@CFF_AZChapter

The Arizona Chapter is helping to advance @CF_Foundation's mission to find a cure for every person with cystic fibrosis.

 Phoenix, Arizona
arizona.cff.org
Joined April 2013
  • Tweets1K
  • Following272
  • Followers426
631Media
Thank you to everyone who joined us in celebrating #CFAwarenessMonth! We appreciate all of you for sharing your stories and helping us raise CF awareness all month long. Together, we can make CF stand for Cure Found.
A text graphic reads, "Together we are resilient. May is Cystic Fibrosis Awareness Month."

ALT A text graphic reads, "Together we are resilient. May is Cystic Fibrosis Awareness Month."

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"Although the school was initially challenged by Silas' needs, we believe that our determination to get Silas what he really needed while in school will benefit both Silas and students with special needs in the future.” on.cff.org/3EibzMN
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#ROSEUPCF registration is OPEN! How will you use your hobby or passion to help us move closer to a cure for everyone with cystic fibrosis? Sign up today to start fundraising and raising awareness: on.cff.org/3KxgWv0
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Pulmonary exacerbations are common in people with cystic fibrosis. From 2018 to 2022, there was a decrease in children and adults who were treated with intravenous (IV) antibiotics. Explore more trends in the Patient Registry Highlights Handout: on.cff.org/PatientRegistryHi…
A graphic shows exacerbations for 2018 in comparison to 2022 for children and adults with cystic fibrosis. In 2018, 43% of adults with CF had an exacerbation, compared to 15% in 2022. In 2018, 23% of children with CF had an exacerbation, compared to 10% in 2022.

ALT A graphic shows exacerbations for 2018 in comparison to 2022 for children and adults with cystic fibrosis. In 2018, 43% of adults with CF had an exacerbation, compared to 15% in 2022. In 2018, 23% of children with CF had an exacerbation, compared to 10% in 2022.

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Thinking about participating in a clinical trial? Ask as many questions as you need to understand the study purpose, potential risks and benefits, and other logistics. If you’re not sure what to ask, check out our suggestions: on.cff.org/3rKiKdq
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We have a plan. Do you? An emergency or natural disaster can happen at any time. Our disaster and emergency preparedness plan has tips for before, during, and after. on.cff.org/44hwn26
A dark-skinned man places medications into pill organizers.

ALT A dark-skinned man places medications into pill organizers.

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Every person with cystic fibrosis experiences the disease differently from the next person. We’re highlighting three creators who are sharing their unique experiences through their works. on.cff.org/42xz6CO
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Despite challenging treatments, numerous hospitalizations, and losing both his brothers to cystic fibrosis, Anthony Weiss, 58, pursues life to the fullest. On 65 Roses Day, you can help people with CF through medical advancements. Make your gift today: on.cff.org/65-Roses-Day-2023
On the left is an old, black-and-white image of Anthony, age 16 months. On the right is Anthony, 58, next to his wife standing outside on the beach. Text on the bottom reads, "Give today and help us end CF. 65 Roses Club."

ALT On the left is an old, black-and-white image of Anthony, age 16 months. On the right is Anthony, 58, next to his wife standing outside on the beach. Text on the bottom reads, "Give today and help us end CF. 65 Roses Club."

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Gerry Sweeney's daughter, Lauren, didn't know that having a lung transplant would greatly increase her risk for cancer until it was too late. Today, Gerry shares the importance of self-advocacy and knowing your potential post-transplant health risks. on.cff.org/3owwNCl
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A CF Foundation Grampion is a “grandperson” who is passionate about helping people with cystic fibrosis live their best life. Join a growing community of supporters of loved ones with CF to share, learn, and support each other. on.cff.org/3Wtvkcw
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We are providing up to $3.9M to TB Alliance to conduct lab testing of a compound that could eventually be used to treat infections caused by nontuberculous mycobacteria in people with #cysticfibrosis. #CFResearch on.cff.org/3OeEyap
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Patti Prince, an adult with cystic fibrosis, had double-lung and liver transplants 16 years ago. She shares what she’s learned about maintaining her health post-transplant. on.cff.org/3zCFkFE
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Your impact has led to more than 40 therapies in the drug development pipeline, 35 major industry research programs focused on early-stage genetic therapies, and 12 treatments. But we’re not finished yet. Kickstart your fundraising today: on.cff.org/ActivationWeek-20…
Graphic reads, "Every dollar raised today will help drive research forward, accelerate innovative care, and advance current therapies so that every person with CF will have a treatment -- and ultimately -- a cure."

ALT Graphic reads, "Every dollar raised today will help drive research forward, accelerate innovative care, and advance current therapies so that every person with CF will have a treatment -- and ultimately -- a cure."

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Last week, we joined more than 230 organizations in urging Congress to reintroduce the PASTEUR Act and pass the bill without delay. This #SquashSuperbugs Day, let's make the AMR crisis personal and stop another pandemic before it starts. #CFAdvocacy on.cff.org/PASTEUR-Act-Lette…
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We are investing up to $2M in Nanite Inc. to explore a new way to deliver genetic therapies into the lungs of people with #cysticfibrosis. Polymer nanoparticles could potentially be safer and may be more versatile and stable than other delivery methods. on.cff.org/3yYhV1b
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More than 2.8 million people get an antibiotic-resistant infection in the U.S. each year. People with #cysticfibrosis face an increased risk for difficult-to-treat infections. We need new antibiotics now, and we’re asking Congress to help. #CFAdvocacy
A large group of adults of mixed ages and ethnicities stand together and smile for a group photo.

ALT A large group of adults of mixed ages and ethnicities stand together and smile for a group photo.

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This year, we are advocating in support of the #HELPCopays Act during the Foundation’s Online Day of Action to help lower out-of-pocket costs for people living with CF. Help us advocate: act.cff.org/tYteTfQ

Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

act.cff.org
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Don't forget to RSVP for this years Annual Meeting! afasignup.formstack.com/form…
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Join Tomorrow’s Leaders, the Foundation’s young professional program for ages 21–40, to connect, learn, and advocate with others while making a difference in the lives of those with #cysticfibrosis. on.cff.org/Tomorrows-Leaders

Tomorrow's Leaders

Tomorrow's Leaders is a community of young professionals who come together to make a difference for people with cystic fibrosis. Through fundraising and volunteering, members make lasting connectio...

cff.org
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Drumroll please for our 2023 national ambassadors... Elizabeth (Elle) Kellner from CF Foundation - Southeast Florida Chapter and Cru Aguinaga from @CFF_NorthTexas! Together, our ambassadors will motivate their communities to participate in events and help raise #CFAwareness.
A medium-skinned woman smiles at the camera while holding four clear balloons up in the air.

ALT A medium-skinned woman smiles at the camera while holding four clear balloons up in the air.

A medium-skinned boy smiles at the camera while standing outside for a photo.

ALT A medium-skinned boy smiles at the camera while standing outside for a photo.

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