CVC is dedicated to improving the lives of people with chronic illness—our programs include disability and travel assistance, and health insurance counseling.
Richmond, VA
Joined September 2011
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CaringVoiceCoalition retweeted
A great piece on Huntington's disease in the Observer. Includes an interview with Prof Sarah Tabrizi, HD Centre Director. theguardian.com/science/2019…
CaringVoiceCoalition retweeted
Still looking for ways to get involved in Rare Disease Day this year? Check out all the different things you can do to be a part of the campaign>> rarediseaseday.org/article/g…
#RareDiseaseDay #ShowYourRare
CaringVoiceCoalition retweeted
"Modest Needs provides small, no-strings-attached, #financialgrants for short-term immediate crisis situations for working #families": buff.ly/2HAtyhE @CVCinc #HealthCareForAll #chronicillness #medical
CaringVoiceCoalition retweeted
#HDWorkoutTips with #ShanaVerstegen. For more info about #HuntingtonsDisease & the #HDSAFamily please visit HDSA.org
📺youtube.com/watch?v=goA-WZZK…
#WednesdayWorkout #LetsTalkAboutHD @shanamartin
CaringVoiceCoalition retweeted
From $1,500 toenail cream to a $109,000 heart-attack bill, relive these medical billing horror stories in our KHN/@NPR #BIlloftheMonth club. khn.org/ODkzNDA3
CaringVoiceCoalition retweeted
It's the #FirstDayofWinter and the #WinterSolstice! Listen to Dr. Samer Hattar, chief of the Section on Light and Circadian Rhythms at NIMH, on @NPR's Morning Edition. He discusses the results of a study that may explain how light exposure influences mood. n.pr/2Gxd52w
CaringVoiceCoalition retweeted
It’s a scam if someone says you’ll get an “early bird discount” or “limited time offer” for enrolling in a plan during #MedicareOE. Learn more about #Medicare fraud at go.cms.gov/2AAmTnn.
ALT Illustration of fish hooks with text “Special offer? Don’t take the bait. Medicare Open Enrollment Oct. 15 – Dec. 7 | https://go.cms.gov/2AxrCpM”
CaringVoiceCoalition retweeted
Jeff Carroll describes his decision to do PGD as a way to prevent passing on the HD mutation. For more on PGD en.hdyo.org/you/articles/45#… and how it works you can check out our resource...... technologyreview.com/s/61228…
CaringVoiceCoalition retweeted
Join NORD's Grassroots Advocacy Manager, Rose Avellino, for a FB Live discussion on #RareDisease on @TheMightySite. We're looking forward to talking about all things advocacy! Join us to learn more abt @RareAction, how to get involved, & some upcoming opps. Monday 9/10 at 1pm ET
CaringVoiceCoalition retweeted
Great piece with our board member, @Srotberg15 ! Thanks for highlighting Seth and the HD Community, @CVCinc ! – at Deerfield Beach, FL
A Huntington's disease advocate is asking: How can we better support the young adults who are impacted by a rare disease or chronic condition? caringvoice.org/qa-supportin…
CaringVoiceCoalition retweeted
It's #NationalWomensHealthWeek! #Heartdisease affects everyone - shoutout to all women with familial hypercholesterolemia (FH), inspiring everyone and helping to change the tide against FH! #KnowFH #MotivationMonday
CaringVoiceCoalition retweeted
We hope you will find some helpful hints in this article by .@CVCinc bit.ly/2u4Wv3J
CaringVoiceCoalition retweeted
Where to Turn Without @CVCinc Financial Grants:
caringvoice.org/turn-without…
#HuntingtonsDisease
#HDSAFamily
#HDSA50
CaringVoiceCoalition retweeted
We currently have 50 countries hosting #RareDiseaseDay events. Check out the map to see if your country is participating and add your event now! rarediseaseday.org/events/wo…
CaringVoiceCoalition retweeted
The official #RareDiseaseDay poster for 2018 is here. Share it, download it and let’s create awareness together. #RareDiseaseDay2018 #rarediseases #careforrare teapawt.net/rarediseaseday/status/…
BREAKING NEWS! The official #RareDiseaseDay 2018 poster is out now! Share with your friends and let's spread the word about Rare Disease Day 2018 Download the poster from rarediseaseday.org/downloads
CaringVoiceCoalition retweeted
This time of year more than any, sometimes we need a little help. Here are some good resources from .@CVCinc bit.ly/2E7Xx04
CaringVoiceCoalition retweeted
Our nonprofit of the day is Caring Voice Coalition. @CVCinc is dedicated to building relationships with charitable organizations founded to help individuals and families affected by serious chronic disorders and diseases. To make a difference, donate! givin.ga/2AbKwzS
CaringVoiceCoalition retweeted
@CVCinc Thank you for supporting our community! #PTEN #PHTS #RareDisease #Hope caringvoice.org/diseases/pte…