Dedicated to raising awareness of epilepsy risks & tackling all #epilepsy deaths including #SUDEP Get in contact: [email protected]
Wantage, Oxfordshire
Joined December 2009
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If you’ve already signed our petition, we urge you to write to your MP calling for the new government to renew and keep promises made to SUDEP Action.
Did you send a letter? Let us know at [email protected] so that we can track our collective impact!
#SUDEPAction #SUDEP #Epilepsy
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We’re delighted to share that SUDEP Action has been awarded £10,000 from CharityJob’s annual giving campaign. A heartfelt thank you to CharityJob for recognising the importance of this work and helping us make an even greater impact.
#CharityJob #SUDEPAction #Epilepsy
Every life with epilepsy matters. 💜
Hannah from the SUDEP Action Comms team reflects on why the charity’s work is so important.
Please share this video to help spread #epilepsyawareness or go online: sudep.org
#Epilepsy #SUDEP #EpilepsySafety
We need your help again this year to make a difference in the Big Give Christmas Challenge!
We will be trying to reach a £12,000 target❄️
From 1st-8th December, midday, your donations will be doubled.
Save our page: donate.biggive.org/campaign/…
#BigGive #SUDEP
Well done and thank you to the family and friends of Ross Aikenhead who raised over £6.5K at a Golf Day in his memory.
“We had a full field of 112 golfers competing. We also had a raffle, an auction and plenty more going on. In total, we have raised over £6.5k.”
#SUDEP
Every mile has a mission. 🏃
What challenge could you take on for 2027?
Email [email protected] for more information!
#SUDEPAction #SUDEP #Epilepsy #EpilepsyAwareness
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When someone we love becomes a memory, that memory becomes a treasure. 💜
Through our partnership with MuchLoved, you can create a free online tribute page to light virtual candles, share photos, and honour your loved one's legacy.
sudep.org/bereavement-suppor…
#SUDEP #Epilepsy
Want to take control of your #epilepsy management?
Empower yourself with the insights you need to have informed, confident conversations with your doctor about your safety and wellbeing.
📲 Download EpSMon for free today (UK, 18+).
Just search “EpSMon” on the App Store!
We need your voice to reach 10,000 signatures!
The government promised to work with SUDEP Action and families to tackle epilepsy risk and prevent future deaths. Help us make sure those promises are kept.
🔗 Sign & share now: sudep.org/sign-our-petition/
#Justice
Our coffee clubs are to offer mutual support and remind families and friends they are not alone. Whether you’re newly bereaved or have been navigating grief for years, you’re welcome at one of our coffee club meetings.
Learn more: sudep.org/coffee-club-meetin…
#SUDEP #Coffee #Grief
A huge thank you to everyone who has taken part in My Way to 5K this year! 🏃♀️
Your incredible efforts have raised £6,776.50!
Every donation has helped to raise vital awareness of epilepsy risks and Sudden Unexpected Death in Epilepsy (SUDEP).
#SUDEPActionDay #MyWayto5K
We need your support to reach our 10K signatures target!
Our petition addresses the promises made by government to work with SUDEP Action and families to tackle SUDEP and epilepsy risk to prevent future deaths: sudep.org/sign-our-petition/
Please sign and share this post 💜
This story in The Metro highlights the importance of always talking to health professionals for specific advice relating to YOUR epilepsy and how to manage it. Disinformation and not sharing evidence-based info on SUDEP and epilepsy risks can kill.
Woman, 31, found dead after ChatGPT ‘convinced her’ to roll back medication trib.al/2bnfMil
Our EpSMon app can help you keep track of changes in your condition, providing useful information for your doctor, whilst the SUDEP & Seizure Safety Checklist is designed to ensure important human conversations take place in clinical settings.
#SUDEP
There are only a few days left of #MyWayto5K!
If you want to make an impact, there is still time: tinyurl.com/MWT5K2026
Every 5K and every donation helps to empower families and individuals living with epilepsy across the country.
#SUDEP #Epilepsy #EpilepsyAwareness
Sign our petition to the Prime Minister to urge the new Government to honour the promises made to SUDEP Action and our bereaved families.
Stand with us: sudep.org/sign-our-petition/
Please share widely so we can continue the fight to #StopSUDEP together after #SUDEPActionDay.
Missed #SUDEPActionDay 2026?
This year, #StopSUDEP had a global reach of over 100 epilepsy organisations alongside hundreds of individuals who helped us spread awareness of Sudden Unexpected Death in Epilepsy.
#SUDEP #Epilepsy #EpilepsyAwareness
We have already raised over £5,000 through My Way to 5K this year – have you donated yet?
Every donation and every challenge is funding life-saving research into #SUDEP (Sudden Unexpected Death in Epilepsy) and epilepsy-related deaths.
Support our work: tinyurl.com/MWT5K2026
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Run the Brighton Marathon 2027 for SUDEP Action! 🏃
Race along the seafront while raising #EpilepsyAwareness and vital funds to prevent epilepsy-related deaths.
The deadline is 30th Oct so sign up today: runforcharity.com/charity-re…
#SUDEP #BrightonMarathon #Brighton
