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EDS Northwest (@EDSNW) profile picture

EDS Northwest

@EDSNW

EDS Northwest- coming soon-nonprofit 4 Ehlers-Danlos Syndrome Patients 2 advocate, awareness,educate, fundraise,research & treatment. Also @Sarestbearest

 Bellevue, WA
Joined January 2019
  • Tweets865
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  • Followers530
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Photo by EDS Northwest (@EDSNW)Photo by EDS Northwest (@EDSNW)Photo by EDS Northwest (@EDSNW)Photo by EDS Northwest (@EDSNW)Photo by EDS Northwest (@EDSNW)Photo by EDS Northwest (@EDSNW)Photo by EDS Northwest (@EDSNW)Photo by EDS Northwest (@EDSNW)Photo by EDS Northwest (@EDSNW)Photo by EDS Northwest (@EDSNW)
What a fantastic #RareDiseaseWeek2020 & plenty more posts & pictures to come when I’m home & can recover my left hand function. 💕🦓 #EDSZebraLife Thanks 2 @RareAdvocates @EveryLifeOrg and my excellent fellow #RDLAPatientAdvocatesWashingtonState #RareDC2020 #LobbyDayRDLA2020 – at Capitol Hill, Washington
Image from EDS Northwest (@EDSNW)
Image from EDS Northwest (@EDSNW)
Image from EDS Northwest (@EDSNW)
Image from EDS Northwest (@EDSNW)
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Disabling pain this week. Unable to do the tiny initiating movement to get myself up off a chair. Had to sleep on floor. Fun. Seems easier to talk about surgery, ambulance, cancer. But the stuff that actually cripples me… is easier to downplay than to explain. #NEISVoid #EDS
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Image from Ms Wheelchair USA (@MsWheelchairUSA)
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Sarah Tompkins, Ms. Wheelchair Washington USA, communes with nature as a form of #selfcare. Learn more at Facebook.com/MsWheelchairUSA #MWUSA #MWWAUSA #DisabilityPageants
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
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Sarah Tompkins, @SarestBearest Ms. Wheelchair Pacific Coast USA, shares about her time at the Akron Zoo during #MsWheelchairUSA!#DisabilityPageants #DisabilityPrideMonth #MWPCUSA @DaneFoundation @MsWheelUSA @_MatthewDHunt_ @taiskates @JeremyParsonsTV @dis_redefined @johncstorey
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We are so extremely excited to have Erica Myron as our 2021 titleholder! Thank you @people and @JeremyParsonsTV for featuring Erica’s incredibly story and the #MWUSA pageant, which celebrates the achievements of women with disabilities! #DisabilityPrideMonth
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Honored to have Erica Myron as our new @MsWheelchairUSA The 1st Native American, from Fort McDowell Yavapai Nation, to wear the crown!Erica’s determination to win MWUSA was evidenced in dedication & determination. #groundbreaking people.com/human-interest/er…

Wash. Mom Named Ms. Wheelchair USA Years After Brutal Attack Left Her Paralyzed: 'Keep Trying'

Erica Myron was determined to raise her son after being shot four times during a brutal attack in July 2003

people.com
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When people reach out to developers and corporations to advocate for accessibility features, we are often met with push back or silence in response. It’s frustrating but sometimes our community finds creative ways to create access in the meantime. (1/3)
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EDS Northwest retweeted
Stephanie Fischer (@RarePOV) profile picture
Stephanie Fischer@RarePOV22 Jul 2021
Great suggestion by @jamiemango for patient advocacy professionals to join nonprofit boards & to encourage colleagues across departments (including finance) to do so as well. Industry reps can learn challenges of nonprofits & the orgs can benefit from their guidance #DGEVENTS
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So grateful for this nomination! Thank you so much for this moving honor & nomination! 🙏🏻🦓❤️
Social Health Network (@socialhealthnet) profile pictureSocial Health Network@socialhealthnet8 Jul 2021
Replying to @EDSNW
@edsnw — Congrats, you've been nominated for Patient Leader Hero award! Check your email to claim your #WEGOHealthAwards nomination.
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EDS Northwest retweeted
Ambre (@Living_With_Dys) profile picture
Ambre@Living_With_Dys8 Jul 2021
Working on a Gastroparesis awareness project! #gastroparesis #gastroparesisawareness
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Here are the current standings for the People’s Choice Award. Keep voting for your favorite contestant. Mswheelchairusa.org/MWUSA #MWUSA #DisabilityPrideMonth #DisabilityTwitter #disabilitypageant
Image from Ms Wheelchair USA (@MsWheelchairUSA)
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Support your favorite contestant with a video shout out. thedanefoundation.org/events… #MWUSA #MsWheelchairUSA @DaneFoundation @MsWheelUSA @dis_redefined @_MatthewDHunt_ @KyleDHester @SACSconsulting @JeremyParsonsTV @peopletv @taiskates @1BrookeTaylor @PermobilCares @EllenDubinActor
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Happy #ResponsiblePetOwnersMonth! Sarah Tompkins, #MsWheelchairPacificCoastUSA, shares what her pet means to her on our latest Facebook post. Be sure to check out the lovely pics of Sarah and Wilson on their Roll ‘n Stroll. #DisabilityPageant #MWUSA
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
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It’s #RareDiseaseDay! Be sure to visit our Facebook page to read the stories of our contestants with rare diseases #ShowYourStripes #MWUSA #MWPCUSA #MWTXUSA
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
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We must help create the changes we want to see take place. Sarah Tompkins, Ms. Wheelchair Pacific Coast USA, is doing just that! Visit our Facebook page to read more @StricklandforWA @RepAdamSmith @RepKimSchrier @RepJayapal @SenatorCantwell @MurrayCampaign #MWUSA #MWPCUSA
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
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Happy Certified Nurses Day! Visit our Facebook page to read about how nurses have affected Sarah Tompkins’, Ms. Wheelchair Pacific Coast USA, life! #MWUSA #MWPCUSA #DisabilityPageants #CertifiedNursesDay
Image from Ms Wheelchair USA (@MsWheelchairUSA)
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Happy #EqualPayDay. Visit our Facebook page to read about why Sarah Tompkins, Ms. Wheelchair Pacific Coast USA, is sharing her experiences as a women with a disability on this day! #MWUSA #MWPCUSA #disabilities
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
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Happy #NationalSpanishPaellaDay! Visit our Facebook page to read all about Sarah Tompkins’, Ms. Wheelchair Pacific Coast USA, love for cooking! #MWUSA #MWPCUSA #AccessibleCooking
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
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Sarah Tompkins, Ms. Wheelchair Pacific Coast USA, says, “Finding rainbows after a storm is such a beautiful metaphor for living with Ehlers-Danlos Syndrome and disabilities.” Read more on our Facebook page. #NationalFindARainbowDay #MWUSA #MWPCUSA #EDS #disabilitypageants
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
Image from Ms Wheelchair USA (@MsWheelchairUSA)
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