Leading the fight against autoimmune disease by collaborating to improve healthcare, advance research, and support the community.
Michigan
Joined August 2010
- Tweets8.1K
- Following1.5K
- Followers6K
- Likes2.3K
Autoimmune Association retweeted
Thanks to the Biden administration for dropping their appeal challenging a recent court ruling, which would improve access to medicines for people living with chronic conditions. We now urge the administration to enforce the court’s decision. Learn more: bit.ly/425OMij.
Autoimmune Association retweeted
Important recognition of patient issues & need to find bipartisan solution to rein in harmful #PBM practices, @RonWyden @MikeCrapo. @SenateFinance #PBM hearing
Autoimmune Association retweeted
Today’s @SenateFinance #PBM hearing from @KarenVanNuys: patients’ copays exceed the cost of drugs for 1 in 4 prescriptions in U.S. It’s time to rein in harmful #middlemen practices. #AllCopaysCount
Autoimmune Association retweeted
.@SenStabenow : “we should call them PBNs because they are Pretty Bad Negotiators” if they are supposed to be negotiating lower prices. #PBM hearing @SenateFinance
Autoimmune Association retweeted
Lobbying today to get my senators and representatives to join the Autoimmune Disease Caucus (or heck - even lead it!)! @AutoimmuneAssoc @SenatorSinema @SenMarkKelly @RubenGallego @RepRubenGallego ARIZONA 🌵 🤝 AUTOIMMUNE DISEASE RESEARCH
Autoimmune Association retweeted
Thank you @RepBera & @pragneya_sharma for meeting with me today during the @AutoimmuneAssoc Fly-In on the topics of starting an Autoimmune Congressional Caucus & supporting the Office of Autoimmune Disease Research (OADR).
I look forward to continuing this conversation!
ALT A screenshot with black background and two Zoom attendee squares. On the left is Representative Ami Bera sitting in front of the camera and his staffer Pragneya standing by his left shoulder in an office environment, both smiling. Both are wearing plain blazers. On the right is me smiling widely in a home environment. I'm wearing glasses, a bowtie and fancy shiny blazer.
Autoimmune Association retweeted
✅We’re lifting the curtain on PBM middlemen who are raising drug costs for Americans.
Today, @SenatorCantwell & @ChuckGrassley’s PBM Transparency Act to prohibit unfair or deceptive practices passed Committee.
Next stop ➡️Senate floor
Autoimmune Association retweeted
Did you know Inspire recently launched a new partnership with @AutoimmuneAssoc, the 🌎 leading #autoimmune disease research, advocacy, awareness & education organization?
🙌 We're so excited about this partnership. Learn more here & joy us on Inspire! ow.ly/mOAj50NhU69
Autoimmune Association retweeted
March is #AutoimmuneAwarenessMonth! In our new guest blog, @AutoimmuneAssoc discusses Autoimmune disease symptoms, diagnosis, and treatment. Click below for the full blog. bit.ly/3l3GpTn
Autoimmune Association retweeted
Recently, the Caucus issued a letter to the Governor in support of S.5299A / A.1741A, which would prohibit health insurance plans from implementing “copay accumulator” policies. We know that #AllCopaysCount, and it is time to codify that message into law.
Autoimmune Association retweeted
Quardricos Driskell of @AutoimmuneAssoc explains that it is important that advocates engage CMS and the FTC and get involved in the rule making process. #Biologics22 @q_driskell4
Autoimmune Association retweeted
June is Myasthenia Gravis Awareness Month! MG is a neuromuscular disorder that causes weakness of voluntary muscles. Check out our website to find ways that you can start turning MG awareness into action today: myasthenia.org/Make-an-Impac…
Autoimmune Association retweeted
As we look forward to #DDW2022, remember the LMDD #PatientPrinciples and calls to action: Empower provider decision-making, protect access to treatment, empower patients. Learn more at letmydoctorsdecide.org.
Autoimmune Association retweeted
Tuesday, May 10th is #WorldLupusDay, and there are 5 MILLION people living with #lupus, a disease that is difficult to diagnose and a challenge to treat. Please help #MakeLupusVisible by sharing this post and learning more at worldlupusday.org
Autoimmune Association retweeted
Lupus is a leading cause of kidney disease, stroke and premature cardiovascular disease in young women and is highly individualized, extremely volatile, debilitating, life-diminishing, and potentially fatal.
#LupusAwarenessMonth #Lupus #LupusNephritis @Lupus_Chat @CreakyJoints
Autoimmune Association retweeted
Get ready to promote #LupusAwarenessMonth in May by sharing @LADAorg’s #DidYouKnow facts about #lupus and lupus research to increase public awareness and understanding about this #autoimmune disorder and its impacts.
@CreakyJoints @Lupus_Chat @IFAiArthritis @AutoimmuneAssoc
Autoimmune Association retweeted
March has ended but that doesn’t mean that awareness for #autoimmunedisease can stop! There is still a lot of #research, #education, and #advocacy needed and we are committed to improving the lives for the 40 million women in the US and Canada living with an autoimmune condition.
Thank you to everyone who shared their story, raised awareness, or donated to the Autoimmune Association in honor of #AutoimmuneAwarenessMonth, including our partners at the National Coalition of Autoimmune Patient Groups who raised awareness in collaboration.
Autoimmune Association retweeted
April is Sjögren's Awareness month. Symptoms of SS include extreme dryness, trouble swallowing and chronic fatigue. Researchers believe if you have #celiac, you have a small but increased risk of developing Sjögren's.
Learn more from @SjogrensOrg or at hubs.li/Q017dJbZ0
ALT A woman rubbing her eyes. Words read, "Related conditions Sjögren's syndrome."
Autoimmune Association retweeted
Our #PatientEngagementSummit is coming up on April 6th & it's going to be *fantastic*
- Spotlight on "Patient Perspectives"
- 26 partner organizations
- Dynamite panels, patient voice on every one
More here: bit.ly/NewYorkBIO_PatientEng…
CC @JennHawksBland @MaryBartlett723
