mum, nurse, countryside lover, loves fizz. A PD Avenger and hates Parkinson’s. Co-lead for south east Excellence Network.
England, United Kingdom
Joined September 2014
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Clare Addison 💙💙 retweeted
Parkinson’s nurses are so important and make such a difference to people living with Parkinson’s and their families!
Parkinson’s nurses are a lifeline. Whether you're ready to specialise or just want to learn more, you can make a real difference.
Find out more: parkinsons.org.uk/parkinsons…
A must for your holiday reading!
If you would like a sneak preview of this book including the preface, the forewards by @FionaLindop and @AddisonClare and part of the first chapter then click here indigo.ca/en-ca/when-your-ne…
Tweeting every Tuesday until publication which is now 12th August😀
#WhenYourNeuronsDance
Clare Addison 💙💙 retweeted
Every year the #NHS Professionals with #Parkinsons Group puts the spotlight on an issue
This 2 min film called ‘The NHS Prescription Lottery,’ asks one question that people living with Young Onset Parkinson’s would like answered.
RT if you agree 🙏🏼🙏🏼
youtu.be/0a9WTZ48yac
Fantastic day! Putting the patient at the centre across all healthcare systems….driving transformation across neurology services.
Very excited to be at the 2nd Neurology Transformation conference @TheNeuroAcademy packed audience for an informative day
Clare Addison 💙💙 retweeted
“Asking patients if they take any time critical medication, and when their next dose is due, should be one of the questions every clinician asks. This simple enquiry becomes increasingly pertinent given the backdrop of the extreme long A&E stays more and more people are having to endure."
@RCEMpresident Dr Adrian Boyle responds to a report by the Health Services Safety Investigations Body on the administration of time critical medication in the Emergency Department.
Read RCEM's full response here - tinyurl.com/4ytrdkbr
Clare Addison 💙💙 retweeted
What an absolutely brilliant idea and such a lovely group-it was an honor to speak to you all! #supportgroup #stigma #parkinsons @movedisorder @AANmember @ParkinsonsUK @KRayChaudhuri1 @kailashbhatia @ajlees @MichaelOkun @basbloem @SoaniaMathur @RichelleFlan
In 2020 we set up a support group for people working or who have worked in the #NHS while living with #Parkinsons
This week we welcomed our 53rd member from around the UK 🇬🇧
Retweet to help us find more 🙏🏼
Fantastic news that @NHSE have listened to the patient voice and are supporting the needs of patients on #TimeCriticalMedication #Parkinsons #PatientSafety
When you discover that @NHSEngland have this week included #TimeCriticalMedication into their National Patient Safety Improvement Programme running from April 2024 - March 2027 that has to be a good day.
😀😀😀😀😀😀😀😀😀😀😀😀😀
#parkinsons
england.nhs.uk/patient-safet…
Clare Addison 💙💙 retweeted
Great work from Ana, pushing forward with a self-administration policy so we can support patients to continue to manage their own medicines in hospital if they are able
Today we meet Ana Armstrong, a Pharmacy Clinical Team Manager here at SASH. To learn more about her and her role. visit: bit.ly/3UaJcIZ
Clare Addison 💙💙 retweeted
Taking your #Parkinson’s medication on time is crucial. So why is it such a problem in hospitals across Europe?
We take a look & ask whether new @ParkinsonsUK guidance could help to improve a Europe-wide issue.
👉 Read more: parkinsonseurope.org/2024/04…
#parkinsons @ParkinsonsEN
Clare Addison 💙💙 retweeted
Every April a group of #NHS professionals make a short film about living with #Parkinsons
This year it’s about physical activity
But who has been diagnosed the longest (watch to the end 🎬)
youtu.be/8RSHGsajDHY?feature…
Music: bensound.com License code: CCSE7YOQFLF0YQSM
Clare Addison 💙💙 retweeted
On #InternationalWomensDay I would like to give a shout out to all those that I work with in #Parkinsons circles, there are many, here are a few…Thank you for all you do.
Clare Addison 💙💙 retweeted
Stepped care for parkinson . touchneurology.com/parkinson…
Clare Addison 💙💙 retweeted
Day 4 of #SafeguardingAdultsWeek Adopting a trauma informed approach to safeguarding. ‘What does this person need’ rather than ‘What is wrong with this person?’ @SurreySAB @sashnhs @AnnCraftTrust – at Salfords, South East
Great day launching the ‘Every Minute Counts : Time Critical #Parkinsons Medication campaign with MP’s. Thanks to all who came and to the @ParkinsonsUK and @ParkinsonsEN team. We brought the next generation with us as well and the sun was out!
parkinsons.org.uk/sites/defa… – at London, England
It just shows the power of patient involvement! We are determined to get #timecriticalmedication right for our #parkinsons community in hospital. @ParkinsonsEN @HSJpatientsafety @sashnhs @jonny_acheson
I know this is last weeks news but somethings are just worth revisiting. The amazing @jonny_acheson and @AddisonClare and Co won the HSJ Patient Involvement in Safety Award last week
parkinsons.org.uk/profession…
Huge congratulations, what a team.
Clare Addison 💙💙 retweeted
Basil summed it up the best when he announced that in his eyes HSJ actually stood for
Hope, Support and Joy.
Three things we all experienced throughout this project so far @AddisonClare @tincybinu9 @JeanAlmond2 and Grace @HSJnews @HSJptsafety
Driving the National patient led campaign for hsj patient #hsjpatientsafety #timecriticalmedication for #parkinsons continues with a working breakfast @EmmaKirkMSO @ParkinsonsEN @jonny_acheson @tincybinu9 @JeanAlmond2 There’s much still to do! – at Manchester, England
Clare Addison 💙💙 retweeted
Huge congratulations to the NHS professionals: living and working with Parkinson's group, who won a @HSJptsafety Patient Involvement in Safety Award last night! 🥳🎖️🙌
We're delighted for you and so proud! You can read more about the group's work here 👉bit.ly/3KzV2YF
So brilliant to receive this award! Let’s all continue to drive this campaign.. it’s everyone’s business!
The winner of the Patient Involvement in Safety Award is @Addisonclare @jonny_acheson - congratulations on your win! #hsjpatientsafety Awards