The Cystic Fibrosis Foundation Washington/Alaska Chapter is helping to advance @CF_Foundation’s mission to find a cure for every person with cystic fibrosis.
Seattle, Washington
Joined April 2013
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CFF Washington/Alaska retweeted
The FDA approved Trikafta 5 years ago today. No words can capture the gratitude we have. Bobby is taller, heavier, healthier, happier and most importantly - living, a wonderful life. A big thank you to so many of you out there who worked so hard to make this a reality!
CFF Washington/Alaska retweeted
In recognition of the fifth anniversary of Trikafta’s approval, we’re sharing five stories from the CF Community Blog that reflect the community’s emotions and experiences taking the treatment.
CFF Washington/Alaska retweeted
Now’s your chance to be a part of hot dog history!
Score a @HemplersFoods Hot Dogs from Heaven T-shirt with this exclusive offer on Aug. 23. Plus, a select group will have the opportunity to participate in that night’s toss!
🌭 Mariners.com/HotDogs 🌭
CFF Washington/Alaska retweeted
Excited to share an inside look at one of the best stories in medicine 💪💪
Being the face of cystic fibrosis - Gunnar Esiason, son of former NFL star Boomer Esiason, has defied all odds.
Catch part of the journey tomorrow morning on @SportsCenter – with the full Esiason family story coming to @E60 later this year.
CFF Washington/Alaska retweeted
Teaching @seattlechildren Pediatric trainees on newborn screening and disparities in cystic fibrosis!
CFF Washington/Alaska retweeted
For people with #cysticfibrosis, new, innovative #antibiotic options are critical for fighting difficult-to-treat infections so common in the disease. Passing the #PASTEUR Act can help propel that innovation forward. #CFAdvocacy
There is a pressing need for new, innovative #antimicrobials, WHO warns. who.int/news/item/14-06-2024…
CFF Washington/Alaska retweeted
Teen advocates from across the country are coming together to join us for our 16th annual Teen Advocacy Day! #CFAdvocacy
CFF Washington/Alaska retweeted
For those who don't know, "65 Roses" is a term children w/CF use to pronounce their disease, as it’s easier to say. #65 holds a significant place in my heart. I will continue to rep it for everyone battling cystic fibrosis. #65roses #cysticfibrosis @CF_Foundation @CFF_Washington
CFF Washington/Alaska retweeted
Breathtaking shot of #Eclipse2024 from our campus here in Seattle, Washington.
🌕 🌖 🌗 🌘 🌑 🌒 🌓 🌔 🌕
CFF Washington/Alaska retweeted
Even from a distance. 🌸 I am stunning from all directions.
📷 : UW Photo / Mark Stone
CFF Washington/Alaska retweeted
Our Cherry Blossoms' peak bloom yesterday just happened to coincide with the first day of Spring.
🌸💜💛
CFF Washington/Alaska retweeted
Hundreds of advocates from the cystic fibrosis community are in Washington, D.C. today to ask their members of Congress to take action on two critically important issues for people with CF! Share your support by reposting this to help spread the word. #CFAdvocacy
ALT A large group of adults wearing business attire pose together for a group photo.
CFF Washington/Alaska retweeted
Right now they're just budding, but the cherry trees that line the Quad at the University of Washington here in Seattle are set to reach peak bloom after March 20 according to our campus arborist.
Don't know about you, but we can't wait.🌸--bit.ly/3VldnxU
ALT Wide aerial shot of the UW Quad with Cherry Blossoms in bloom directly below, sautrating the green grass with pink blossoms.
CFF Washington/Alaska retweeted
Just a tremendous profile of Jenny Livingston and the “now what?” CF patients faced after starting Trikafta in @TheAtlantic today.
The Cystic-Fibrosis Breakthrough That Changed Everything theatlantic.com/magazine/arc…
CFF Washington/Alaska retweeted
Happy #InternationalWomensDay! Today we want to introduce you to Terri Laguna, MD, MSCS, who is not only the fierce leader of the ATS PEDS Assembly, but also a master of the plank pose!👋
Thank you Terri for your incredible contributions to the ATS over the last 20+ years and your commitment to fostering diversity, equity and inclusion in all of the communities you touch. @terrilaguna
CFF Washington/Alaska retweeted
On International Women’s Day, we recognize women who have helped us achieve tremendous progress in search of a cure for cystic fibrosis. Together, we can make CF stand for Cure Found. #InternationalWomensDay
ALT A light-skinned woman wearing PPE high-fives a school-aged girl.
ALT Two medium-skinned women wearing lab coats work in a lab.
ALT A light-skinned woman stands in front of a car and smiles for the camera.
ALT A light-skinned woman flexes her bicep and smiles for the camera.
CFF Washington/Alaska retweeted
We have invested more than $6.6 million in additional funding in Sionna Therapeutics to continue research into the development of potential new modulator therapies for people with #cysticfibrosis with an F508del mutation.
CFF Washington/Alaska retweeted
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
CFF Washington/Alaska retweeted
@CF_Foundation wants to hear from care teams, people with CF, and caregivers to help us understand the financial issues and costs of life with CF. It takes about 15 minutes. Click here to complete the Cost of Care Survey: cff.qualtrics.com/jfe/form/S…