Cancer survivor, Exec Team of CANCER VOICES SA. Volunteer advocates 'RAISING A VOICE for those affected by CANCER' in South Australia.
Adelaide, South Australia
Joined July 2009
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Rewarding to see results at #PC4Symp2019 of studies we (PC4 Consumer Advisory Group) reviewed first as concepts. Consumer involvement embedded in all @PC4TG activities. bit.ly/2DtVvJq #10yearsPC4
I'm supporting @PC4TG’s Twitter this week by promoting their 10th anniversary & encourage you to register for the Scientific Symposium on 4 April bit.ly/2DtVvJq #PC4Symp2019 #10yearsPC4 @CancerVoicesAu @CVSAinfo
A problem that needs to be fixed - why should 'who calls it out' or what form it arrives on (incident, complaint) alter the priority or manner of addressing a S&Q issue?
When a health professional flags up a problem, it is called an incident report. When a patient does the same, it is called a complaint. How language affects safety culture: blogs.bmj.com/bmj/2019/02/05… @patientlibrary #patientexperience
Personal stories spread awareness, understanding, information and emotional connection.
#CancerBookClub discusses this still-important book about facing cancer with lifestyle. Catch the replay: Anti-Cancer a New Way of Life by David Servan Schrieber: bit.ly/2eiq9qU
Co-design in research - it takes time to build mutual understanding and skills. Being a 'research rep' is not everyones 'cup of tea'. Competing demands on our volunteer, wellness & illness timeframes don't always match a research deadline.
We had a fabulous seminar on engaging consumers in research today. Thanks Alex @sahmriAU and Julie @CVSA_Jules @CVSAinfo for sharing your knowledge and insights. It's a 2-way relationship; keep it real; communication is key; discover new insights!
Exercise shown to reduce numbers of circulating tumor cells in patients with colon cancer dana-farber.org/newsroom/new…
Cancer Voices Challenge Ride, Sunday 26 Oct, new event on Adelaide Cyclists j.mp/YCBsQz
Julie Marker retweeted
New and cheaper cancer drugs listed on PBS. Thanks fellow Australians! health.gov.au/internet/minis…
Colorectal Cancer: How Emerging Molecular Understanding Affects Treatment Decisions | Cancer Network | @scoopit sco.lt/8R4zL7
Sit less, move more: why Australia doubled its exercise guidelines | @scoopit via @abcnews sco.lt/86cFkH
Patients need to have control over their own information if care.data is to work | @scoopit via @rohal sco.lt/6Ee8NF
Julie Marker retweeted
New Ruling Means Patients Can Access Their Own Lab Results medscape.com/viewarticle/820…
Finally, wish I could view my PET/CTscans too. #cancer
Julie Marker retweeted
New report on End of Life care in SA hpcsa.com.au/reports?utm_sou…
Julie Marker retweeted
Fascinating stuff from Eric Browne @healthbase_info #PCEHR data quality and safety revisited. blog.healthbase.info/?p=360
