Connecting ALS is a weekly podcast produced by @alsassociation. #endALS #AIRster
Joined April 2019
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Connecting ALS retweeted
The National ALS Registry is committed to advancing research. The #ALSregistry funds a wide range of researchers working to discover potential causes and treatments of #ALS. Contribute to ALS progress by telling your story. Find out how at cdc.gov/als/. #ATSDR
Connecting ALS retweeted
To learn more about research into the connection between algal blooms and ALS being discussed at #ALSAdvocacy, check out the conversation on @ConnectingALS connectingals.org/episodes/l…
Connecting ALS retweeted
This week, @ChuckHabz was on @ConnectingALS podcast! Listen to find out more about how the movement began and other info!
Great job Chuck!
NEW EPISODE ALERT! We are joined by Chuck Haberstroh and Adam Wilson, co-chairs of the committee who led the fight to create Lou Gehrig Day. Listen today wherever you get the #podcast! #LG4Day @MLB @alsassociation @ALSA_MNNDSD connectingals.org/episodes/a… share.transistor.fm/s/5f4f69…
Connecting ALS retweeted
Join us for the first installment of our #ALS Drug Development Webinar Series on April 7th featuring Dr. Richard Bedlack @dukealsclinic and Dr. Jeremy Shefner @BarrowNeuro conta.cc/2PAHnWI
Connecting ALS retweeted
March is #NationalNutritionMonth, and the great folks @ConnectingALS are there with some great tips for the #ALSCommunity
NEW EPISODE ALERT! It's #NationalNutritionMonth and we are joined by Megan Frisk @ALSA_RockyMtnr to serve up some helpful tips on maintaining good nutrition while living with ALS. #podcast @alsassociation @ALSA_MNNDSD connectingals.org/episodes/m… share.transistor.fm/s/877433…
Connecting ALS retweeted
Caregivers are so important in the fight against #ALS. This week on Connecting ALS, we talk about how ALS Focus is going straight to caregivers to make sure their needs are being met. Listen at bit.ly/36G0HYq or wherever you get your podcasts.
New Episode Alert! We are joined by Dr. Sarah Parvanta, director of ALS Focus, to learn how the voices of ALS caregivers are being elevated to make sure services and programs are tailored to their needs. @alsassociation @ALSA_MNNDSD connectingals.org/episodes/t… share.transistor.fm/s/1f9b33…
Connecting ALS retweeted
ALS Patients To Gain Quicker Access To Disability Benefits And Medicare npr.org/sections/health-shot…
Connecting ALS retweeted
Congress is listening to the #ALS community. Now is not the time to slow down - it's time to put the pedal to the metal. Recap 2020 wins and what @alsassociation has planned for 2021! Take a listen. #ALSAdvocacy #ACTforALS #PPA #ALSResearch
NEW EPISODE ALERT! We are joined by Abram Bieliauskas @alsassociation to reflect on some big wins for #ALS advocates in 2020 and to look ahead at the fights to come in 2021. #podcast #ALSInThisTogether #WeCantWait @ALSA_MNNDSD connectingals.org/episodes/a… share.transistor.fm/s/1179ff…
Connecting ALS retweeted
In the latest @ConnectingALS episode, co-hosts Mike & Jeremy talk with Dr. Clifton Gooch about the latest news on the #COVID19 vaccines & what they mean for people with #ALS. Listen today at this link or wherever you get your podcasts: ow.ly/e45m50CNdW7.
Connecting ALS retweeted
HUGE #ALSAdvocacy News: the U.S. House of Representatives PASSED the ALS Disability Insurance Act! Thanks to the tireless work of ALS advocates & House champions this 4 year fight for immediate access to #SSDI benefits for people with #ALS is almost over. bit.ly/2VV9rUI
ALT A photograph of a person living with ALS, who is sitting in a wheelchair with a breathing device on his face, surrounded by fellow ALS advocates. They are all in front of the U.S. Capitol, where they met with Congress to advance legislation that would help people living with ALS. Text on the image reads, "Thank you ALS Advocates for fighting for the ALS Disability Insurance Access Act!"
Connecting ALS retweeted
Thank you to all the ALS Champions in the Senate for passing the ALS Disability Insurance Access Act! We’re closer than ever to securing immediate access to SSDI benefits for people living with #ALS. Read more and ask your representative to vote YES: bit.ly/3lIc8DE
Connecting ALS retweeted
You urged the Senate to move forward and it responded by PASSING the ALS Disability Insurance Act! Thanks to @SenWhitehouse, @SenTomCotton, and all Senate #ALS champions for supporting those living with ALS. Now we need the House to follow suit and pass this bill.
Connecting ALS retweeted
I was happy to take part in the @ALSAssociation’s @ConnectingALS podcast which serves as a platform to discuss research and technology developments, highlight advocacy efforts, and share personal stories from the ALS community.
NEW EPISODE ALERT! We are joined by Sen. Lisa Murkowski (R-Alaska) @lisamurkowski to discuss the ACT for ALS bill and the Senate’s push to double funding for ALS Research at the Department of Defense. @alsassociation @ALSA_MNNDSD connectingals.org/episodes/d… share.transistor.fm/s/0a59af…
Connecting ALS retweeted
Mike and Jeremy from the @ConnectingALS podcast kicked off #NFCMonth with @CGraceTweet, president and CEO of the National Alliance for Caregiving.
bit.ly/3pNbqIB
Connecting ALS retweeted
Thank you @lisamurkowski for taking time out of your busy schedule to discuss the #ACTforALS bill and your fight to double federal funding for #ALS research. Listen to the full @ConnectingALS podcast episode here: connectingals.org/episodes/d…
NEW EPISODE ALERT! We are joined by Sen. Lisa Murkowski (R-Alaska) @lisamurkowski to discuss the ACT for ALS bill and the Senate’s push to double funding for ALS Research at the Department of Defense. @alsassociation @ALSA_MNNDSD connectingals.org/episodes/d… share.transistor.fm/s/0a59af…
Connecting ALS retweeted
HUGE NEWS! The Senate has recommended $40M for the DOD ALSRP and $10M for the CDC National ALS Registry in their FY2021 appropriations bills. THANK YOU to the ALS community and our ALS champions in the Senate for making this happen!
Connecting ALS retweeted
UPCOMING WEBINAR: Dr. Neil Thakur and Dr. Kuldip Dave will talk about the results of the Open Label Study of the CENTAUR trial, and discuss how the #ALS community can influence when #AMX0035 might be approved for clinical use. Register today: attendee.gotowebinar.com/reg…
Connecting ALS retweeted
In this week's @ConnectingALS episode, learn more about #voting during a pandemic and what to consider if you're facing mobility and motor function challenges.
connectingals.org/episodes/v…
Connecting ALS retweeted
NEW EPISODE ALERT! This week, Mike and Jeremy chat with ALS advocate Sunny Brous, who shares how she finds hope and maintains connections during what has been a rollercoaster of a year. #WeCantWait @alsassociation @ALSA_MNNDSD connectingals.org/episodes/a… share.transistor.fm/s/6d2b48…