Morning my office gets hundreds yes hundreds of letters for help with awareness this one somehow touched me its not asking for money but please add your signature to the petition. Let me introduce you to Brogan who has now lost 80-90% of her mobility. Her mental health is really struggling. Today I'm asking every single one of you to spare just 2 minutes for an incredible family who are fighting a battle no family should ever have to face. Karly and her amazing daughter, (pictured) Brogan, who is living with Friedreich's Ataxia (FA) – a rare, progressive and life-limiting condition that slowly takes away a person's independence. There is currently no cure. Imagine watching your child slowly lose the ability to walk, stand, write, eat, use their hands or do the everyday things most of us never even think about. Imagine knowing the condition will continue to progress while feeling powerless to stop it. No parent should have to watch that happen. Yet despite everything FA has thrown at her, Brogan continues to show incredible courage, determination and strength every single day. She refuses to let this condition define who she is, and Karly never stops fighting for her daughter and every other family affected by FA. Today, I'm hoping you can help them reach 100,000 signatures before 24th September. The treatment Skyclarys has already been approved in Ireland. Families here in the UK deserve the same hope. They deserve to know their voices have been heard. If Brogan was your daughter... Your sister... Your son... Your mum... Your dad... Or someone you loved... Wouldn't you hope strangers would take just 2 minutes to help? I'm asking everyone to stand with Karly, Brogan and every family living with Friedreich's Ataxia. Please sign the petition. Please share this post. Please ask your friends and family to do the same. Together, we can help turn 2 minutes into 100,000 voices that simply cannot be ignored. Thank you. petition.parliament.uk/petit… you sign the petition as time is running out and share on your page.