@Dmascalzoni
 Bolzano, Trentino-South Tyrol
Joined October 2011
  • Tweets83
  • Following111
  • Followers136
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Deborah Mascalzoni retweeted
ASHG@GeneticsSociety17 Feb 2025
ASHG is deeply troubled by the recent layoffs at a number of agencies. The impact on scientific progress and innovation is profound and alarming. Read our statement: ashg.org/publications-news/p…
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Deborah Mascalzoni retweeted
Ethox Centre@Ethox_Centre23 Sep 2024
Join our next Ethox Seminar - 🧠Automated prejudice: Should algorithms assess risk in the criminal justice system?⚖️ 🗣️@HopeKent20 📅Thur, 3 Oct 2024, 2:30 to 4.00pm 🏢Richard Doll Building(Old Road Campus) & Online Details & Zoom ⬇️ ethox.ox.ac.uk/events/ethox-…

Ethox Seminar – Automated prejudice: Should algorithms assess risk in the criminal justice system?

ethox.ox.ac.uk
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What is hidden behind the concept of #ResearchIntegrity? Read the blog post here! 👇 #EthicsBlogThrowback ethicsblog.crb.uu.se/2024/05…
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DCE from 12 European countries on public preferences for health data sharing governance: Heterogeneity of preferences and necessity of governance flexibility. Please consider in @ehds2pilot and @EU_Health. jmir.org/2023/1/e47066/ @rosie_open @HYBRIDA_H2020 @UniOslo_MED #EHDS

Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European...

Background: With new technologies, health data can be collected in a variety of different clinical, research, and public health contexts, and then can be used for a range of new purposes. Establish...

jmir.org
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JUST PUBLISHED: Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries 👇jmir.org/2023/1/e47066

Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European...

Background: With new technologies, health data can be collected in a variety of different clinical, research, and public health contexts, and then can be used for a range of new purposes. Establish...

jmir.org
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Deborah Mascalzoni retweeted
COMÚN@comun_oe13 Nov 2023
Unser erstes Ziel sind 20.000 Euro und wir haben bereits mehr als die Hälfte erreicht. Bitte beteiligt Euch, wenn Ihr könnt. Ein Beirat, u.a. mit @BirgitHebein, @BPrainsack & @JulyaRabinowich, entscheidet über die Mittelverwendung. Hier gibts Infos: gegenrechtsschutz.at (2)
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This is why we need a more nuanced assessment of the public value emerging from research, instead of sticking with the dichotomy between research being “in the public interest” or not: tandfonline.com/doi/full/10.… (See also thelancet.com/journals/landi…)

Beyond Individual Rights: How Data Solidarity Gives People Meaningful Control over Data

Published in The American Journal of Bioethics (Vol. 23, No. 11, 2023)

tandfonline.com
Louise Amoore@AmooreLouise12 Nov 2023
An example of one of the many issues at stake with the expanded “research” exemptions in UK Data Protection and Digital Information. It will be open season on private & commercial data “research”. theguardian.com/technology/2…

Private UK health data donated for medical research shared with insurance companies

Observer investigation reveals UK Biobank opened its biomedical database to insurance firms despite pledge it would not do so

theguardian.com
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Time to celebrate! @ENLIGHTENme_EU will be awarded the URBES award given to cities, institutions, foundations and people who have promoted #urbanhealth and wellbeing with their commitment and targeted projects @Horizon_EU 👉enlightenme-project.eu/news/…
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Excited to start working with @HaploiPS that will bring new insights to @EuracBiomed and @crb_uu on IPS
HAPLO-iPS@HaploiPS4 Sep 2023
We are starting a wonderful day full of discussions at the 2nd WG meeting of @COSTprogramme Action CA21151 @HaploiPS in Sofia, 🇧🇬! HAPLO-iPS aims to create a collaborative network to provide a framework for hiPSC generation.
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Deborah Mascalzoni retweeted
Cecilia Lindgren@ceclindgren30 Jun 2023
Wooowww ✨ now this is cool
Sven Dorkenwald@sdorkenw30 Jun 2023
We are releasing a whole-brain connectome of the fruit fly, including ~130k annotated neurons and tens of millions of typed synapses! Explore the connectome: codex.flywire.ai/ Reconstruction paper: biorxiv.org/content/10.1101/… Annotation paper: biorxiv.org/content/10.1101/… 1/6
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⁉️𝐖𝐡𝐚𝐭 𝐢𝐬 𝐅𝐀𝐂𝐈𝐋𝐈𝐓𝐀𝐓𝐄'𝐒 𝐎𝐕𝐄𝐑𝐀𝐋𝐋 𝐆𝐎𝐀𝐋? The overall goal of this 4years project is the development of a patient centered process prototype to allow the direct generation and the return of clinical trials data to study participants👉facilitate-project.eu
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Deborah Mascalzoni retweeted
Facilitate Project@Imi_Facilitate9 Jun 2023
FACILITATE’s project partners here together in #Paris for a Semi-annual meeting discussing how to return data to study participants & secondary use of these data! To be updated join #FACILITATE's pool of stakeholders here! 👉facilitate-project.eu/stakeh…
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MEPs to vote on proposed ban on ‘Big Brother’ AI facial recognition on streets theguardian.com/technology/2…

MEPs to vote on proposed ban on ‘Big Brother’ AI facial recognition on streets

Thursday’s vote in EU parliament seen as key test in formation of world’s first artificial intelligence laws

theguardian.com
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Amazing academic contributions and real life projects for discussing AI @EuracBiomed @crb_uu
HKU Centre for Medical Ethics & Law@HKUCMEL9 May 2023
That’s a wrap for today‼️ Great discussions on Governance of Medical #AI. Join us tomorrow: cmel.hku.hk/events/medical-a… @_MitchellCR @ProfBarrySol @ColleenFlood2 @CohenProf #Bioethics #AIEthics #HealthLaw, HK Academy of Medicine, HKU Clinical Trials Centre @HKU_MEHU @HKULaw @HKUMed
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Amazing panel and insights into return of results. Across countries experiences and examples to be be brought home and implemented! Thank you all. @EuracBiomed @Imi_Facilitate @crb_uu
Calvin Ho@CalvinWLHo23 Feb 2023
Amazing discussion on #ethical implementation of #ReturnOfResults from #genetic #research across three continents at panel #ICHG2023 @ciaralstaunton @Dmascalzoni @jmc_blom in #CapeTown, with great comments from colleagues from #Africa and #Australia. Stay tuned for updates 😊
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Deborah Mascalzoni retweeted
Roberta Biasiotto@RobeBiasiotto9 Jan 2023
Read our latest publication with @SpringerNature in @ejhg_journal on #CHRISstudy #participantperspective on #recallbygenotype research approach. With @Dmascalzoni @KaTschigg @andrewhicks and others at @EuracBiomed & @UniLuebeck rdcu.be/c2JI3
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Thank you amazing group: @AncillottiMirko @RobeBiasiotto and Virginia Romano! the paper on effects of the lock down in Italy is out! nature.com/articles/s41599-0…
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@EURAC @EuracBiomed @crb_uu @ciaralstaunton
Honoured to be part of the expert table on privacy in Pietrarsa for @EuracBiomed and @crb_uu. With the leadership of @guidoscorza and amazing colleagues @mrllcu @gtesta72 @BioDiritto
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@ciaralstaunton @KaTschigg @RobeBiasiotto @HeidiBBentzen @Mahsashabani time to write about Human rights and privacy
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