Prolonged Disorders of Consciousness (Vegetative/MCS) patients. Research https://teapawt.net/t.co/JvRaZIypYB. Resource for Families: https://teapawt.net/t.co/8oEb7wEZCC
Cardiff University, Wales, UK
Joined June 2015
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“I miss him every day, but Michael is here”.
Schumacher’s family don’t discuss his condition publicly, but this comment from his wife will resonates powerfully for many families of loved ones with catastrophic brain injuries.
telegraph.co.uk/formula-1/20…
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Townsend v Epsom judgment.
Summary of expert workshop addressing implications for legal proceedings, healthcare organisations & clinical practice, families, patients & professional guidelines.
gtc.ox.ac.uk/wp-content/uplo…
Deprivation liberty safeguards for PDoC patients, & those who emerge with profound impairments
How has DoLS worked?
What’ll happen post the Supreme Court judgment in #AGNI?
A personal reflection to inform practice - #DoLS
My blog @OpenJusticeCoP explores what ‘Liberty’ meant to my sister Polly;
how #DoLS worked & what #AGNI might mean for her future (objection & ‘valid consent’).
First time I’ve written much re. what’s happened 17 yrs since her crash.
Comments v. welcome
openjusticecourtofprotection…
Interdisciplinary rehabilitation in prolonged disorders of consciousness
nrtimes.co.uk/two-journeys-o…
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Deprivation of Liberty Safeguards -
Supreme Court judgment: if ‘catatonic’ eg due to severe brain injury - “they do not have any bodily, physical liberty to exercise…it cannot sensibly be said that anyone is subjecting them to treatment which constitutes a "deprivation"…(1/2)
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Deprivation of Liberty needs to involve “element of coercion or externally imposed restrictions…& a person who is so profoundly disabled they are unable to conceptualise or physically achieve freedom is not in fact being deprived of anything.” - Discuss!
dacbeachcroft.com/en/What-we…
A depressing case exposing delay in best interests decisions about ongoing life-sustaining treatment; but good to see the judge highlight concerns & that the judgment will be sent to the Secretary of State for Health + Chief Executive of NHS England.
bailii.org/ew/cases/EWCOP/20…
This looks like a very useful webinar on Wednesday - “Attorneys, deputies and decision-making” Tickets, Wednesday, April 15 • 12:30 PM - 1:30 PM GMT+1 | Eventbrite eventbrite.co.uk/e/attorneys…
Recovery from vegetative’ and minimally conscious states.
Part of our resource for families about Prolonged Disorders of Consciousness
healthtalk.org/experiences/f…
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“Contested Decision-making about Life-sustaining Treatment for adults after catastrophic brain injury”
Public lecture at @UniofOxford by Prof Lynne Turner-Stokes. 19th March, 5.45pm
Further info + Register for online link, or to reserve a seat in person:
gtc.ox.ac.uk/news-and-events…
Lots of interesting sessions at the Naidex event in Birmingham in March naidex.co.uk/agenda#/seminar…
ALT Talk title: “understanding and managing behaviours that challenge”
ALT Title of talk: “End of life care: supporting people with advancing frailty & dementia “
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This looks interesting at the naidex event in Birmingham in March
Navigating NICE: A Conversation with
‘Neuro Guidance for Rehabilitation for Chronic Disorders in Brain Injury’
Committee.
naidex.co.uk/agenda-2026#/se…
ALT Title of talk : ‘Navigating Nice: neuro guidance for rehabilitation for chronic disorders of consciousness’
Making decisions for people with Prolonged Disorders of Consciousness.
One of the sessions at Birmingham conference in March
naidex.co.uk/agenda-2026#/se…
ALT Title of talk & images of presenters - Jenny Kitzinger & Teresa Clark
Health & Welfare Deputy or Attorney for a PDoC patient?
Deputies & LPAs should be informed, consulted & asked for consent for relevant medical treatments
- the law underlined in this recent court case
What’s your experience?
openjusticecourtofprotection…
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“According to them (patients family) if the medical treatment is not making any difference, then there is no point in continuing with such medical treatment and making Harish suffer for no good reason,”
Important legal case in India thehindu.com/news/national/s…
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Parents’ care for their vegetative son - & petitioning of the courts in India to discontinue life-prolonging treatment @TheWeekLive theweek.in/theweek/current/2…
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“Early decompressive craniectomy may be effective in the treatment of refractory intracranial hypertension after traumatic brain injury”
academia.edu/26920346/Early_…
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New paper from @rhnuk& @ucl
team:
“Assessing functional communication in patients emerging from a disorder of consciousness” Found “task influences accuracy of responses in assessing return of consciousness” - highlights advantage of colours over objects
journals.sagepub.com/doi/10.…
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Irish High court judgment -
“while Katie’s carers have kept her body in good condition, the 24-hour nursing care, the invasive feeding & other treatment are an interference with her rights to privacy, dignity, autonomy and bodily integrity.” irishtimes.com/news/crime-an…
“The case of the 32-year-old man who has remained in a vegetative state for 13 years is no longer only a medical tragedy. It is now a legal & ethical watershed ….”
The Supreme Court of India direction reported by @thetribunechd - tribuneindia.com/news/premiu…
