Senior Director of The Leukemia & Lymphoma Society's Equity in Access Research Program

Tuscaloosa, Alabama
Joined December 2018
.@LLSusa—and nearly 80 other organizations—are on a mission to ensure that kids with cancer are Congress's first priority in 2025. Want to help? Retweet this post to spread the word! Learn more about the policies ➡️ msg.lls.org/4iXTEhl #KidsDeserveBetter
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Not every study needs to have a power analysis, but every study needs a sample size justification. I discuss 6 approaches, and 6 ways to think about which effect sizes are of interest in the study you are planning. online.ucpress.edu/collabra/…
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Kids with cancer are counting on all of us. ❤️ Let’s ensure five important childhood cancer policies are included in a final Congressional package! RT to spread the word 🔁 @LLSAdvocacy
Earlier this week, Congress was considering a bill that included 5⃣ critical childhood cancer policies—but they were cut. Congress shouldn’t go home without getting these pediatric cancer policies to @potus’ desk. Kids with cancer can’t afford to wait. #KidsDeserveBetter (1/4)
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What an unforgettable #ASH24! 🎬 ✨ From groundbreaking research presentations to inspiring innovation, this year’s conference highlighted the incredible progress we’re making in advancing care for blood cancer patients and survivors. 🩸💡 We’re inspired by the discoveries shared and hopeful for the future of #BloodCancer treatment. Extra #ASHKudos to our researchers and partners who are driving progress every day. See you next year at #ASH25! ❤️ @ASH_hematology
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The future of #BloodCancer research is bright!💡🙌 Last night, we acknowledged the incredible work of our LLS Career Development Program Achievement awardees during #ASH24. 🎉 🔬 @Elvin_Wag of @IcahnMountSinai 🔬 @DanPollyea of @CUAnschutz 🔬 @melo_cardenas1 of @NU_Pathology 🔬 @AshAlizadeh of @Stanford & @StanfordCancer Congratulations to these extraordinary researchers! 👏 Learn more about their work 👉 bit.ly/3ZUuh8R @ASH_hematology
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RT @LLSusa: Congratulations to our LLS Excellence in Scientific Service awardees, @jdlicht of @UFHealthCancer and Dr. Susan O’Brien, former…
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Kids with cancer who need specialized cancer care are facing unnecessary treatment delays. #KidsDeserveBetter and we have a solution—but Congress is running out of time to pass it. Tell Congress to support the Accelerating Kids' Access to Care Act today: msg.lls.org/3OHmPal
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Corporate hospital systems are gobbling up doctor offices & independent hospitals nationwide. It feels like they can charge patients whatever they want. But there's hope! Lawmakers can stop price gouging and lower patient costs. Urge them to help ⬇️ msg.lls.org/417kNIn
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About 100 million people in the U.S. have medical debt – and it can be crippling. But there's good news, too: states are passing laws to protect patients from the harmful effects of medical debt – and many have strong, bipartisan support. npr.org/sections/shots-healt…
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Ensuring that our nation's laws & regulations are in the best interest of blood cancer patients & their families will always be our top priority. We are committed to elevating the voices & needs of patients and look forward to continuing that work in all levels of government.
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“The care that we give to people who are experiencing homelessness — not just in cancer — is so different ... It’s not because we want to give different care, but because there’s a lot of barriers." Dr @KShah0520 @GoHealio 👉healio.com/news/hematology-o… 📄jamanetwork.com/journals/jam…
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Stay informed with the latest Medicare updates for 2025! 🎙️ Brian Connell, LLS VP of Federal Affairs, explains key changes for cancer patients on our latest podcast episode. Tune in for tips on how to benefit 👉 bit.ly/483mDLC
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Yesterday, a new Minnesota law went into effect to protect patients from the harmful effects of medical debt. It bans: ❌denial of medical care due to unpaid debt ❌ reporting medical debt to credit bureaus ❌transferring medical debt to a spouse More ⬇️ kare11.com/article/news/loca…
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When Nathan endured complications from cancer treatment, his parents could not bear to leave his side. Unable to work, they were overwhelmed with medical bills. We're committed to lowering the cost of care so families can focus on what matters. Join us: lls.org/raiseyourvoice?sourc…
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This childhood cancer awareness month please check out survivor Auburn’s story, for whom I had the privilege to care. Thanks @ConquerCancerFd for shining a lot on her bravery and grace. @UFHealthCancer @UFProtonTherapy
As a high school senior with a bright future ahead, Auburn was diagnosed with Hodgkin Lymphoma. After 6 days in the ICU, Auburn & her physician @raymailhotvega, armed with Conquer Cancer-funded research data, designed a treatment plan resulting in her status today as cancer-free.
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On #NationalWomensEqualityDay, we celebrate the incredible work of these advocates! ♀⚖️🗣️ They are driving crucial changes in blood cancer care, ensuring equitable access and protection for all patients. Thank you to these powerful women for shaping a better future for blood cancer patients nationwide. 🌟 #WomensEqualityDay @LLSAdvocacy
This #WomensEqualityDay we’re highlighting #BloodCancer advocates like Becki, Jan, Jill, Katina, Mary, and Wanda. Together, they envision a better system, and use their personal stories to influence lawmakers and shape legislation to make that vision a reality. (1/3)
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UNITED in mission! ❤️ It’s #NationalNonprofitDay, and we would like to thank you for rallying with us to transform the lives of those facing #BloodCancer. With your help, we’re able to provide even more research, patient support, and advocacy. Your donation today continues our legacy of improving the lives of patients, loved ones, and survivors 👉 bit.ly/3SVH8Ui
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Confused or intimidated by the word "advocacy"? @LLSusa President and CEO E. Anders Kolb, M.D. has you covered. In a recent interview with @SocialDriver / @afshop, he shares what it is – and how it helps patients. Tune in to learn more ⬇️ youtu.be/o7Rd6qZ768U?t=1235
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💬 “Financially, I feel hopeless and ashamed because six years ago, my body betrayed me, and now, I cannot afford to keep up." - Amanda Schlesier, LLS New Jersey Advocacy Leader 💰 Over the last 12 months, LLS helped secure new laws in 10 states that will protect patients from medical debt – a financial burden they face through no fault of their own. Read more on our latest blog ➡️ bit.ly/4cc5mQX
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