Rare Disorder 1 in 20,000. Information & support for families, caregivers & service providers. Collaborate with international scientists to advance treatments.
Ireland
Joined July 2011
- Tweets1.1K
- Following401
- Followers1.1K
- Likes45
We are kindly beneficiaries of Saturdays gala ball. As a lot of our families are also supported by Jack & Jill all funds raised will be helping our children. Please support our fundraising goals which will be ensuring our participation in exciting... gofundme.com/6urdyao?pc=ot_c…
Gentle reminder - Sunday IAD family meet up in playground. Closest entrance is the one on Whitechurch road - parking etc. Main entrance takes you closer to Market, coffee shops.
All welcome 1-3. visitdublin.com/see-do/detai…
Hi can you take time to vote for Angelman uk film which the very talented lotti fox has made. A quick register to vote then scroll down charities to Angelman uk. That’s it. facebook.com/angelmansyndrom…
Delighted if we help support a great night where ASI will benefit as well. facebook.com/angelmansyndrom…
350,000 EURO FOR RESEARCH ON ANGELMAN SYNDROME
Call for Applications for Research Grants into Angelman Syndrome
Deadline 4th January 2019
Angelman Syndrome is a rare neurogenetic disorder, resulting from the loss of function of a single gene,... angelmanalliance.org/
For latest summary of alliance research kindly put together by Annette in more family friendly terms see web site - angleman.ie angleman.ie/
Best of luck to Annette Kent one of our board members - wishing you all sunshine. facebook.com/angelmansyndrom…
