The Angelman Rally

#TheAngelmanRally is a charity motorcycle event - London to Mt Etna. Raising #awareness for #AngelmanSyndrome & #fundraising for @AngelmanUK 🙃 Why? Read our website to find out 👇theangelmanrally.org. SPONSOR US HERE: justgiving.com/fundraising/a… via @JustGiving

Thankyou to #AngelmanUK for our certificate and everyone who donated, shared links, gave prizes for raffles and more. It was an epic adventure for Xavier, Dan and Graham & all the wonderful sponsors that helped to make it all possible. We raised £5.858.85 for @AngelmanUK

We didn't post yesterday as we supported Blackout Tuesday and educated ourselves with some of the posts being shared. It is not enough to not be racist. We are ANTI racist. Henri will be educated and we have reviewed some of the things he sees like books to make them more diverse

It wasn't right to post yesterday with everything going on in the world at the moment but yesterday was a year ago when the boys came back from #TheAngelmanRally and arrived at the Homecoming party at Elmbridge… instagram.com/p/CA9-xquBHNl/… – at West Molesey, South East

We are holding our little man close during this scary period. He has been in hospital twice since December with a chest infection. . Don't panic buy everything on the shelf and think about others who need stock. Wash your hands more frequently for 30 sec… ift.tt/3aSZooS

Looking for the weekend like..... 🔎👀 #TheAngelmanRally #AngelmanSyndrome #MountEtna #FlashBackFriday #Fbf ift.tt/2PPHXx6

Today is International Angelman Day 2020!! 💙💙 . We have been wearing blue today to raise awareness for #AngelmanSyndrome. 🙃💛 . We are looking forward to be attending the @angelmanuk #IAD2020 event at Burview Hall Elmbridge @mencap centre, tomorrow fr… ift.tt/2SudpTp

Today is International Angelman Day 2019!! 💙💙 We have been wearing blue today to raise awareness for #AngelmanSyndrome. 🙃💛 We are looking forward to be attending the angelmanuk #IAD2019 event at Burview Hall… instagram.com/p/B8mBmqhhffY/… – at West Molesey, South East

Happy Birthday to Stevie of @powerstationuk 30 today! Congratulations - its a big one! Thank you for all your help and involvement in TAR this year and we look forward to the next adventure! Have a great day and make sure you dont do a lot. :) . Xav x bit.ly/2XRFVOY

We are having time as a family at the moment after a busy period leading up to and during the rally . Thank you so much for your continued support . Xavier & Corinne bit.ly/2IuxK4Q

For us to be able to ride hundreds of miles over almost 3 weeks, we had to make sure our motorbikes were fully serviced and it top shape. This meant keeping our @motul_uk oil topped up too. This was fundamental in keeping our engines happy and making it… bit.ly/2XyPWAs

This picture couldn't be more perfect for many reasons . One being the pure joy in the faces of Henri and his dad Xavier when they see eachother for the first time in almost 3 weeks at The Angelman Rally Homecoming Fundraiser yesterday and two, it was th… bit.ly/2KteZBD

I just want to take a minute to tell you about and appreciate and beautiful work of my friend sophie. @sophieembroidery (Sophie Long Embroidery) . She hand embroided these three motorcycle patches to present to the riders of The Angelman Rally as a well … bit.ly/2KoqyKm

To say The Angelman Rally Homecoming Fundraiser was a huge success would be an understatement!! . Thank you very much for all the support leading up to the rally and the homecoming Fundraiser! The fundraising will not stop here.... . We have raised a mas… instagram.com/p/ByN9M6SBC4E/

Happy birthday to our little party elf, Graham Trood . 35 today and still looking 25! Thank you so much for your support over the rally and with Henri . He loves his uncle Graham . Xav #HappyBirthday #PartyElf #TheAngelmanRally #AngelmanSyndrome #Angelma… bit.ly/2KoIvrQ

The lovely Katt at @Lightinuptreas has kindly donated some bottle lights for the raffle on Sunday! . If you wanted a ticket and cannot make it on the day, the details on how to enter are here:… instagram.com/p/ByIJpmABuam/…

Introducing @sensorysparkle who have kindly donated not only a prize for The Angelman Rally Homecoming Fundraiser raffle but also a selection of light up, textured and noise making toys for their sensory room at Burview Hall Elmbridge Mencap!! @mencap . … bit.ly/2Kh16Gq

Introducing sensorysparkle who have kindly donated not only a prize for The Angelman Rally Homecoming Fundraiser raffle but also a selection of light up, textured and noise making toys for their sensory room at… instagram.com/p/ByH7SgLBtIb/…