TheRealCathyS

Who says @HarrisMary94551 can’t be needlessly ugly and cruel? No AI slop involved. 🤖 @SarahNauser is kind and beautiful. Everyone knows.

For those who have asked around… You may not know someone’s name, work, or community. That does not mean they are not making a difference. Nor does it mean they are standing alone. Let us show greater respect. The ALS community has space for everyone, especially those with lived experience and those who have walked the walk. Be kind. The time is now. @tonyheyl @alsnewstoday @alsassociation @ALSdotCommunity @Ml1969 @aVoice4ALS @NEALSConsortium @JC75408607 #DayThree🌻

If you have not already connected, ALS.Community is here for you. We have created a free, patient-led space where people with ALS, caregivers, and families can connect, share, and support one another. We are just getting started. Join us, because no one should ever have to face ALS alone. 👇 prnewswire.com/news-releases… @ALSdotCommunity @PhiladelphiaUnq @USATODAY @JC75408607 @Ml1969 @nytimes @latimes @alsnewstoday @statnews @adamfeuerstein @BostonGlobe @detroitnews @health 🌻

With ALS, there are no borders—no walls, tariffs, or divisions. The only fight we face is the fight for a cure. ALS knows no nationality, political affiliation, or passport. It affects families on every side of every border. If we can come together around one issue, let’s find common ground in the fight against ALS and unite around what matters most: a cure. Let hope bring us together. May the six degrees of ALS touch no one else. @MichaelWheelson @Ml1969 @alsnewstoday @alsadvocacy @MJMcKean @JC75408607 @AntiTrumpCanada @NIH @USATODAY @ALSdotCommunity ✌️🌻

How did Dr. Bedlack get to ALS? Did the finches lead the way? There’s a story behind those finches, and you won’t want to miss it! Join us at ALS.Community on October 14 at 2 PM Central / 3 PM Eastern to find out what led Dr. Rick Bedlack to ALS and the journey that followed. When finches appear - hope is near. 🌻 app.als.community/share/B8ow… @nytimes @AaronLazar @AP @statnews @alsnewstoday @JC75408607 @aVoice4ALS @Ml1969 @lindseyvonn 🌻 @alsdotcommunity @Duke_Neurology

What does being an ALS advocate mean to me? For me, this journey is deeply personal. After losing my husband, Fred, to ALS in 2016, advocacy became more than a cause—it became a promise to keep fighting until we find a cure. Along the way, I’ve learned that advocacy means much more than raising awareness or supporting an organization. It means showing up for one another, honoring the lives of those we’ve lost, and ensuring that people living with ALS and their families never feel forgotten or alone. I believe everyone has something meaningful to give. Whether it’s our time, experiences, compassion, or simply being there when someone needs us, every act of kindness matters. When we support one another and the organizations working so hard for our community, we become part of something bigger than ourselves. I carry Fred’s memory with me in everything I do. I hope that, through our shared efforts, we can bring comfort to families facing ALS today and hope to those who may face it tomorrow. Join us at @alsdotcommunity—because no one facing #ALS ever has to be isolated and alone. Join us. 👇 @AP @statnews @alsnewstoday @Ml1969 @Reuters @UPI @nytimes @VaultComm @ronlieber @Duke_Neurology 🌻 app.als.community/share/B8ow…

In this world of of ALS stories there's a whole lot of pain. On October 14, find out why Dr. Richard Bedlack decided to dedicate his life to people with the illness rather than watching and wondering why. Join us. 2 pm CDT/3pm EST app.als.community/posts/1051… @wsj_com @statnews @alsnewstoday @MichaelWheelson @aVoice4ALS @Ml1969 @nytimes @latimes @HerALSStory @latimes @Duke_Neurology 🌻

Tonight, let’s all do a shot of Relyvrio for Brooke! Just don’t forget the pickle juice chaser! @JC75408607 @LisaLegacy4ALS @alsadvocacy @iamals @cliffeby @NotSoVanilla @limpbroozkit #WeLovedBrooke @nytimes #IYKYK 🥃

From Angelina Fanous, who brought awareness to Fred Standish through her beautiful #ALS piece on @VICE: Angelina doesn't know this, but Fred watched her segment multiple times. I tell this story because Angelina was diagnosed with #ALS around the same time as Fred—in 2015. So I ask: Why, in 2026, is there still no #ALS cure for Angelina? And why was there no cure for Brooke? Isn’t the time way past now? #SaturdayThoughts @NotSoVanilla @nytimes @alsdotcommunity @iamalsorg @HerALSStory @Ml1969 @JC75408607 🌻

The ALS world has lost so much of its light. I first met Brooke in Washington, D.C., at a conference called “More Than Our Stories,” and saw her again at a gala in Boston for ALS TDI. I loved her banter, humor, spirit, and love of life. I met her dad and thought of Fred. I know without question that if Fred had been her father, he would have wanted to trade places. I could feel that with Cliff. With the exception of the group shot with @lisamurkowski the photos I am sharing I took and they were all Brooke approved. I sat across from Brooke at that conference in D.C. So take a moment tonight and look for Brooke’s star. You’ll know it’s hers because it will shine so brightly. Much love, Brooke. Thank you for being you and letting us feel your light. #findthebeerlight #itisshining @HerALSStory ✨

GUESS WHO’S COMING TO @alsdotcommunity 🌻 On Wednesday, October 14, at 2pm CDT/3pm EST, take the Grand Tour with us as we learn, “How and Why Dr. Richard Bedlack Got to ALS.” @Duke_Neurology @Ml1969 @JC75408607 @alsnewstoday @TeamGleason @LiveLikeLou4 @MinoShah @HerALSStory

We are all inspired by how Sarah chooses to live. #fightlikeagirl @HerALSStory ⛳

And this is why we do this, why we stay here. To share Sarah smiles and the strength she gets from her mother! They fight like a girl and the girls always win. @alsdotcommunity #followSarah @Ml1969 #Wednesdaysunshine 🌻

If you’re watching #DancingWithTheStars, please wave to beautiful Micah! Such joy—the dance floor has never seen anything like it. ALS will never steal her light! #DWTS @HerALSStory @alsdotcommunity @Ml1969 @JC75408607 @alsadvocacy 🌻

“It's perfectly fine to tell children learning about #ALS that we don't know" - @jodonnellames That’s the magic of Hope Loves Company. When kids feel safe, the “I don’t know” answers become less frightening and remind them that they are not alone. #Shorts youtube.com/shorts/fUmX-Tp3C… via @YouTube @HopeLovesCo @alsdotcommunity 🌻