Because it isn't in your head. #Sjogren's patient w/ Ph.D. in Health Psych empowering others with a body they didn't expect to have. #autoimmune #chronicillness
Kentucky, USA
Joined October 2018
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Susan Masterson, Ph.D. retweeted
"Medspeak" is characterized as medical terminology used by #clinicians that leads to #communication gaps with #patients. It's the #CMO's job to make sure their clinicians are aware of #medspeak and how to avoid it, according to the CMO of @AHNtoday: healthleadersmedia.com/cmo/h…
Susan Masterson, Ph.D. retweeted
Are you getting enough iron daily?
The chances are that most of us probably aren’t. Our bodies need iron to grow and develop. Iron can also help prevent anemia and protect our bodies from infection. cle.clinic/3JjIzpY
Susan Masterson, Ph.D. retweeted
5/It's time to upgrade clinician education & the classification criteria to better reflect the reality of the disease. Sjogren's is as prevalent as RA, but mostly ignored by medical ed. Misconceptions remain widespread, hindering diagnosis and comprehensive care. @SjogrensForum
Susan Masterson, Ph.D. retweeted
UNT honors and remembers the lives we lost 23 years ago.
Let us #NeverForget.
ALT Never forget. 9/11/01.
Susan Masterson, Ph.D. retweeted
#SS Clinical Trial | Evaluation of Biopsychosocial Features, Pain, Fatigue, Quality of Life, Swallowing, & Disease-Specific Symptoms in Patients With Sjogren's Syndrome | recruiting | Kahramanmaras Sutcu Imam University, Turkey. | #clinicaltrials | buff.ly/3AaHobx
Susan Masterson, Ph.D. retweeted
#NIAMSfunded researchers discovered an imbalance of immune cell types in lupus patients that contribute to the production of disease-causing autoantibodies.
Potential treatments could disrupt the formation of these harmful cells: go.nih.gov/5CuKCdv #LupusResearch
ALT An illustration of a woman with a butterfly rash on her face.
Susan Masterson, Ph.D. retweeted
It’s never too late to take charge of your brain health. By starting these 10 Healthy Habits for Your Brain today, you can lower the risk of developing cognitive decline and dementia: alz.org/healthyhabits. #NationalSeniorCitizenDay
Susan Masterson, Ph.D. retweeted
ALT Types of headaches 1st type - migraine (red mark over the eye) 2nd type - hypertension (red mark over the back of his head) 3rd type - stress (band of red around head and in the back of head) 4th type - doctor's appointment - the whole head is red
Susan Masterson, Ph.D. retweeted
“I love days like this. I love that they find me unexpectedly & unpredictably. I love this #feeling, this colorful explosion of *is*—of all there is & can be. I do my best to breathe it in deep": buff.ly/4bUGbSD by @kimkoehn17 #possibilities #LifeLesson #mindful #SelfLove
Susan Masterson, Ph.D. retweeted
Characteristics of the oral microbiota in patients with primary Sjögren’s syndrome
Study Results Key Points
• This study revealed differences in the oral microbial composition of patients with pSS compared to healthy controls.
#SS #sjogrens
buff.ly/3SsR1s8
Susan Masterson, Ph.D. retweeted
The Impact of the Mediterranean Diet on Telomere Biology: Implications for Disease Management-A Narrative Review buff.ly/3SFCxFl
Susan Masterson, Ph.D. retweeted
Reaching for that bag of chips after a stressful day at work might be driven by a combination of physiological and psychological factors, says Johns Hopkins dietitian Erin Gager. bit.ly/46Lt1X5
Susan Masterson, Ph.D. retweeted
The terms “complementary,” “alternative,” and “integrative” are continually evolving, along with the field. See how we at @NIH currently define them.
go.nih.gov/5TIdcs1
Susan Masterson, Ph.D. retweeted
#Stress, hormones, and even food can trigger a #migraine. Discover what treatment options may help you overcome the pain: bit.ly/4dbyB7S
#ChronicPain
ALT A person sitting on a green sofa looks distressed while holding a glass of water in a kitchen setting.
Susan Masterson, Ph.D. retweeted
Today is World Sjogren's Day in honor of Henrik Sjogren, who put the puzzle pieces together! Share this video to raise awareness of the disease. #Sjogrens #WorldSjögrensDay
Susan Masterson, Ph.D. retweeted
Read more on the latest study on oral microbiomes in those with Sjögren's as well as how you can sign up for the 3rd Annual Virtual Sjögren's Summit taking place this year on July 20-21. - autoimmuneregistry.org/newsl… #autoimmuneregistry #autoimmunedisease #sjogrens #summit
Susan Masterson, Ph.D. retweeted
💯🎯👇👇read the entire post. Every point is critical for clinicians to understand when dealing with complex chronic diseases like Sjogrens, MECFS, etc. @SjogrensForum @NeuroSjogrens @elisa_comer
Following our lively discussion on #stress and mind-body connection when it comes to #POTS or #LongCovid, here is my take on stress and some pointers to other physicians dealing with complex patients: #MedTwitter #NeuroTwitter
✔️ Stress is an important trigger for any chronic illness exacerbation.
✔️ Stress needs to be managed and reduced.
✔️ But living with a chronic illness that has no effective therapies is HIGHLY STRESSFUL
✔️ How do you reconcile this?
1⃣ Stop telling patients that their illness is CAUSED BY STRESS - most diseases are not CAUSED by stress.
2⃣ First, provide symptomatic control of physical symptoms - not a referral to a psychologist.
3⃣ LISTEN TO YOUR PATIENTS. Don't inject your own opinions and judgement. Most patients will tell you themselves if they are stressed or not. If they say they are not stressed, then don't push your narrative. They know better than their doctor if they're stressed or not.
4⃣ If there is comorbid anxiety, depression, PTSD, OCD and FND, then please by all means address that, but DO NOT use these comorbidities as an explanation of the chronic illness (e.g. your patient's 24-hr average heart rate of 100 bpm is not from anxiety, it's inappropriate sinus tachycardia so treat that!)
5⃣ If you're stuck with a complex patient, the best thing you can do for them is refer them out. It's OK to ask for help from your colleagues: none of us know everything.
6⃣ If all you have to offer to your patient with #POTS or #LongCovid is an antidepressant or psychotherapy, you're doing it wrong. Read this guidance statement to learn what to do and how to do it.
onlinelibrary.wiley.com/doi/…