blood doctor finding new treatments for #Thalassemia #SickleCell #PKdeficiency #HS #HE/#HPP #CDA #G6PD, @SHNcares, @UofT_DoM @ihpmeuoft Tweets are my own

Joined July 2011
📣We are pleased to announce that RADeep will participate in the 67th #ASH Annual Meeting and Exposition! ✅This year, we will present four key contributions focused on real-world data, outcome research in hemoglobinopathies, and Europe-wide data standardization efforts.
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📍​Dr. María del Mar Mañú Pereira (RADeep Coordinator and Scientific Coordinator of the @ERNEuroBloodNet & #ENROL) presented “Towards ethical AI in Rare Diseases: data quality and clinical validation for real equity” at the XXXI National Congress on Health Law in Madrid, Spain.
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🎤​Anna Collado Gimbert (@vallhebron) presented “Sickle cell disease in europe: A cross-border real-world data analysis from the radeep registry” at #ASH25! ​🔗Find out more: ​meetings-api.hematology.org/… #ASH25 #RADeep #Hematology #Research #Innovation #Healthcare
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New #EHAUnplugged episode available now - Revolutionizing Patient Registries to Promote Research and Improve Health Outcomes.  Tune in to hear Dr. Maria del Mar Mañu Pereira talk about the ERN-EuroBloodNet initiative Rare Anemia Disorders European Epidemiological Platform (RADeep). RADeep brings together new and already existing European patients' registries in rare anemia disorders to foster research and optimal care for RAD patients. Listen now on EHA Unplugged. Listen now on Spotify, Apple Podcasts, YouTube, and major podcast platforms: tr.ee/xutwXJaKYf #hematologypodcast #patientregistries #EuroBloodNet
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Happy Nursing Week to all of my nursing colleagues! Nurses have played an important role in my development as a physician (esp the endo nurses @UnityHealthTO) But I wanted to highlight one of the most incredible nurses I've ever worked with. Glyn Boatswain, CNE & EVP @SHNcares
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🔷SUMMER OF VIBES 2025🔷 Looking for a summer studentship in Scarborough? Paid AI studentship at SHNRI Work on real-world healthcare innovation using vibe coding. Undergrad/grad students 1/ LIKE 2/ RT 3/ then apply here: forms.gle/9q8sXwtwEgHtDzH16 #SummerOfVibes #SHNRISE
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We presented today at #ASH2024 the uRADAR initiative, under the scope of the RADeep Registry, in ultra rare anemia disorders for promoting clinical research @ERNEuroBloodNet @ERDERA_org
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With @TheThanigasalam a tremendous supporter of @SHNcares and a crown jewel representative for the people of Scarborough. Together with @SHNFoundation we are building a new medical academy, a research institute, a new tower, a new ER and a new rads suite. @SuratiSweetMart
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The Ontario government is shutting the Science Centre today citing an engineer’s report – which does *not* say the place must close or that all work is urgent. What a betrayal.
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Kevin Kuo retweeted
Join us for our Post-EHA 2024 #Betathalassemia Highlights 📣🩸 🌟 Chair: Maria Domenica Cappellini 💬 Moderators: Kevin Kuo & Perla Eleftheriou Featuring presentations & panel discussions on selected abstracts from #EHA 2024 🔦 REGISTER 👉 us06web.zoom.us/webinar/regi…
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Move over mitochondria, a new organelle called the nitroplast is here. In a new Science study, researchers report that a nitrogen-fixing organelle has been identified in a marine alga. Learn more ⬇️ 📄: scim.ag/6FL #SciencePerspective: scim.ag/6FM
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Exciting news to share…we wrote a book! A 📕 for kids about #sicklecell! A 📘 you want to share w/ teachers, neighbors, friends. A 📗 you want to read w/ your kid bc it’s important for them to know more about a disease that affects so many in our 🌎. a.co/d/iX3cAFG
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Kevin Kuo retweeted
Maria Domenica Cappellini (@LaStatale) & Kevin Kuo (@UHN) had a lovely discussion earlier today at #ASH23 on the most exciting updates in #thalassemia, including the BEYOND/BELIEVE trials, gene therapy & more! We're so excited to share our content with you 🎥 @ASH_hematology
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Congratulations! You’re now watching the FALLOUT teaser trailer. Arriving April 12 on @primevideo.
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The Canadian sickle cell community continues to report poor care in hospitals. Be at #SCAGOSummit2023 to be a part of the dialogue with Ontario hospitals on the quality of care provided to people with #sicklecelldisease in Ontario. Register to attend: sicklecellanemia.ca/summit-2…
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Kevin Kuo retweeted
ChatGPT use shows that the grant-application system is broken go.nature.com/3rVYO7J
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Wouldn’t want to have missed your debate with at #canhaem2023 though – at International Falls, MN
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Kevin Kuo retweeted
Thalassemia Syndromes Fast Facts’ hardcopy prints are now out. Translations in Spanish, Italian, and Arabic coming soon.@drKMusallam #thalassemia
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