@Coping_with_MS

I'm Laura. How I cope with Multiple Sclerosis - I am middle-aged, madly in love and getting through life day by day! Life is an open road...where are you going?

 Suburbs of Toronto, Canada
coping-with-ms.blogspot.com/
Joined September 2009
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I bought a bicycle recently...I can't walk much, but riding my new bike is super easy! Who knew! Wish I knew this years ago! #cycle #MS
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I did my annual "F*ck You MS" tower climb and successfully made it to the top! Yay!
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2022 has been an interesting year! As always, ending the year with elevated MS symptoms! Wish I understood why the onset of winter worsens my MS! I wish you all the best possible health and a wealth of happiness in 2023. ❤️
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There are now three horses that I ride for my lessons! I spent the majority of summer on Saffron, the chestnut (the football at Halloween!) but still sometimes ride Reno the grey (white horse). Most recently, I started riding Cali, the palomino (Barbie’s dream horse lookalike!)
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So I had an interesting lesson April 27th. I did my first sitting trot AND my first canter! Sadly, I also had my first fall! I lost my left stirrup when I asked for the canter and I couldn't recover my balance at that speed! Tomorrow I am back in the saddle again! Fingers crossed
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Are there other people out there with MS that would like to try horseback riding? Is it a dream never realized? What were your barriers to riding? Tell me please! #MultipleSclerosis #riding #Horses
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I feel the need to break my silence! (I've been concentrating on private conversations with fellow MSers lately!) I've started a new sport! And the results are so astounding, my wish is that everyone with MS get a chance to do this too! 1/4
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Riding is about balance (the one thing just about everyone with MS can struggle with). My standing balance has improved so much in just 5 weeks, I can stand with my feet close together (without losing my balance) for the first time in 15+ years! 3/4
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I've been lucky enough to find a World class teacher, too! (She teaches professionals - even Olympic level riders!) I wish I could make riding financially accessible to everyone with MS. This is a lifelong dream come true! #HorseRiding #MultipleSclerosis 4/4
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Challenging, because the waves on either side made my dizziness worse, so it was dangerous and difficult. A great challenge! I made it to the end and even climbed some stairs to touch the lighthouse at the end! (I left my walker at the stairs!) (part 2)
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Then I went on a 4km hike at Balls Falls. I used nordic walking poles to assist me with the hike! My great-niece assisted me with both events! The weather was unusually warm and gorgeous and sunny. So not what I usually do, but it was a good fight against MS anyway! (Part 3 of 3)
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So I did my annual "Fuck You MS" event this past week. The park that houses the tower I usually climb is closed for the entirety of 2020 due to COVID, so I had to find another challenge. I walked the length of a pier jutting out into Lake Erie. (part 1)
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Normally I would plan my annual “fuck you MS” tower climb in Dorset, Ontario, which I have done every year since my diagnosis of MS. The park and tower are closed for the entirety of 2020 due to COVID. It is both a mental and physical challenge. Any ideas what I could do instead?
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Multiple Sclerosis retweeted
Kessler Foundation@KesslerFdn28 Sep 2020
Enrollment in this study is about to close! Researchers at Kessler Foundation need to hear from a few more individuals who choose to NOT take medications for their multiple sclerosis. Contact Jackie at 973-324-8429 or [email protected] for more information.
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Multiple Sclerosis retweeted
HelenGenova@GenovaHelen12 Aug 2020
Need more individuals with #MS #MultipleSclerosis ! Tell us about your #COVID19 #pandemic #experience. research.njms.rutgers.edu/re… @KesslerFdn @drvoelbel @MS_HealthUnion
HelenGenova@GenovaHelen22 Jul 2020
Help researchers study how the #COVID19 #Pandemic has affected those with #Stroke, #MultipleSclerosis or #TraumaticBrainInjury? 30-minute online survey and chance to win a $100 amazon gift card, click below: research.njms.rutgers.edu/re… @RealTalkMS_jon @Coping_with_MS
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Replying to @KulikovUNIATF @MSSEonline @EIMnews @MattersActive @MS_HealthUnion @MS_Focus @MSassociation @MovingEachDay @FitLifestyleHub @FitnessFoundry
I totally agree! Keep moving! Aquafit is great, because if you lose your balance, you just get wet. I love cycling! Nordic walking poles can help with walking on uneven surfaces. Toronto Rehab has put together exercises for people with mobility issues. uhn.ca/TorontoRehab/Clinics/…
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Multiple Sclerosis retweeted
Dr Alexey Kulikov
@KulikovUNIATF24 May 2020
People with multiple sclerosis can and should move no matter where they are in the course of the disease. #exercise should be tailored to each patient ideally reaching at least 150 min of #PhysicalActivity a week. #ActiveChallenge2020 washingtonpost.com/health/ex…
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Last fall, I started swimming. I thought since the cycling was going so well, I would try getting my body into shape to do an “aqua bike” in a triathlon. Two months in isolation has put my fitness level back two years! Will have to seriously concentrate on cycling for a bit!
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I wish you all the best of everything in 2020!
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This looks promising! 'Trojan horse' treatment for MS shows promising results in lab tests | CBC News cbc.ca/news/canada/saskatche…

'Trojan horse' treatment for MS shows promising results in lab tests | CBC News

A University of Regina researcher is showing how a 'Trojan horse' protein may be key to correcting multiple sclerosis and is already having positive results with mice in the lab.

cbc.ca
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