@DipgResource

An online resource (in progress) for families of children diagnosed with DIPG. Pardon the dust on our website. It’s an ongoing project 🎗

 Ohio, USA
dipgresource.org
Joined October 2017
  • Tweets104
  • Following152
  • Followers179
22Media
Ironic isn’t it? Mitch McConnell stealing a Supreme Court seat cost him his last chance at being Leader McConnell.
2,436
9,852
955
82,413
Huge thank you to Patrick Byrne from @RepMarciaFudge’s office for meeting with the DIPG Advocacy group to help us get H. Res. 114 Moonshot4Kids passed!
1
DIPG Resource retweeted
Zoe@PandaPool31219 Jun 2020
Kids Rocking their shirts with the boys supporting their sister!! #Dipg @Mr4thAndLong @Bsweetbrittany @DipgResource
1
1
1
4
Give Kids the Moon! moonshot4kids.org #Moonshot4Kids #BrainCancerAwarenessMonth
1
4
7
@JacksAngels1 <3
3 yrs ago today, we said goodbye to our most precious little girl, Chika, on a sunny April afternoon, not unlike one in her homeland of Haiti. Although she survived an earthquake when she was three days old, she ultimately lost her battle with a terrible disease, #DIPG at 7 ...
23
24
7
255
DIPG Resource retweeted
Tiffany@TuffTiffResists5 Apr 2020
Now that the CDC is recommending people wear masks, here is a neat video to show how to make one that should work as well as the N95 style ones. youtu.be/W6d3twpHwis
1
We need you! YOU can help attach HOPE to pediatric brain cancer, the #1 cause of childhood mortality due to cancer. Please just do it it's so easy! One click! bit.ly/HOPE-HRes114
8
1
14
Join the #Moonshot4Kids! See if your Representative is a co-sponsor for H. Res. 114, and if they're not, call them and ask them to sign on. congress.gov/bill/116th-cong…
2
Follow the new DIPG Advocacy Group account @Moonshot4Kids join them to raise awareness for #DIPG & #pediatricbraincancer with #HRes114
3
4
DIPG Resource retweeted
Tiffany@TuffTiffResists8 Mar 2020
Replying to @Adonna_Biel
@Adonna_Biel - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids. We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support! dipgadvocacy.org
1
1
DIPG Resource retweeted
Tiffany@TuffTiffResists8 Mar 2020
Replying to @meghan_hays9
@meghan_hays9 - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids. We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support! dipgadvocacy.org
1
1
DIPG Resource retweeted
Tiffany@TuffTiffResists8 Mar 2020
Replying to @Emma_E_Riley
@Emma_E_Riley - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids. We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support! dipgadvocacy.org
1
1
Hey @JTOBrown - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids. We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support! dipgadvocacy.org
1
DIPG Resource retweeted
Defeat DIPG®@DefeatDIPG7 Mar 2020
We share Vivian Rose Weaver’s passing with deep sorrow in our hearts. Vivian surpassed some odds for DIPG, but it’s not nearly enough time for this beautiful little girl to shine in this world. But with her time — shine she did. 💗 From @vivianrosedipg: facebook.com/351294268725621…
5
7
3
20
Smashing Walnuts is honored to be a part of this. #Moonshot4Kids #DIPG @CFNova @LTMnews @LoudounChamber @LoudounNow @NBTStweets @kidsfirstDRC @CNKFoundation @KIDSvCANCER @washingtonpost @LeesburgPatch @USATODAY @MitchAlbom @PRandallcares @RepSpeier @RepMcCaul @JacksAngels1
6
15
DIPG Resource retweeted
Tiffany@TuffTiffResists5 Feb 2020
Replying to @TuffTiffResists @fred_guttenberg
In the off chance you see this and will be in DC between February 12-14, I’d love for you to come out and support our effort with H. Res 114. congress.gov/bill/116th-cong…

H.Res.114 - 116th Congress (2019-2020): Expressing support for the designation of the 17th day in...

Summary of H.Res.114 - 116th Congress (2019-2020): Expressing support for the designation of the 17th day in May as "DIPG Awareness Day" to raise awareness and encourage research into cures for...

congress.gov
2
5
Looking forward to attending this event to help bring more awareness and needed research funding to DIPG!
Defeat DIPG®@DefeatDIPG5 Feb 2020
We are excited to stand with DIPG families, advocates, & researchers for a Congressional Briefing & Summit hosted by the DIPG Advocacy Group on February 13. And we invite YOU to attend! This is an open day of events for the DIPG community. RSVP here: events.r20.constantcontact.c…
6
H. Res. 114 now has 93 cosponsors! Is your representative supporting this important resolution for #DIPG and #pediatriccancer? congress.gov/bill/116th-cong…
1
4
For families that can’t attend, if you want your DIPG angel represented you may send a photo to DIPGadvocacy. 💕
Bonnie Woodworth@BonnieWoodworth5 Feb 2020
#DIPG #DIPGAwareness #cureDIPG #TeamTatumn #ChildhoodCancerAwareness #curechildhoodcancer DIPG families and Childhood Cancer Advocates- please join us!
3
10
1
15
Load more