jan1960 (@118_jan) profile picture

jan1960

@118_jan
Joined May 2012
  • Tweets649
  • Following90
  • Followers38
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Photo by jan1960 (@118_jan)Photo by jan1960 (@118_jan)Photo by jan1960 (@118_jan)Photo by jan1960 (@118_jan)Photo by jan1960 (@118_jan)
Replying to @jowhiley
@jowhiley this is my friend Ben -10 months ago he was in @BTHFT with Covid refusing to wear an oxygen mask and did not have a good prognosis- health professionals were fabulous - this was last week eating pancakes with chocolate!!! Sending you and your family hugs and love 😘
Image from jan1960 (@118_jan)
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Motor neurone disease (MND). It kills a third of people within one year, and more than half within two years of diagnosis. Six people will be diagnosed today. 𝐈𝐭 𝐡𝐚𝐬 𝐧𝐨 𝐜𝐮𝐫𝐞. More people need to know this. 𝐏𝐥𝐞𝐚𝐬𝐞 𝐬𝐡𝐚𝐫𝐞.
Image from MND Association (@mndassoc)
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Remember for some today is part of the weekend, but for carers it is simply another day.
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ICYMI @CarersTrust #PushedToTheEdge survey included quotes like this one. It's no wonder 91 % of #UnpaidCarers feel they are ignored by government. Link to report below 👇 carers.org/our-social-care-c…
Pushed to the Edge survey by Carers Trust quote on brown background with people walking past.

ALT Pushed to the Edge survey by Carers Trust quote on brown background with people walking past.

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"Carers shouldn't be having to leave work to be an unpaid carer" Laura Bennett from Carers Trust says the charity want the Government to reform the carers allowance to provide more choice and support on #BBCBreakfast More: bbc.in/3B5pJOM
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I’m proud to be one of the MND Association’s trustees, I help govern the organisation. I’m excited to see the launch of the #MNDPromises. These give the organisation a renewed focus to work faster, fight harder & strive for better, for us all. 🤝 mndassociation.org/mndpromis…
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J R R Tolkien's great grandson Mike was only 39 when he lost his life to motor neuron disease #otd in 2015. #MND is NOT rare! The reason so few are living with it is because so many are dying! PLEASE retweet to help raise awareness of this callous killer! #MND #MoreNeedsDoing!
Image from Jayne Halhead (@Jaynes__World)
Image from Jayne Halhead (@Jaynes__World)
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Did you know supplementary oxygen therapy can have a serious detrimental effect on people with #MND? See our guide for #paramedics and other professionals working in acute/emergency medicine: bit.ly/3izPv3H
Image from MND Education (@mndeducation)
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THANK YOU, John Lamont MP, who has urged Health Secretary @SajidJavid to speed up delivery of the £50m package for #MND research pledged by @GovUK, stating that "Time is of the essence for people living with motor neuron disease!". #MND #MoreNeedsDoing! bordertelegraph.com/news/198…

Borders' MP urges Health Secretary to speed up delivery of MND research funding

During Health and Social Care questions in the House of Commons, Mr Lamont highlighted the urgency to deliver funding, stating that ‘time is of the essence’ for people living with motor neurone...

bordertelegraph.com
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Lily 100 years old would't let me photograph her until I smartened myself up I had to wear a tie & jacket she said "I've had my hair done,got a new dress and borrowed a necklace, you look like you've been dragged thru a hedge you need to make an effort".
Image from Ian Beesley (@IanBeesleyphoto)
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Congratulations to Kevin Sinfield OBE. Such a wonderful lovely and inspirational person. No amount awards can be enough for Kevin Sinfield. We love you millions Kev. God Bless x
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My two year old son has been crying for 40 minutes because he doesn’t want his banana to be… Banana shaped
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This is what #PalliativeCare is all about! To all those who have dedicated their lives to this task... THANK YOU!
Image from Dr Neil Pender BM MSc FRCP 🏳️‍🌈 (@DrNeilPender)
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Let's start 2022 the way we mean to carry on, by raising awareness of motor neurone disease. Please retweet our graphic that highlights some of the key facts about the disease. Together we can achieve our vision of a world free from #MND 💙 thank you for your support!
Image from MND Association (@mndassoc)
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Very helpful blog with links to a variety of resources. #PlanningAhead 'It really is the conversations that matter.' Fab work, @ClareFuller17
Clare Fuller RGN MSc (@ClareFuller17) profile pictureClare Fuller RGN MSc@ClareFuller1718 Dec 2021
Important Conversations are at the heart of LPA decision making. "A new tool to help conversations become plans has been developed by Hospice UK . The Planning Ahead tool provides a great framework for conversations" speakformelpa.co.uk/blog/lpa… @drkathrynmannix @hospiceuk
LPA Registered:What Next? — Speak For Me LPA

LPA Registered:What Next? — Speak For Me LPA

There is a neglected side to LPAs I think, the what next bit. By this I mean what should you do once an LPA is registered with the Office of the Public Guardian. I have already written about the...

speakforme.co.uk
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So I am always up for a challenge a baggies friend of mine has now challenged me to get 101 retweet’s and he will put £101 on my just giving page matching Sir Kevs 101 miles justgiving.com/fundraising/J… Thankyou everyone #WBA#Baggies#united2endMND 💙🤍💙🤍💙🤍💙🤍💙
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Two years ago yesterday, I was told I had 1-2 years to live and to get my affairs in order. That day something happened to me - I became more determined than ever! There is no way this horrible disease is going to beat me. 2 years on I'm more focused than ever.
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Fortunately I filmed it (can’t find a link) My 97 yr old mum said she cried watching it: her grandson😥 MND Breaks so many💔@Rob7Burrow @LDShospcharity @duncanwooditv @itvcalendar @tanyaarnold @AgamJung @esther_wakeman @IanFlattTDM @Davidmerrick18 @JNNP_BMJ @alexwardfund @causeuk
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It is abhorrent and cruel that even during a pandemic NHS staff are coming back to find parking tickets on their cars because they spent too long trying to save lives. Retweet if you agree that parking should be free and that fines going to private companies should be scrapped.
Jon Trickett MP (@jon_trickett) profile pictureJon Trickett MP
@jon_trickett6 Dec 2021
Abolish NHS Car Parking charges.
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