@AccessRare

RAAP is a non-profit organization that is a coalition of patient, provider, and life sciences stakeholders that advocates for rare disease access.

rareaccessactionproject.org
Joined September 2022
  • Tweets25
  • Following35
  • Followers19
12Media
Rare Access Action Project retweeted
Patient Worthy@PatientWorthy22 Feb 2023
Right now, we cover over 900 rare diseases on Patient Worthy - but there is still so much left to learn! What #RareDisease would you like to see more awareness about? #RareDiseasesChat
National Library of Medicine@NLM_NIH22 Feb 2023
Did you know that a rare disease is one that affects fewer than 200,000 people in the U.S.? There are nearly 7,000 rare diseases & more than 25 million Americans have one. Learn more with @medlineplus: medlineplus.gov/rarediseases… #RareDiseasesChat

Rare Diseases: MedlinePlus

A rare disease is one that affects fewer than 200,000 people in the United States. There are nearly 7,000, affecting more than 25 million Americans.

medlineplus.gov
9
4
1
22
4,081
Rare Access Action Project retweeted
Rare Disease Day@rarediseaseday1 Feb 2023
🎉 Today marks the first day of Rare Disease Awareness Month 2023! 📣 Join us this month to raise awareness for the 300 million people living with a rare disease worldwide! 👉 Find out how you can get involved: cutt.ly/w9tI5Pb
2
136
25
289
21,328
Rare Access Action Project retweeted
Patient Worthy@PatientWorthy1 Feb 2023
Living with and Raising Awareness of Stickler Syndrome: Emily’s Story (Pt. 1) bit.ly/3XUGK8X #RareDisease #SticklerSyndrome #Sticklers
1
3
689
Load more