Dementia Alliance for Culture and Ethnicity - Support the Call to Action for improvements in dementia support for Black, Asian and minority ethnic communities
UK
Joined May 2009
- Tweets677
- Following82
- Followers288
- Likes226
DACE retweeted
Life Story Work is the process of stimulating and capturing people’s stories about what matters to them – in the past, present and the future. Join us for our event on September 12th!
tide.uk.net/how-life-story-w…
DACE retweeted
Re the @alzheimerssoc ad
Now several days since I wrote to all the Trustees, inc Chair, V-Chair + all ambassadors, patrons, v-presidents I cd find emails for...
I've only had one reply
Busy ppl yes - but these are public offices. Surely they have a responsibility to respond?
DACE retweeted
Am totally with you on this, but there again we have cared with people for many yrs, so we base our comments on real world experience (and some research). Communicating Caring Connecting
I think my lasting feeling from the #Alz Ad is that it conflicts w my own experience of the person still being there, even in the later stages. Recognising that ppl are always listening & still able to connect, lies at the heart of good #dementia #care #TheLongGoodbye #StillAlive
DACE retweeted
This #WomensHistoryMonth, #RCNMagazine profiles Daphne Steel the first Black matron to join the NHS, with her blue plaque recently unveiled in Yorkshire.
rcn.org.uk/magazines/History…
DACE retweeted
Learn how 2 support & #care WITH people living with #dementia findingthelightindementia.co…
#NHS #nurses
#nursing
#socialcare #physicians #carers #healthcare #occupationaltherapist #carehomes #residentialcare #assistedliving #palliative #hospice #memoryclinics #memory
DACE retweeted
A sad, tired, emotional and angry video from Gail @alzheimerssoc making the point that your new ad perpetuates the #stigma that you and others have worked hard to overcome
Saying it as it is …
Watch my latest short film of how I feel about the Alzheimer Society and their campaign @alzheimerssoc @george_rook @doryitsme @Innov_Dementia
youtu.be/KuU0QuHHdhc?si=sOc5…
DACE retweeted
Just a thought, if a person has moderate dementia they may not be able to make a judgement about whether they should boycott listening to/watching an advert, but then its too late once its on!
Also if not in a position to remove yrself from the radio/tv as in communal spaces
DACE retweeted
An important point from @DarrenGrimes77. We have been contacted by insiders and told that many @alzheimerssoc staff are devastated disappointed and distressed by the release of this anomalous damaging and divisive video.
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DACE retweeted
A powerful chain of commentary from @LoreleiKing @DementiaUK The second clip provides an alternative ending to the @alzheimerssoc ad about gov and policy responsibilities rather than the nihilistic view that dementia = death
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DACE retweeted
Thread
1 I've been thinking more about @alzheimerssoc ad & reaction to it. Some ppl are critical of the 'living well with dementia' idea that I unashamedly advocate for. They say that this shows ppl are wrongly diagnosed and/or don't have dementia 🧵
DACE retweeted
Job opportunity!
Would you like to join the team @LondonGypsyTrav?
They are looking for two Project worker for their young people's skills and mentoring programme (P/T 3 or 4 days a week)
Find out all about the roles & how to apply
👇
#JobFairy #Vacancy
irishinbritain.org/vacancies…
DACE retweeted
Carers might say 'This is killing me' and many of us would deeply sympathise. Carers deserve our utmost care, respect, support but so do people living with dementia. Carers might say 'I feel I've lost her' but plwd might feel they've lost even more. Yet they still have existence.
DACE retweeted
My letter has sparked further discussion in @guardian concerning #dementia - this is a good and well reasoned article. It makes me realise that the idea of progression in disease needs more explaining. theguardian.com/commentisfre…
DACE retweeted
Clive's anger, disappointment and distress at the @alzheimerssoc video comes across very clearly. He feels betrayed. PLEASE reconsider. #DementiaDiaries bit.ly/4aB68pY
DACE retweeted
Totally get this but many don’t sanitise, we work with hope based on yrs of professional experience & authentically co produced research
Sonia Sodha’s article is a helpful read. She agrees the death metaphor is ‘horribly dehumanising’ & feels the advert ‘went too far’ but she also highlights why more ppl need to be talking about #dementia without sanitising the damage it causes. theguardian.com/commentisfre…
DACE retweeted
The debate around the @alzheimerssoc ad is very toxic. It is an argument about two points of experience. The sole promotion of either side can be upsetting but it should be possible to accept the existence of the other without seeking to silence. One does not diminsh the other.