Our mission is to increase awareness of and find a cure for Alpha-1 Antitrypsin Deficiency. Facebook (Alpha-1 Foundation) & Instagram (Alpha1Foundation).
Miami, FL
Joined July 2009
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Alpha-1 Foundation retweeted
Can persistent jaundice in a newborn be the missing piece? 🧩
It could point to Alpha-1 Antitrypsin Deficiency (#AATD) — a genetic condition where abnormal protein builds up in the liver, causing damage.
Early signs matter. Diagnosis is simple: a blood test.
Learn more: alpha1awarenessday.org/
#TheMissingPiece #UnitedForAlpha1 #LiverHealth #RareDiseases #Alpha1Awareness
ALT https://www.alpha1awarenessday.org/
Alpha-1 Foundation retweeted
It's Patient Voices Wednesday! Joey Masnack from the @AlphaFriend talks about how the research of today can lead to the cures of tomorrow, and how funding cuts could jeopardize that future,
Learn more about his story: site.thoracic.org/advocacy-p…
Alpha-1 Foundation retweeted
grateful to receive the John W. Walsh Career Development grant from @AlphaFriend to support my research on genetic and proteomic risk prediction of lung disease in alpha-1 antitrypsin carriers. Many thanks to @mikecho95 George O’Connor @Awilsonlab @BUPulmonary for their support!
A1F proudly recognized the 2025 Grants Award recipients during the ATS International Conference. These innovative projects represent the next generation of progress in Alpha-1 research. Learn more about the researchers and their work: alpha1.org/a1f-recognizes-20…
Alpha-1 Foundation retweeted
Excited for #ATS2026? So are we!
The 16 members of the ATS Public Advisory Roundtable (PAR) met this morning to begin work on ATS 2026. The ATS PAR collaborates with the ATS by serving on ATS Committees, funding research grants, and enhancing ATS International Conference programming with more than 20 patient speakers.
Visit them today to learn more! Located in the Exhibit Hall in PAR Row, between Innovation Theater 5 and the Fun Zone.
Alpha-1 Foundation retweeted
🛡️ Did you know Alpha-1 Antitrypsin Deficiency (AATD) might trace back to our #Viking heritage?
When AAT protein misfolds, it can harm the liver. Symptoms in adults may include:
⚠️ Jaundice
⚠️ Swelling/pain
⚠️ Itching
⚠️ Fatigue
A simple blood test can help.
🧬 Could it be Alpha-1? 👉 alpha1awarenessday.org
#TheVikingLegacy #UnitedForAlpha1 #LiverHealth #RareDiseases #Alpha1
ALT Find our more 🔗 https://www.alpha1awarenessday.org/
Alpha-1 Foundation retweeted
Is it asthma or 𝑠𝑜𝑚𝑒𝑡ℎ𝑖𝑛𝑔 𝑚𝑜𝑟𝑒? 🤔
#Asthma and #Alpha1 (#AATD) share symptoms like wheezing & shortness of breath — but missing an Alpha-1 diagnosis can lead to serious lung damage.
🩸A simple blood test can help. Ask your doctor.
✅The right diagnosis = the right treatment.
#WorldAsthmaDay #LungHealth #Alpha1Awareness
ALT About AATD: https://alpha1europe.org/about-the-condition/
Alpha-1 Foundation retweeted
🏹 Could #Alpha1AntitrypsinDeficiency (AATD) be part of your 𝑽𝒊𝒌𝒊𝒏𝒈 𝒉𝒆𝒓𝒊𝒕𝒂𝒈𝒆?
This rare genetic condition affects lungs & liver — and often goes undiagnosed.
✅ A simple blood test can detect it early.
🛡️ Learn more: alpha1awarenessday.org/
#TheVikingLegacy #UnitedForAlpha1 #LungHealth #Alpha1Awareness #AATD
ALT The invasion that still lives in us: https://www.alpha1awarenessday.org/
Alpha-1 Foundation retweeted
🔴 LIVE: Patient voices at #Alpha1 Global Congress!
Patients & caregivers share their lived experiences in Living with Alpha-1 – Patients’ Perspective. Powerful insights from Cristina Barbiero, Elena Goyanes, Frank Willersin & more! 💜
#LivingWithAlpha1 #PatientVoice
Alpha-1 Foundation retweeted
📍 Estamos en #Lisboa participando en 7.ª Conferencia Global de Investigación sobre el Déficit de Alfa-1 Antitripsina #DAAT, organizada por la Alpha-1 Foundation @AlphaFriend
Esta mañana se lleva a cabo una interesante sesión científica con expertos internacionales para abordar los últimos avances en el estudio de esta enfermedad (sigue hilo👇).
Alpha-1 Foundation retweeted
All Americans deserve life-saving care—especially those with rare diseases. I’m introducing the John W. Walsh Alpha-1 Home Infusion Act to ensure Alpha-1 patients get the treatment they need, at home.
salazar.house.gov/media/pres…
Alpha-1 Foundation retweeted
🎉 The Alpha-1 Foundation, @AlphaFriend, is marking its 30th anniversary this year! 🥳
Their celebratory announcement has been reshared nationwide. Read it here to learn about their 30+ years supporting those with #Alpha1: alpha1.org/the-alpha-1-found…
Alpha-1 Foundation retweeted
🌍 Today is #WorldCOPDDay a time to amplify the voices of those with this condition. 🫁 For the Alpha-1 community, it’s also a vital opportunity to highlight the importance of #earlydiagnosis. 👇 #Alpha1 #COPDawareness
ALT World COPD Day | Test for Alpha-1 if you are a COPD patient!
Alpha-1 Foundation retweeted
A4: Bronchiectasis may not be quickly identified, delaying diagnosis & treatment. Watch for symptoms like chronic cough, excess mucus production & recurrent respiratory infections. Early detection & proper diagnosis are crucial for effective management #WorldBronchiectasisDay2024
Alpha-1 Foundation retweeted
I am thrilled to announce that we have received the Research Grant from the Alpha1 Foundation @AlphaFriend to study the role of Alpha1Antitrypsin on B cell immunity
A special thanks to @Awilsonlab for the support – at Houston, TX
Alpha-1 Foundation retweeted
Tomás Carroll of @RCSI_Irl and @Alpha1_Ireland visited Donegal today to speak about #Alpha1 in @HSELive Letterkenny University Hospital. Thanks to Patricia McLaughlin for the opportunity to raise #Alpha1Awareness in the north west which has a high prevalence of the condition. – at Donegal, Ireland
Alpha-1 Foundation retweeted
@ChildrensLA is now a @AlphaFriend certified care center for #pediatric #lung and #liver Alpha 1 Antitrypsin Care! – at Los Angeles, CA
Alpha-1 Foundation retweeted
⏰ In 15 minutes!
Make sure to tune into our livestream in partnership with @AlphaFriend on the screening of AATD. Hear our experts provide insights and practical tips for managing AATD in your patients.
ms.spr.ly/6013gPjnR
Alpha-1 Foundation retweeted
We thank the @EU_Commission for their continued support of #raredisease #research, including #Alpha1. It is key to keep working together, across the whole EU, as we move towards better and more accessible treatments #EUAlpha1AwarenessDay @Alpha1_Global @AlphaFriend
Alpha-1 Foundation retweeted
TODAY is European Alpha-1 Awareness Day where the Alpha-1 Community in #Europe comes together to raise #Alpha1Awareness and encourage more testing. Read about what life is like living with this genetic condition:
breathe.ersjournals.com/cont…
Alpha-1 Foundation retweeted
How confident are you in screening for AATD for COPD, asthma, and emphysema patients?
Join our upcoming #livestream in partnership with @AlphaFriend to hear from our expert panel on strategies for screening. #MedEd
➡️ Click on the link to get notified! ms.spr.ly/6014gOjbG