RN/DiabEdu | National advocate and consumer consultant for #melanoma patients and clinicians|scientists|research | Own opinions

Melbourne
Joined May 2012
It’s always a pleasure to catch up with friends & everyone at Parkrun (5k walk/run on Saturdays). It was fun catching up with The Guardian’s Kate Lyons recently too! theguardian.com/australia-ne… @GuardianAustral @parkrunAU @SydneyLHD @Sydney_Uni @AllenAndUnwin @gmaddox #Brainstorm #glioblastoma
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🗣 Session 2, "Consumer Forum", focussed on providing our wonderful consumers w/ updates on our cohort study presented by Dr Uyen Koh and the use of AI in skin cancer detection by @DrVictoriaMar. The session ended with an interactive Q&A/poll presented by @AButtonSloan 📊
🌟 Day 2 of the ACEMID Researcher Workshop 2025 started off w/ a "Melanographer session", in which @PabloFP_Syd highlighted positive and constructive feedback from our Melanographers who conduct the study visits 📷🔎, and developed future action points to improve our work!
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🚨PhD Opportunity 🚨 Join ACRF ACEMID & @UQ_CHSR to work on the largest melanoma cohort study!🌏 Under Professor @MonikaJanda's supervision, you'll develop a roadmap for melanoma screening in regional Australia🔎🇦🇺 🔗More info & apply now: study.uq.edu.au/study-option…
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🎉 Recruitment milestone! ACERF ACEMID has reached 50% of its recruitment target with 7,548 participants enrolled, who have over 17,255 study visits completed across 15 active sites. A huge thanks to all for the support and dedication! 🌟 @UQ_News @MonashUni @Sydney_Uni
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Interesting paper.
When to stop immunotherapy for advanced melanoma: the emulated target trials sciencedirect.com/science/ar…
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Despite saying he’s all for sun safety, Nic’s comment says it all ‘not if it’s going to ruin my tan’. ⬇️ What a great role model for people under 40y - NOT. According to our Austs of the Year @ProfGLongMIA & @ProfRAScolyer, #melanoma experts, there’s nothing healthy about a tan.
Aussies have been left outraged after beachgoers were caught using their cabanas to snag spots on popular beaches. Nic Salerno has been on a crusade against Cabanas, and he tells us why he is so against them.
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Proud of us Aussies, taking up sun safety message & raising awareness at ‘Parliamentary Friends of Melanoma & Skin Cancer Awareness’ BBQ with melanoma nurses representation (project lead Rebecca Johnson), wonderful advocacy teams across Australia & parliamentarians incl @JasonClareMP, @Mark_Butler_MP, @PeterDutton_MP, @DarrenChesterMP & @zalisteggall. @MelanomaAus @Sydney_Uni @ausoftheyear @AMSCA_Mel
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Thank you to the @eurekaprizes for featuring ACEMID in your blog. “This accolade not only brings visibility to our work but also provides a platform to further advocate for advancements in skin cancer prevention and early detection” australian.museum/blog/scien…
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Great evening!
Replying to @Melanoma_MRV
@melanoma_MRV held its annual public forum last night. Always good to hear the about the year's achievements from research @McArthurGrant and consumer @AButtonSloan perspectives.
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Join us for MRV’s Annual Scientific Exchange Meeting on Thurs, Nov 7, hosted by Prof. Grant McArthur at Peter MacCallum Cancer Centre. In-person or online ✨MRV updates ⚖️ Debate: "No future role for adjuvant therapy?" 🤖 AI & histopathology in melanoma Plus more: see agenda⬇️
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It was fantastic to bring our ACEMID team together in Sydney last week for the ACEMID researcher workshop, diving into the IMAGE trial and our work in genetics, pathology, and biomarkers 🔬🧬
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One of the many highlights of #AMC2024 was meeting @JeffGershenwald, Chair of the 8th Edn AJCC Melanoma Staging Panel!
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Our consumer, research, clinical, professional colleges and community Alliance members at #AMC2024 All dedicated and working towards to improving outcomes for #melanoma & skin cancer patients.
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As @AMSCA_Mel Chair, it was a fabulous opportunity to showcase the achievements of our 11 melanoma & skin cancer Alliance member organisations at #AMC2024. But, to discover the hidden dramatic arts talents of our consumers during the debate in the same session was priceless!
Day 1 of #AMC2024 wrapped up with a lively debate: 'Patient advocacy & consumer representation are just a tick box exercise'. Very entertaining, with academy-award worthy role play! The negative team won, confirming consumer input is NOT simply a tick-the-box exercise.
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Having attended & presented at many midwifery, nursing, diabetes conferences over the years, this year’s #AMC2024 would have to rank as #1. Congratulations @MelanomaAus
During #AMC2024 opening @ProfGLongMIA & @ProfRScolyerMIA reflected on how the melanoma landscape has changed & the roadmap to reach zero deaths from melanoma, including consistent sun smart messaging, national targeted skin cancer screening, advancing treatment & supportive care.
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One of the many brilliant sessions at the #AMC2024.
Inspiring #AMC2024 discussions: 'Overview of peri-operative systemic therapies'- neodjuvant therapy, histopathology & surgery considerations, personalised vaccines, clinical stage II & III melanoma @amenzies9 @Robbotommo @davidgyorki @inespiresilva #VictoriaAtkinson #RobertRawson
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Alison Button-Sloan retweeted
Is there still a role for sentinel lymph node biopsy in the modern melanoma era for clinical stage IIB/C ? Prof. Andrew Barbour’s brilliant talk reminds us that YES, there is! #Togetheramplifyingtheimpact #MelanomaCare #CancerResearch #AMC2024 @MelanomaAus @TRI_info
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'Skin checks in primary care: Best practice & future directions'. Insightful session at #AMC2024 covering challenges of skin checks, risk prediction tools, integrating new technologies for surveillance & supportive care needs of patients. @AnneECust
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Fantastic poster from the @Melanoma_MRV team show casing how #melanoma patients research priorities have changed over ten years with the advent of the targeted and immunotherapies.
MRV’s poster at #AMC2024. Visit us at poster 53.
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