@CleftNotes

A group of otolaryngology clinicians and research professionals committed to sharing ongoing research in cleft palate and craniofacial differences.

 United States
Joined April 2018
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Very excited to hear this important panel IN PERSON #sentac2021 @JS_Peds_OTO
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Enjoyed the impressive talk at ACPA2021 by Dr. Kamalakar on the role of JAGGED1 in osteoblast commitment and bone regeneration through stimulation of non-canonical NOTCH signaling in cranial neural crest cells. @GoudyLab
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Fantastic panels and presentations at ACPA 2021 addressing VPI and nasal considerations for airway management. @JS_Peds_OTO @tttollefsonmd @GoudyLab
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“Our data show an increased risk of VPI diagnosis and increased surgical burden among patients receiving 2-stage CP repair.” @JSkirkoMD journals.sagepub.com/doi/ful…

Increased Risk of Velopharyngeal Insufficiency in Patients Undergoing Staged Palate Repair - Hilary...

Objective: To evaluate the association of 2-stage cleft palate (CP) surgery on velopharyngeal insufficiency (VPI) incidence, speech surgeries, and cleft-related...

journals.sagepub.com
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Case report of extremely rare arhinia, with a discussion of treatment and reconstructive options.
Jonathan Skirko, MD, MHPA, MPH@JS_Peds_OTO26 Feb 2020
I don't often do case reports but when I do, they are super unusual. This cutie was born with no nasal passage. Nasal anatomy was undescribed in the literature. It will be interesting to see how his maxilla and nose develops #Arhinia journals.sagepub.com/eprint/…
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Cleft Otolaryngology Forum retweeted
Jonathan Skirko, MD, MHPA, MPH@JS_Peds_OTO21 Feb 2020
Measuring Quality of Life is just as important in Nepal as it is in the US. Check out the Nepalese translation and linguistic validation of our VELO #Cleft Speech #QOL instrument journals.sagepub.com/doi/10.…

Nepali Linguistic Validation of the Velopharyngeal Insufficiency Effects on Life Outcomes Instrum...

Objective: To translate and validate the velopharyngeal insufficiency (VPI) effects on life outcomes (VELO) instrument into Nepali, and test its internal consis...

journals.sagepub.com
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Congratulations!!
Jonathan Skirko, MD, MHPA, MPH@JS_Peds_OTO16 Jan 2020
Good news of the week! #noticeofaward #Funded #qualityoflife #nowigottadothework
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Congrats Dr. Skirko!
Jonathan Skirko, MD, MHPA, MPH@JS_Peds_OTO1 Aug 2019
Studying rare diseases is challenging. My recent PCORI award was funded, so we can continue build our consortium of sites managing children with Pierre Robin Sequence and develop clinical research questions that are important to patients and their parents. #Funded #PRS
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Congrats Hilary McCrary, Jonathan Skirko, and team for the Best Clinical Research Project ASPO #COSM2019 #cleftpalate
Jonathan Skirko, MD, MHPA, MPH@JS_Peds_OTO4 May 2019
Congrats to Hilary McCrary on receiving the Charles Fergeson Award for the Best Clinical Research Project ASPO for our project "Increased Risk of Velopharyngeal Dysfunction in Patients Undergoing Staged‐Palate Repair." Well deserved #mentorship #Winning #PedsOTO #2019COSM
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Fantastic research on #TeamCare for children with #cleftpalate at #COSM2019
Jonathan Skirko, MD, MHPA, MPH@JS_Peds_OTO5 May 2019
More great work shared at #cosm2019 by Dr Torrecillas! Shockingly, there is almost no studies on the benefits of #TeamCare in managing kids with #cleft palate. That changes now. More VPI diagnosis, VPI surgery and earlier treatment in those seen by the team.
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Great work by Dr. Skirko and colleagues at #COSM2019
Jonathan Skirko, MD, MHPA, MPH@JS_Peds_OTO5 May 2019
Closing out #COSM2019 with our talk on the translation and validation of the Ecuadorian Dialect of #Spanish VPI #qualityoflife instrument, the VELO. Thanks to @tttollefsonmd, @UCDavis_OTOHNS and @globalsmile for making it possible. More to come!
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Fantastic presentations during the Otolaryngology and Airway session at #ACPAMeeting
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Cleft Otolaryngology Forum retweeted
Jonathan Skirko, MD, MHPA, MPH@JS_Peds_OTO30 Mar 2019
I love 3D reconstructions in planning craniofacial surgery. It also makes cool pics. A - is pyriform aperture stenosis; B - Aperts Syndrome; C - Pierre Robin Sequence (PRS). Check out the paper to learn more! goo.gl/fb/7K2srn
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