Alice Lara retweeted
To our dogs, we are perfect. Living up to that image means believing in yourself, getting up when you’re knocked down, finding joy in simple things, and living in the moment. Embodying that goodness will make us happier, healthier, and more connected to those around us.
Alice Lara retweeted
Join @HeiseToxFM of @CredibleMeds who will address your questions about specific supplements and interactions, if any, while living with #LQTS.
Register at sads.org/what-now/living-wit….
This makes perfect sense! This will be so helpful for healthcare professionals! Thanks @LGlaucomflecken! @SADSFoundation
Healthcare doesn't give clinicians many tools to communicate well with co-survivors.
I created the Explain, Name, Validate framework from my experiences:
Explain-Tell us what happened
Name-Label our role
Validate-Let us know our feelings are reasonable
bit.ly/4aA8eGM
Great work @AnaMoralesCGC. This is not news to those of us @SADSFoundation who talk w/patients every day but it is shocking and unacceptable in the care of people with cardiomyopathies.
From @AnaMoralesCGC + Murillo + team: Real-World Genetic Testing Utilization Among Patients With Cardiomyopathy
ahajournals.org/doi/abs/10.1…
@AHAScience #AHAjournals #CardioTwitter #Genetics
Alice Lara retweeted
We’re fortunate to have an incredible group of members and partners who have banded together to educate providers, patients and the public about the value of genomic testing in cardiology.
Thank you to each of these amazing organizations. We are making a difference together!
Alice Lara retweeted
Coming Friday to Pediheart. @SADSFoundation @Alice_SADS @MountSinaiPeds @MountSinaiCHC @CHD_education @cchaforlife @PACESep #Cardiology #epeeps #cardiotwitter #cardioed #MRI #CMR
Alice Lara retweeted
Coming Friday to Pediheart! @MountSinaiPeds @MountSinaiHeart @MountSinaiCHC @MountSinaiNYC @MountSinaiNYC @IcahnMountSinai @SADSFoundation #CardioEd @CHD_education @MLH_CHD @conqueringchd @CHDinfonet
Such an important paper. Children deserve better than having to wait to get evaluated by an expert!
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Alice Lara retweeted
Available today! @DWerho @CarissaBakerSm1 @ShelbyKuttyMD @JSanzPhD @MountSinaiCHC @MountSinaiPeds @8thWCPCCS2023 podcasts.apple.com/us/podcas…
Alice Lara retweeted
Check out this great piece that Dr. Sam Sears, cardiac psychologist, did with PBS - about the importance of mental health care for people with SADS conditions, and in particular for those with ICDs: ow.ly/5fh250ONsRh.
Alice Lara retweeted
Dr.Nademanee walks us through the Brugada journey in Special edition @HRS_O2Journal
heartrhythmopen.com/article/…
@jepoolemd @APHRSOfficial @thaiheartorg @netta_doc @DrRoderickTung @jhurwitz55 @drbilalmunir @AndreaRussoEP @hrs_journal
Alice Lara retweeted
Genomic testing provides a more precise view of a patient’s genetic cardiovascular condition, improving the effectiveness with which often underdiagnosed single-gene mutations are identified and treated.
Visit our website to learn more & see other FAQs.
cardiogenomictesting.com/faq…
Alice Lara retweeted
Join us on Sunday, June 4th, for the SUDC Foundation Sunday Speaker Series: "Fathering Through Grief: Navigating the Challenges and Finding Strength in the Journey of Loss" with Kelly Farley. Register now!
Link to register: surveymonkey.com/r/SpeakersS…
#SUDCFoundation #GriefSupport
Alice Lara retweeted
Beckly learned a genetic mutation caused her cardiomyopathy. Knowing this may have saved her life and her family members.
Join our webinar on June 21 to learn how testing can potentially save your life: dcmfoundation.org/upcoming-w…
Watch Becky's video here: youtu.be/NER0OW_Sco4
Alice Lara retweeted
Only the incomparable #SoulQueen of #NewOrleans could get a ballroom of #EPeeps up on their feet #secondlining at 8 AM!
#Thankyou Irma Thomas for joining us & special thanks to @DanielPMorin for sharing your talented #heartrhythm patient w/ us.
#EPeeps #HRS2023 #secondlineband
Alice Lara retweeted
#HRS2023 #2023PaceSetter
NEW🎉 consensus statement on the management of arrhythmias during pregnancy!
There’s a lot here. Will try to make one big thread 🧵
Starting with list of contributors (many from @PACESep!) and updated approach to medications during pregnancy
Alice Lara retweeted
Do you want to stay in the know with all thing’s genetic cardiomyopathy? Sign up for regular updates from the Genetic Cardiomyopathy Awareness Consortium. lp.constantcontactpages.com/…
Great discussion @Dr.Sanatani & @CanadianSADS! Can’t wait for part 2
Alice Lara retweeted
Really excited about this project to help the formation and conduct of IA clinics. @BehrElijah @MJAckermanMDPhD @jodieingles27 @CSHeartResearch @HeartsInRhythm Management of Inherited Arrhythmia Syndromes: A HiRO Consensus Handbook on Process of Care cjcopen.ca/article/S2589-790…
Alice Lara retweeted
QTdrugs List update: Macimorelin, Dexmedetomidine, Pralsetinib, Adagrasib and Tebentafusp added to the Possible Risk of TdP category & DTA List by AZCERT's Scientific Review Committee due to evidence that their use is associated with QT prolongation: bit.ly/400vfh5