Emy with ME

of course ww will drive to michaels and make a fuckass friendship bracelet before wearing a mask to signal safety and solidarity lmao

Metrodora has hidden my Google review. Good thing I screen capped it! They also deleted my sister’s review. Way to target us…if you’re still curious about this place, please listen to the negative reviews like mine. Ask yourself why they got rid of this:

Urgent need for help: The situation is very dire. I'm really afraid Is there any doctor, researcher or parent that is familiar with my situation and very severe me willing to have a video call with me and a local doctor? Or get in contact with the local doctor to discuss my conditions and why its urgent for him to very strictly speak to my parents and explain why: I should ASAP be moved and have a fulltime carer ME can get extremely severe What PEM is What kind of care a very severe patient needs Ethics, support and empathy towards me/cfs and long covid patients How patients are being mistreated globally Basic aspects of comorbidities That many patients have structural issues and need to travel abroad There is no financial support from the government I need an advocate with knowledge and if there is also experience, even better. I saw some very respected names have signed the letter to the hospital when I was involuntary hospitalised. Could someone please be my advocate and so can have a group call? The doctor has studies in England, he has no knowledge but has basic empathy and will to help. #mecfs #severeme #pwme #longcovid

So I’ve been quiet on here lately as I’ve been dealing with life, and in particular moving to a new apartment to avoid newly discovered #ToxicMold in my parents’ house. Ironically, I now believe I’m suffering from EMF sensitivity. It seems like no matter what I do, I can’t win. Any recommendations on the best meter to read EMF levels? I want to target my EMF remediation to eliminate the largest sources first. I suspect the main culprit is the wifi router which has an unfortunate placement of being directly behind my bed in the closet (only location it can go). I plan to shield that, but I need to figure out what else is problematic. Any other recommendations would be much appreciated as this is a new area for me! #ME #MECFS #LongCovid #EMF #EMFsensitivity

So I’ve been quiet on here lately as I’ve been dealing with life, and in particular moving to a new apartment to avoid newly discovered #ToxicMold in my parents’ house. Ironically, I now believe I’m suffering from EMF sensitivity. It seems like no matter what I do, I can’t win. Any recommendations on the best meter to read EMF levels? I want to target my EMF remediation to eliminate the largest sources first. I suspect the main culprit is the wifi router which has an unfortunate placement of being directly behind my bed in the closet (only location it can go). I plan to shield that, but I need to figure out what else is problematic. Any other recommendations would be much appreciated as this is a new area for me! #ME #MECFS #LongCovid #EMF #EMFsensitivity

wept, anxiety attacks, nightmares and more!

Tomorrow I'm trying one last time to explain to my father what I'm going through. I'm sure he will again choose to not believe me but I will try one last time. If you have any article about parents helping their children with severe me or long covid, articles with mistreatment in hospitals or small videos you think someone who totally gaslights could see (I will put them in a translate app) please comment them down below. For the last days, I'm trying to go to the bathroom in the morning as always. My mother intentionally has every window in the corridor open (if it's the night every light). I get so much worse by going through it alone being in severe pain that as soon as I get back to my bed I collapse, I get into paralysis mode and I can't even move my hands to eat or speak. I'm getting worse and worse. And they don't care about it. They didnt see it, didn't believe what I went through in the hospital and now continue to treat me the opposite of what I need. I'm really afraid. #SaveKatiana #severeme #mecfs #pwme #longcovid

Choosing to leave academia is not the same as quitting science 💀

Heads up, now Dr. Goodman is leaving Metrodora & they are cancelling your appts w him. Same thing happened w Maitland. I hope Metrodora can get the excellent docs back. Meanwhile I'll be in Salt Lake with just free time now. Any suggestions re what to do/see in SLC Utah?

Thank you to everyone who supported me. Here's what happened over the last few days. ❤️‍🩹 Ευχαριστώ όλους όσους με στήριξαν. Παρακάτω αναλύω τι συνέβη τις τελευταίες μέρες. ❤️‍🩹 #SaveKatiana #mecfs #severeme #longcovid #longcovidgreece