EGA is a service for permanent archiving and sharing of all types of personally identifiable genetic and phenotypic data resulting from research projects.
Joined November 2015
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The third EGA newsletter is out 📬!
🚀 The #FederatedEGA Norway experience (@elixirnorway)
🧬 @cbioportal is now connected to EGA
💡 The Beacon Template UI is now available
🔎 How does EGA support rare disease research
Check the latest issue here: mailchi.mp/d663fe8c62dc/cbio…
📸 Kick-off of @SCAILED_EU!
We are proud to be part of this project, which aims to accelerate the development and deployment of AI and digital solutions in the European biotech sector by harnessing high-quality health data within the secure, interoperable framework of the #EHDS
The EU boosts AI-based healthcare innovation with the launch of the SCAILED project.
#SCAILEDEU will advance secure health data access and AI innovation across Europe.
➡️Read the press release: asebio.com/en/actualidad/pre…
🤝 Contributing to use cases, focusing on access and computational systems
⚖️Addressing regulatory and ethical challenges, supporting the legal integration of both current and future data infrastructures in the EHDS
We are thrilled to start working towards a future where health data can power responsible AI innovation in Europe 🙌
Read the press release here ↘️ asebio.com/en/actualidad/pre…
EGA archive retweeted
📢 SCAILED is officially under way!
Today in Luxembourg, partners from across Europe launch a project to support the secure and responsible use of health data and AI innovation in the #EHDS.
💡Funded by #EU4Health.
➡️Follow us to see how it unfolds.
#SCAILEDEU
EGA archive retweeted
EOSC-ENTRUST has published an opinion paper 🌟 highlighting the shared governance, policies and trust relationships needed to enable secure research 🔐 using #sensitivedata across organisations, countries and research domains.
Read the news 👉 loom.ly/aXdKkZE
EGA archive retweeted
🩺💬 How well do we understand medical terminology?
#HEREDITARY has launched a new citizen science questionnaire to explore how people understand health-related information and to identify ways to make medical terms clearer and easier to understand.
🔍 hereditary-project.eu/do-med…
We just wrapped up the first session we organised for the #IMPaCTdata 2026 workshops, and we couldn’t be happier!
💡This session, fully booked with over 40 participants, focused on breaking down the process of submitting data to EGA
Next week, we will host the @genomebeacons session, which will focus on its deployment and integration in the Beacon Network 🧬
We will share the materials from both sessions as soon as they are available!
🔎 If you would like to find out more about the #IMPaCTdata workshops, please visit: impact-data.bsc.es/news/2026…
EGA archive retweeted
📣 A new whitepaper sets out a vision for the Federated European Genome-phenome Archive (Federated EGA or #FEGA) and its role in the rapidly developing European and global ecosystem 🌍 for human #genomic and #healthdata. Read the news 👉 loom.ly/9dKqp8I #1MGenomes
⚠️ Dear EGA users,
We are currently experiencing issues with data upload and distribution due to an infrastructure issue affecting our service provider
Our teams are working to restore the affected services as soon as possible. Thank you for your patience and understanding!
💡 What happens after you deposit your data at the EGA?
#DataSharing can achieve the greatest results when combined with innovative and smart ideas! The data you submit to the Archive today can drive tomorrow's new research 🚀
5⃣ Recurrent mechanisms of biallelic epigenetic inactivation reveal new putative tumour suppressor genes in prostate cancer
📰 @NatureComms
nature.com/articles/s41467-0…
