Designing the first MAMS trial for patients with Parkinson’s disease, funded by the Edmond J. Safra Foundation led by @foltynie @UCL & @CamilleBCarroll @PlymUni
Joined June 2021
- Tweets180
- Following164
- Followers243
- Likes203
A special thank you to Professor Lucy Chappell, Chief Scientific Adviser for @DHSCgovuk & CEO of @NIHRresearch, for joining our panel: “What does success look like and how do we reach it?”
A very engaging & thoughtful discussion about the future of research and patient impact!💭
What a fantastic day at the EJS ACT-PD Annual Event! 🎉
Amazing to share the breadth of work taking place across EJS ACT-PD, as well as our exciting future ambitions #ParkinsonsResearch
Thank you to all our presenters, chairs, and attendees for making the event such a success!
Delighted to have our brilliant members and collaborators together for our 2026 Annual Event! Excited to share our progress and discuss next steps 🧠👏
Follow along on the thread below ⬇️
Very excited to be at the EJS ACT-PD @EJS_ACT_PD annual meeting today. Looking forward to lots of updates regarding how things have been going since the launch of this amazing mutli-arm clinical trial platform for #Parkinsons. @CamilleBCarroll & @foltynie are welcoming everyone
We’re proud that the EJS ACT-PD Initiative is a finalist for the Made with Patients Awards 2026 by PFMD! 🎉
Being recognised as a finalist reflects our commitment to embedding lived experience into research from the beginning!
#MadeWithPatientsAwards #ParkinsonsResearch
🚨 We are aware of issues with our usual registration of interest link for the #EJSACTPD trial. This is due to online updates.
If you’re interested in taking part, you can still register your interest using this link in the meantime:
🔗redcap.nuth.nhs.uk/surveys/?…
🎉 Over 2,000 people have joined JPR@Research+Me - connecting people with Parkinson’s to research opportunities.
Know someone with Parkinson’s? Signing up takes minutes.
🔗 Link in bio or scan the QR code
#JPR #ParkinsonsResearch #ClinicalTrials #ParkinsonsCommunity
🎥 Catch-up on the latest @PDFrontline webinar!
🧠 Learn about the #EJSACTPD trial, how you can get involved, and how our study fits into the wider Parkinson’s research landscape.
➡️ Watch here: youtube.com/watch?v=nwTcQESM…
#ParkinsonsResearch #ClinicalTrials #PDFrontline
EJS ACT-PD retweeted
@CureParkinsonsT provided an event themed on MAMS Platforms (Multi-Arm Multi-Stage Trials).
Two prominent MAMS Platforms that had presentations at this event were EJS ACT-PD (we are providing the genetic sequencing) and SLEIPNIR (Norway).
#parkinsonsresearch #parkinsonsdisease
We’re hiring a Clinical Research Associate (Fellow) at Newcastle University!
This is an exciting opportunity to join the #EJSACTPDtrial team and contribute to cutting-edge clinical research.
Apply by 25 November 2025!
🔗 jobs.ncl.ac.uk/job/Newcastle…
#ClinicalResearch #AcademicJobs
Joe Gregory is not just living with Parkinson’s — he’s helping shape the future of #Parkinson’s research.
Read how this #EJS ACT-PD Community Advisory Panel member is making an impact:
🔗ucl.ac.uk/brain-sciences/new…
🔍 Interested in Parkinson’s research? Check out this funded #PhD opportunity @UniofNewcastle
“Perceptions of digital outcome measurement in Parkinson’s disease”
Read more below:👉 findaphd.com/p188603
📅 Apply by 12 Jan 2026
EJS ACT-PD retweeted
HUGE news: The @EJS_ACT_PD multi-arm, multi-stage clinical trial platform for #Parkinsons is now live & recruiting! They are looking for 1600 participants, who will be randomised across 4 arms (3 diff. drugs & a placebo).
Want to get involved in research?
Here is an opportunity:
We’re excited to announce that recruitment for the first multi-arm, multi-stage (MAMS) platform for Parkinson’s in the UK – @EJS_ACT_PD – is open. This project will continuously test new therapies that could impact Parkinson's progression: buff.ly/W7eqbec #ejsactpd
We are excited to share the news that the #EJSACTPD trial has officially launched to recruitment! 🎉
Read more below about the worlds largest-ever clinical trial to stop or slow #Parkinsons and how you can get involved: ⬇️
#ParkinsonsResearch
🧵1/ The world’s largest-ever clinical trial to slow or stop Parkinson’s disease has officially launched — led by researchers at @UCLIoN and @UniofNewcastle. A major milestone in the fight against neurodegeneration.
ucl.ac.uk/news/2025/oct/larg…
EJS ACT-PD retweeted
We’re incredibly proud to be supporting and co-funding the largest ever UK Parkinson’s research trial, which will test treatments that have the potential to stop or slow Parkinson’s progression. Carroll from the planning team is here to tell you more 👇
prksn.uk/4n4wDKs
EJS ACT-PD retweeted
We’re excited to announce that recruitment for the first multi-arm, multi-stage (MAMS) platform for Parkinson’s in the UK – @EJS_ACT_PD – is open. This project will continuously test new therapies that could impact Parkinson's progression: buff.ly/W7eqbec #ejsactpd
🧠 “The JPR registry will revolutionise how people like me find out about research.” – Phil, who has Parkinson’s & helped design JPR.
Help us connect more people to studies!
📰 Read more: tinyurl.com/JPRRegistry
🔗 Sign up here: redcap.link/jpr1
#ParkinsonsResearch
EJS ACT-PD retweeted
Great meeting at the Crick today. @EJS_ACT_PD promises to be a game-changing trial platform. Grateful for the meaningful support to deliver the study in Scottish sites. @NRS_NDN @AnneRowlClinic @EdinburghParki2 @ParkinsonsUKSco @GordonWDuncan
Very excited to be at the @EJS_ACT_PD annual meeting today - an extremely ambitious & exciting new multi-arm, multi-stage clinical trial platform for testing potentially disease modifying therapies for #Parkinsons - @CureParkinsonsT is proud to be one of the funders involved
EJS ACT-PD retweeted
Very excited to be at the @EJS_ACT_PD annual meeting today - an extremely ambitious & exciting new multi-arm, multi-stage clinical trial platform for testing potentially disease modifying therapies for #Parkinsons - @CureParkinsonsT is proud to be one of the funders involved
Want to get involved in Parkinson’s Research? 🔊
Research+Me has launched 'Join Parkinson’s Research' (JPR@Research+Me) - a new online registry aiming to connect people with Parkinson’s to research opportunities!
👉 Register today at redcap.link/jpr1 or scan the QR code:
