
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #boneHealth
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Food is fuel!
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Supplemental oxygen may be necessary as CF progresses.
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Sometimes it is necessary for someone with CF to get a lung transplant.
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #Transplant #LungTransplant #DonateLife #OrganDonation
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Chronic illness takes its toll.
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Hospitals are associated with getting healthy, but sometimes an infection can actually come from the others at the hospital!
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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CF does not impact only one system. There are several comorbidities associated with it.
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#CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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