Creating knowledge & hope via #digital platform with personalized information, expert advice & experiences from other #patients recently diagnosed #Alzheimer
Sweden
Joined September 2020
- Tweets95
- Following300
- Followers121
- Likes309
Pinned Tweet
From us @AlzheimerGuide @demenslotsen it’s a New era not only for treatments, but also for patients raising their voices. The doctors can pull for change inside of healthcare - but the #patients & their families are the real gamechanger pushing for change from outside! #AAIC23
Is the European healthcare system prepared for a new #Alzheimer’s Disease treatment? @Eisai_SDGs symposium with Frank Jessen, @alessandro5161 @OskarHansson9 and @craig_ritchie68
Chair Lutz Frölich.
#AAIC2023 #AAIC23
Har du nyligen fått diagnosen #Alzheimers sjukdom? Vi vill att du ska veta att du inte är ensam, det finns saker du kan göra för att må bättre efter diagnosen & det finns stöd att få!
Guiden är kostnads- och reklamfri. alzheimerguiden.se
#Alzheimerdagen #WorldAlzheimerday
AlzheimerGuiden retweeted
Goda chanser för lekanemab trots allt – men något skaver i EMA:s analys dagensmedicin.se/alla-nyhete…
AlzheimerGuiden retweeted
On #WorldBrainDay, we are shining a spotlight on brain health and #dementia prevention🧠
Together with our 24 partners across 🇪🇺 and beyond, AD-RIDDLE is working to advance the detection, prevention & treatment of #Alzheimers disease and dementias.
#WBD2024 #LoveYourBrain
AlzheimerGuiden retweeted
Thrilled to be attending the National Conference on Health Economics @NBK_GW! Looking forward to insightful discussions on AI's potential for early #Alzheimer's diagnosis and talking about the creation of our digital #AlzheimerGuide at #NBKGW2024
#HealthcareInnovation #AI
Auf der #NBKGW2024 widmen wir uns Potenzialen künstlicher Intelligenz (KI) zur Frühdiagnose von Alzheimer. Dazugehörige Forschung, Gesetzgebung und politische Normierung werden beim Baltic Sea Health Region Meeting (BSHRM) erörtert. Zur Anmeldung: konferenz-gesundheitswirtsch…
AlzheimerGuiden retweeted
Hope to see you at @gcpcc24!
I’ll be talking about the co-creation process @AlzheimerGuide . Love to hear what you think of a digital platform created for and together with recently diagnosed #patients #alzheimer.
#GCPCC24 #Vitalis #personcentered #alzheimerguide
invitepeople.com/public/even…
AlzheimerGuiden retweeted
Dementia Pledge in transit to our event at EU Parliament tomorrow!
MEPs standing in #EUElections2024 can sign & help make dementia a priority.
If you are an MEP & want to support but can’t attend, pls tweet your support for #DementiaPledge2024!
More info: alzheimer-europe.org/news/ru…
AlzheimerGuiden retweeted
Everyone at Dementia UK is deeply saddened to learn of the death of @WendyPMitchell. A tireless campaigner, Wendy’s writing and work helped many people understand what it is like to live with dementia, as well as giving a powerful voice to those living with the condition.💙[1/4]
ALT Close up of a woman (Wendy) smiling. She wears a blue t-shirt and glasses and is standing in front of a brick wall.
AlzheimerGuiden retweeted
As the EU elections approach we need 🇪🇺 policymakers to prioritise dementia. Help us get their attention by signing our 📢 CALL TO ACTION
bit.ly/AECallToAction2024
European Working Group of People with Dementia #EWGPWD member Bernd Heise shares his thoughts on why #DementiaNeedsEU
AlzheimerGuiden retweeted
Eisai announced today that Leqembi® (brand name in China: “乐意保”, generic name: lecanemab-irmb) has been approved in China as a treatment for mild cognitive impairment (MCI) due to Alzheimer’s disease (AD) and mild AD dementia. bioarctic.se/en/leqembi-appr…
AlzheimerGuiden retweeted
En eftermiddag med minnet i fokus!
Gårdagens föreläsningar kring Alzheimers sjukdom finns tillgängliga på Lunds universitet youtube-kanal. Välkomna att ta del av dessa. @lunduniversity @MultiparkL @biofinder_study @OskarHansson9
#Alzheimer
youtube.com/live/a4LMl6nyJek…
AlzheimerGuiden retweeted
Are you interested in Alzheimer's disease and other dementias, with specific interest in genetics🧬?
Would you like to be part of a team that does cutting-edge research?
We have a post-doc (lu.varbi.com/en/what:job/job…) and a PhD (lu.varbi.com/what:job/jobID:…) position available!
AlzheimerGuiden retweeted
- The evening of the #diagnosis I was totally alone. It was the lowest I have ever been. It was so devestating. It takes your soul, it didn’t know what to do and how to tell my children.
Marguerite Keating talking strongly on the darkness and lack of support after the diagnosis AND how she fought back her negative toughts trough knowledge and the community of others @AlzheimerEurope @alzheimersocirl
Full room listening @EliLillyandCo symposium on Optimizing #Alzheimers disease #healthcare pathway #33AEC – at Helsinki, Finland
AlzheimerGuiden retweeted
”We are the poor disease but still #dementia is so costly for society
- we need funding!” @mason4233 from @AlzheimerEurope working group of people living with dementia
panel #33AEC on
#policy #healthcare #diagnosis #treatment #care #dementiaplan – at Helsinki, Finland
AlzheimerGuiden retweeted
WE ARE THE EXPERTS!
What ever you do in Life you have to listen to the experts!
Remeber the saying- ”Nothing about us - without us”!
GREAT speeches by @KevinQuaid3 and his fantastic fellow experts in @AlzheimerEurope working group of people living with dementia #33AEC Chair @mason4233
👏👏👏 – at Helsinki, Finland
AlzheimerGuiden retweeted
On my way to Helsinki, to @AlzheimerEurope Conference #33AEC. A very interesting program, I´m especially exited to listen to the European Working Group of People with Dementia in the session titled:
‘Transforming personal experiences into political advocacy and public involvement in dementia research’.
The session is planned, organized, and conducted by the group themselves. A testament to the fact that the old stigmatizing image of people with #dementia can be transformed into a perception where individuals are co-creators in healthcare, policies, research and innovation!
You can still register to watch the session online and listen to @KevinQuaid3, Věra Ryšavá, Nigel Hullah & Pia Knudsen:
alzheimer-europe.org/confere…
Listen to @enbraplats talking about the important work co-creating our guide together with patients!
#Alzheimer #knowledge #recentlydiagnosed
"Honored to have been part of @EU_Brain & @Hjarnfonden event "Rethinking Alzheimer’s disease".
I shared our journey creating the @AlzheimerGuide to underscore the importance of involving patients in developing #healthcare and the need for changing the image of living with #Alzheimer. Watch the event film youtu.be/qPvS3Hrd7aU
#PatientInvolvement #RedefiningAlzheimers #HealthcareInnovation"
Är du nyfiken på Alzheimerforskning från Lunds universitet och Region Skåne?
#Alzheimer #forskning
AlzheimerGuiden retweeted
Vi har återvänt till Nina Gunke, Mikael Eriksson och Stefan Eriksson - som alla drabbades tidigt av en demenssjukdom. Hur mår de idag - och har de fått det stöd som de behöver?
Se ”När jag inte längre minns dig - vad hände sen?” i SVT Play
svtplay.se/video/j36rgx1/upp…
Listen to the livestream #DefeatingDementia Afternoon theme: ”Persons with dementia matter” that includes video messages from people living with dementia
Panels about #tech #innovation and the challenge of the ageing society
defeating-dementia.com/
"Hope is becoming reality" and "it is time to step on the gas" @DrMariaALZ @alzassociation leading one of many interesting panels from #DefeatingDementia
Livestream defeating-dementia.com/
Learn about #diagnostics, #treaments and #prevention from a wide range of wise researchers and advocates like :
@MiiaKivipelto @CharlotteTeuni1 @BrusselsDC @PaolaBarbarino @AlzDisInt @AlzheimerAms @UKDRI @UNSW @Psych_Tech @ministerLZS @CharlesScerri @AlzheimerEurope
#alzheimer #EndAlz #dementia
AlzheimerGuiden retweeted
🎤 @enbraplats gives a very strong & inspiring speech on living with #Alzheimer’s in a daily life with a personal drive that stems from her father’s diagnosis of early-onset Alzheimer’s.
