I'm a little boy who was diagnosed with Duchenne Muscular Dystrophy in January 2016. I tweet to raise awareness & funding for DMD. Follow my journey
Codicote, East
Joined November 2017
- Tweets369
- Following336
- Followers176
- Likes384
Defending William Against DMD retweeted
Janet Hoskin has published a new paper: ‘More than a just a physical condition’ – recognising the educational and emotional needs of children and young adults with Duchenne muscular dystrophy (DMD).
You can read the paper here: tandfonline.com/doi/full/10.…
Defending William Against DMD retweeted
BREAKING NEWS
A new medicine for DMD, funded by Joining Jack, @DuchenneUK & @DuchenneRF has become the first approved treatment in the UK for all patients with Duchenne!
NICE has approved vamorolone for use on the NHS to treat Duchenne - read full story
duchenneuk.org/new-medicine-…
Defending William Against DMD retweeted
One of mummy's lovely friends is walking the Jurassic Coast today raising money for @duchenneuk
Good luck @kaytwhite 🥰💙👊🏻💙 instagram.com/p/CdiDBUyolF6/…
Defending William Against DMD retweeted
Huge thank you to our partners @Saracens for supporting us at their pre-season friendly Vs @UlsterRugby tonight and giving William the chance to take the ball out!
Catch up on the match here and text TACKLEDMD to 70085 to donate £10 saracens.com/live-streams/li…
Defending William Against DMD retweeted
This Christmas, consider asking those who you exchange gifts or cards with, to instead donate to Duchenne UK the amount you would usually spend.
Please give a gift from the heart, not the shopping cart!
Donate at bit.ly/duk-xmas or text DUCHENNE to 70085 to donate £5
Defending William Against DMD retweeted
First 100 hours logged for #teamdwadchallenge
You can sponsor the amazing team of 69 friends and family here:
justgiving.com/crowdfunding/…
Keep going team 💙👊🏻🏃♀️🚲💙👊🏻
Could only tag 20 😊 instagram.com/p/CHOSk8BpTor/…
Defending William Against DMD retweeted
#teamdwadchallenge
Foggy early morning with tired legs - but came home to the reason I am doing this 💙👊🏻🏃♀️💙 instagram.com/p/CHM6Hokpnyo/…
Defending William Against DMD retweeted
The tough horrible journey all Duchenne parents face with no cure 🙏 facebook.com/131006166909678…
Defending William Against DMD retweeted
@NadineDorries can you help us with this fight for my son @DefndwilliamDMD and others like him?
The Coronavirus Bill could drive disabled people into crisis and increase pressure on frontline NHS services, by removing the duty on councils to meet assessed needs. Check out our letters to MPs if you want to join us in raising the issue. dmdpathfinders.org.uk/corona…
Defending William Against DMD retweeted
@SMcPartland can you please ensure disabled people like my son @DefndwilliamDMD are looked after?? We are having to stay home for 12 weeks due to his condition, help us please.
The Coronavirus Bill could drive disabled people into crisis and increase pressure on frontline NHS services, by removing the duty on councils to meet assessed needs. Check out our letters to MPs if you want to join us in raising the issue. dmdpathfinders.org.uk/corona…
Defending William Against DMD retweeted
Looking forward to another great Sportsman Dinner.. DM for Tickets/Details or email [email protected]
Defending William Against DMD retweeted
We are very grateful to @Saracens for supporting our ongoing work into finding a cure for Duchenne Muscular Dystrophy at the DMD Hub site, @EvelinaLondon.
📹 @DuchenneUK and @EvelinaLondon are committed to finding a cure for DMD
We will be supporting @DuchenneUK at The Showdown on 28th March. We'll help them raise vital funds for their research 🔵
Find out more 👉 bit.ly/2RyALqu
#TogetherSaracens #TheShowdown #TackleDMD
Defending William Against DMD retweeted
Our next FREE Patient Information Day will take place on Saturday, 14th March 2020 in London.
To find out more and register, click the link below: duchenneuk.org/pid-registrat…
Defending William Against DMD retweeted
We are so grateful to Saracens for inviting us to their match today, helping us raise awareness for Duchenne.
#togetherSaracens
Text 'TACKLEDMD' to 70085 to donate £10. This costs £10 plus a std rate msg.
Or donate here: duchenneuk.org/donate/sarace…
@alljoinjack @DefndwilliamDMD
A very warm welcome to the @DuchenneUK family at @AllianzPark!
Kick-off is minutes away!
#TogetherSaracens 🔵⚫️🔴
Defending William Against DMD retweeted
Don't miss @elliotdaly's debut for @Saracens - LIVE on @Channel4 from 12.30pm as his new club take on Ospreys in a massive @ChampionsCup clash
#C4rugby #SARvOSP
Defending William Against DMD retweeted
We can't wait for tomorrows match!
Thank you @Saracens for this great opportunity to raise awareness for Duchenne muscular dystrophy.
@alljoinjack @DefndwilliamDMD
TEAM'S UP!
@elliotdaly is in for his debut ⚫️🔴
@T_whiteley95 will make his first European start 👏
@bradbarritt returns 👊
Saturday is a @DuchenneUK match day. Give them a follow! 🙏
Full team news 👉 bit.ly/2KFgnQP
Defending William Against DMD retweeted
Codicote mum ‘overwhelmed’ with £150k house revamp help for son with rare disease thecomet.net/codicote-mum-on…
Defending William Against DMD retweeted
Codicote mum ‘overwhelmed’ with £150k house revamp help for son with rare disease whtimes.co.uk/codicote-mum-o…
