A study conducted by @StMarksFRU & @MaastrichtU aimed at developing an Anal Fistula Core Outcome Set. Email [email protected] to register!
London
Joined December 2019
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Now online and open access-
AFCOS: The Development of a Cryptoglandular Anal Fistula Core Outcome Set
Published in @AnnalsofSurgery
@BowelsOfStMarks @StMarksFRU @COMETinitiative @escp_tweets
journals.lww.com/annalsofsur…
Huge thanks to all participants and collaborators for supporting this project!
@nusiqbal @DrUgoGrossi @philtozer1 @debby_keller @ZimNl @IEGecim @pfclung @AikateriniLeve1
#fistula #colorectalresearch #colorectalsurgery #SoMe4Surgery
AFCOS Study retweeted
Enhancing patient-centered care by offering patients a voice 👉 the impact of cryptoglandular anal fistula extends beyond the physical symptoms of pain and discharge.
link.springer.com/content/pd…
@nusiqbal @escp_tweets
New: How can we improve #fistula research and clinical care? By listening to patients themselves 👇🏽 link.springer.com/article/10…
@nusiqbal @DrUgoGrossi @Dr_AlRubaiy @philtozer1 @StMarksFRU @SpringerNature
Our interviews highlighted problems in:
❎️ Diagnosis
❎️ Communication
❎️ Expertise
❎️ After care
As well as extensive impact on #QoL and a lack of focus on patient centred outcomes
Patient input into #AFCOS was crucial, we look forward to sharing the full study soon! #colorectalresearch #colorectalsurgery #fistula #PPI #SoMe4Surgery
Do you have or manage pouch anal or vaginal fistula? Get involved in our sister study! 👇🏽#colorectalsurgery #colorectalresearch #IPAA #SoMe4Surgery #ilealpouch
First round of PAVFCOS delphi study is live! Please register at delphimanager.liv.ac.uk/pavf… @StMarksHospital @PouchRed @IA_PouchGroup @CrohnsColitisFn @philtozer1 @SueClark16 @nusiqbal @CharleneTB84
AFCOS Study retweeted
Calling all fistula warriors! Please help us complete this anal fistula quality of life score & help change the face of fistula research and treatment! Just complete the questionnaire to validate this PROM developed by & for patients @KSahnan @nusiqbal @LillianReza @philtozer1
AFCOS Study retweeted
Are you a patient with a non-Crohn’s anal fistula? We are developing a tool to measure quality of life and need your input 👇🏼
Why do we need a Core Outcome Set for cryptoglandular anal fistula?
Review of the literature highlights heterogeneity of outcome reporting in fistula research. See our open access article!
@philtozer1 @DrUgoGrossi @KSahnan @nusiqbal @StMarksFRU
link.springer.com/article/10…
To develop the COS, outcomes reported in literature were supplemented with those derived from patient interviews, then put to an international Delphi
Only 2 weeks left to complete AFCOS round 2! Thanks to all those who have contributed so far @DrUgoGrossi @philtozer1 @StMarksFRU @StMarksHospital @escp_tweets @EsgarSociety @my_ueg @ACPGBI
Huge thanks to the 200+ participants who completed AFCOS round 1. ROUND 2 IS NOW OPEN! Follow the link in the email, and tell us how we can better assess treatment for anal fistula @philtozer1 @DrUgoGrossi @ZimNl @StMarksHospital @StMarksFRU @ACPGBI
Huge thanks to the 200+ participants who completed AFCOS round 1. ROUND 2 IS NOW OPEN! Follow the link in the email, and tell us how we can better assess treatment for anal fistula @philtozer1 @DrUgoGrossi @ZimNl @StMarksHospital @StMarksFRU @ACPGBI
Only 1 week left to register and complete round 1! @philtozer1 @DrUgoGrossi @StMarksFRU @StMarksHospital @escp_tweets @EsgarSociety @BSGAR_UK @ACPGBI @my_ueg @ZimNl @GianlucaPellino @juliomayol
If you're a surgeon, radiologist or proctologist experienced in assessing anal fistula, please get in touch! [email protected]
Only 2 weeks left for registration and round 1! Get involved @StMarksFRU
@ACPGBI @escp_tweets @BSGAR_UK @EsgarSociety @DrUgoGrossi @ACPGBI_PLG @philtozer1 Thank you to all those who have participated so far!
How do you define success in treating cryptoglandular anal fistula? We need your help with this pan- European collaborative to determine a core outcome set for Cryptoglandular anal fistula @escp_tweets @BSGAR_UK @EsgarSociety @my_ueg @ACPGBI
AFCOS Study retweeted
AFCOS Study..
If you're a surgeon, radiologist or proctologist experienced in assessing anal fistula, please get in touch! [email protected]
AFCOS Study retweeted
Thanks to everyone who has already filled in and to everyone who’s about to! This a great, patient centred initiative driven from across Europe and open to the whole world! COS, COS, COS!!!
Registration and round 1 are now open!
Contact [email protected] for more info @StMarksHospital @StMarksFRU @philtozer1 @DrUgoGrossi @ACPGBI @escp_tweets
AFCOS Study retweeted
@ZimNl @dr_samehhany81 @CantarellaDr @Gae_Gallo @philtozer1 @eloiespin @GianlucaPellino @IntColoproct @TKRCD_ @escp_tweets @ASCRS_1 – at Ankara, Türkiye
Registration and round 1 are now open!
Contact [email protected] for more info @StMarksHospital @StMarksFRU @philtozer1 @DrUgoGrossi @ACPGBI @escp_tweets
Patient involvement in this study is crucial. If you're a patient with a non Crohn's anal fistula please get in touch! [email protected] @ACPGBI_PLG @StMarksHospital @StMarksFRU @philtozer1
