NDSS is creating a world where individuals with Down syndrome thrive.
Washington, D.C.
Joined May 2010
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“We have a player on our team who has a relative with a developmental disability," Castleberry said. "When I finished talking he spoke up and said, 'Hey coach, make my patch the biggest.'" 💙🏀 @FDUKnightsMBB
sports.yahoo.com/articles/fd…
National Down Syndrome Society retweeted
FDU men's basketball is partnering with the National Down Syndrome Society on a jersey patch. The cause is close to coach Jack Castleberry's heart courierpostonline.com/story/…
National Down Syndrome Society retweeted
Incredibly exciting for @NDSS in partnership w/ @FDUKnightsMBB &
@JackCastleberry & family!
So thrilled to see a meaningful association between college hoops & the intellectual disability community!
#teamantonelli big fans of the FDU Knights!
Way to go!
we.tl/t-SHAnf6Mfv5pMBzTd
National Down Syndrome Society retweeted
I can't thank @NJHoopsHaven enough for sharing our story. We @FDUKnightsMBB are excited to wear the @NDSS patch and raise awareness of such a special community!
FDU is wearing a special jersey patch this season--the National Down Syndrome Society logo. The partnership was inspired by head coach Jack Castleberry's 2-year-old daughter Avery.
Here's more on championing a cause close to his heart: northjersey.com/story/sports… via @northjersey
We're so excited to partner with @FDUKnightsMBB on a jersey patch this season! 🏀💛💙 Go Knights!
@FDUKnightsMBB and head coach Jack Castleberry are excited to announce a jersey patch partnership with the National Down Syndrome Society.
Learn more about @NDSS and Jack’s daughter, Avery, by following along all season long.
#uKNIGHTED | @NDSS
We're thrilled to announce that NDSS is an official charity partner of the Sanlam Cape Town Marathon, the 8th Abbott World Marathon Major and the first Major ever in Africa!🥇 Find race details and apply to run with #TeamNDSS at ndss.org/cape-town-marathon
National Down Syndrome Society retweeted
What does person-centered care really look like for adults with Down syndrome?
Look beyond patient differences to collaborate with caregivers, navigate life transitions and apply communication strategies that enhance interactions. @NDSS #DownSyndrome
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National Down Syndrome Society retweeted
Why are sleep disorders so prevalent in adults with Down syndrome?
@NDSS explores the causes of obstructive sleep apnea and other sleep disorders that often go undiagnosed. Get diagnostic testing and treatment tips to promote better rest and health.
spr.ly/6017BEfPIN
National Down Syndrome Society retweeted
🚨🚨New Content Provider Alert!🚨🚨 We're thrilled to offer education from @NDSS. Explore foundational knowledge and current best practices on managing health conditions in adults with Down syndrome. #CME
amaedhub.org/4uCykCP
CARE Down Syndrome is now featured on @AMAEdHub, the American Medical Association’s online learning platform.
CARE Down Syndrome is an initiative from NDSS that empowers healthcare professionals with knowledge and resources to meet the unique healthcare needs of adults with Down syndrome to help support informed, high-quality care.
The education featured on @AMAEdHub includes free, CME-accredited content covering key topics such as Alzheimer’s disease, mental health, and other common health conditions. Be sure to share, visit AMA Ed Hub and enroll in CARE Down Syndrome today! edhub.ama-assn.org/national-…
When receiving a Down syndrome diagnosis, 61% of parents reported experiencing negative bias about Down syndrome from medical providers, while fewer than 40% said they received accurate, current, and balanced information from their doctor.
We, alongside other advocacy organizations, are working to improve the way that diagnoses are delivered, which includes healthcare professionals providing accurate, evidence-based information in a sensitive and informed way.
We encourage anyone looking for more information on Down syndrome across the lifespan to visit ndss.org/lifespan/understand… or utilize our helpline at 800-221-4602 and info-box at [email protected].
We attended the In Motion, In Community: Wellness for People with IDD/A and their Supporters! With support from the @eaglesautism Community Grant Award, the @TJUHospital FAB Center for Complex Care launched their wellness initiative & gave each attendee an NDSS 321go! Fitness Kit
The deadline to submit a photo for the 2026 NDSS Times Square Video Presentation is June 4! Submit at pci.jotform.com/form/2601944…
On Tuesday, June 2 at 10 AM ET, NDSS is hosting a meeting with the U.S. Food and Drug Administration (FDA) to discuss Down syndrome-associated Alzheimer's disease (DS-AD). Get meeting details and learn how you can make an impact during this meeting at ndss.org/el-pfdd
NDSS is honored to support self-advocates with Down syndrome in pursuing their goals, whether it’s starting a business, continuing education, or following a personal passion. 🚨 Apply by Friday, May 22 at ndss.org/scholarships.
We are proud to announce that NDSS will honor Congresswoman @EleanorNorton with the NDSS Lifetime Impact Award on May 13 following our Down Syndrome Advocacy Conference! We are grateful for her years of service advocating for the Down syndrome and broader disability community.
