Mom, RN, Fighting ALS SOD1
Basking Ridge, NJ
Joined December 2011
- Tweets54
- Following50
- Followers26
- Likes89
Melanie Craig retweeted
Thank you for your ALS leadership @SenatorDurbin and for sharing @bsw5020 & @sabrevaya's story with @SecKennedy. ALS is urgent with no time to waste. We look forward to advancing research & access to promising treatments with Sec. Kennedy, @DrJBhattacharya @DrOzCMS @DrMakaryFDA
ALS has killed multiple people in my family. Now it's coming for me today.com/health/essay/famil… via @TODAYshow
Melanie Craig retweeted
In response to @ConanOBrien’s desire to speed research for ALS at @ALSTDI, an anonymous donor has pledged to match all donations made up to $25,000, in response to his wonderful tweet! als.net/donate/?soc=conan
Join me in battling #ALS by donating to the ALS Therapy Development Institute: als.net/donate. If you're unable to donate, spreading the word also helps - use the hashtag #ALS to help raise awareness and support the cause. Big shout out and much love to Maria and Jules!
.@SenBooker, watch Juan's story youtu.be/zdXv1B9keOo and help this Veteran continue to make memories and be an example of courage by cosponsoring the Elizabeth Dole Home Care Act (S.141).
Melanie Craig retweeted
Her ALS Story Public Service Announcement 📣
#ALSAwareness #EndALS #HerALSStory #FuckALS #ALS #LifeWithALS #Accessibility #Disability #MND #MotorNeuroDisease #ALSSucks #MNDAwareness #FuckMND #DisabilityAwarenesss
Huge shoutout to Stevesway.org for equipment and training unlocking features of iPhone/iPad for als patients!!
Melanie Craig retweeted
It takes a second…please retweet. Our daughter deserves ANY chance to live and #NurOwn is it.
regulations.gov/comment/FDA-…
@iamalsorg @sabrevaya @bsw5020 @BartBaker @TeamGleason @DrCaliff_FDA @klink52 @kandysimons @BellinaDeb @FDACBER @dantate2 @rosadelauro
Melanie Craig retweeted
@MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.
Melanie Craig retweeted
Day 31 of ALS Awareness month! 🎶And nowww the enddd is neeeearrr 🎶 #alsawarenessmonth #als #lougehrigsdisease #support #donate #help #research #cure #terminal #share #wediditjoe @ALSTDI
At the #walktodefeatals ran into these guys who informed me the empire is putting a lot of funding into ALS research. You should too! #ALS #ALSfunding #tofersenworks
Mom fighting ALS and raising money for the ALS walk this Saturday in NYC. I would love for you to share with your friends and donate if you can. #ALS #tofersenworks #ALSwalk #donate
secure.als-ny.org/site/TR/En…
Beautiful morning for a 3 mile walk 13 months after diagnosis. 12 months after first tofersen injection #TofersenWorks #Tofersen #US_FDA #SOD1
