favo_en (@FAVO_en) header
favo_en (@FAVO_en) profile picture

FAVO brings together more than 500 #cancer patients organizations in #Italy, ensuring their voice is represented with health stakeholders and with institutions

Joined October 2014
Photo by favo_en (@FAVO_en)Photo by favo_en (@FAVO_en)Photo by favo_en (@FAVO_en)Photo by favo_en (@FAVO_en)Photo by favo_en (@FAVO_en)Photo by favo_en (@FAVO_en)Photo by favo_en (@FAVO_en)Photo by favo_en (@FAVO_en)Photo by favo_en (@FAVO_en)
favo_en retweeted
💪💥Proud that the voice of #cancer patients is represented in such an high-level congress! Our President #DeLorenzo kicked-off the session on Precision Oncology and #biomarkers, key topics of both the EU Cancer Plan and Cancer Mission! 🎯🇪🇺 @uicc @cancereu #worldcancercongress
This quoted post is unavailable.
2
3
ECPC @cancereu session at @UICC congress 2day: #PrecisionOncology & #Biomarkers: Opening new Therapeutic Avenues for cancer patients F de Lorenzo presented ECPC involvement in #personalized med & biomarkers N Normanno: PRECISION ONCOLOGY AND BIOMARKERS: A BRIDGE TO THE FUTURE
This quoted post is unavailable.
1
2
The European Cancer Patient Coalition - ECPC @cancereu welcomes its new Board of Directors and its new Audit Committee for the mandate June 2022-May 2025 We wish them all a good start & look forward to welcome them in Brussels at the ECPC AGM on May 28 ecpc.org/elections/
1
7
15
Are you a patient diagnosed with a #desmoid tumor BEFORE or DURING #pregnancy? If your answer is YES, please take part of this new international study. Go on our website for more info: desmoidfoundation.org/en @IstTumori @alegronchi @FioreDoc @SBonvalot @GladdyLab @chandrajitraut
Thank you to all the women who continue to play a vital role in the fight against lung cancer, whether as healthcare professional, scientists, caregivers, advocates or simply patients. #InternationalWomensDay #ChooseToChallenge #lungcancer #ManyFacesOneVoice
1
5
Are you a patient diagnosed with a #desmoid tumor BEFORE or DURING #pregnancy? If your answer is YES, please take part of this study. You will find the form to fill out on our website: desmoidfoundation.org/en Support #research! #df #desmoidfoundation #RareDisease
1
5
5
11
President of @favo_it Francesco de Lorenzo presents JARC recommendations that were launched last year: bit.ly/3kiu20A "Without application of the cross-border healthcare directive, there is no hope #rarecancers" #RareCancerDay
4
1
12
Prof Francesco De Lorenzo, past President ECPC @cancereu, talking on #rarecancers, stressed the importance of #ERNs & urged the Council to proceed to the implementation of the cross border health care #ChallengeCancerIntergroup @FAVO_en
🎯FAVO was a pioneer in #Italy in highlighting the importance of cross border health care in #cancer care. This needs to be at the top of #EU agenda, especially for diseases that require an high level and very specialized care, such as #RareCancer. #RareDiseaseDay @ChallengeCAN
Prof Francesco De Lorenzo, past President ECPC @cancereu, talking on #rarecancers, stressed the importance of #ERNs & urged the Council to proceed to the implementation of the cross border health care #ChallengeCancerIntergroup @FAVO_en
1
1
An agenda on rare cancers was perceived as instrumental to prioritise rare cancers in the agenda of the EU 🧐 #RareDiseaseDay What are the next steps? Do not miss this interesting discussion on the implementation of the Rare Cancer Agenda 2030 👉🏻 bit.ly/37alhAm
2
3
💥Today our president De Lorenzo will attend the webinar 💻"EU Joint Action on Rare Cancers recommendations towards implementing the Rare Cancer Agenda 2030”. 💪Very excited to be there! #RareDiseaseDay #RareCancer To join the discussion see below ⏬
Tomorrow MEPs, experts & patient advocates will discuss the roadmap to be followed in the implementation of the Rare Cancer Agenda 2030. Have you not registered yet? Join us! bit.ly/37alhAm #RareDiseaseDay
2
3
💥Very happy to be represented in such an high-level debate! #Cancer patients really welcome the "EU Beating cancer Plan"!🇪🇺 @kgapo @bobpersio @EIannelli @DesmoidI @CodiceViola @Rete_Sarcoma_It @LungCancerEu @WorldBladderCan @PCE_Association @MyelomaEurope @BreastPatiet @cancereu
Don’t miss the #ESMO Public Policy Webinar ‘Europe’s Beating Cancer Plan – in 60 Minutes’ on 15 February 15:30-16:30. More info 👉 ow.ly/CoOf50DyNmO. Registration 👉ow.ly/34SQ50DyNmN @cancernurseEU @EU_Health @EFPIA @cancereu
3
8
🗓️On monday 15 feb our president will attend as a speaker at the @myESMO webinar "Europe’s Beating Cancer Plan - in 60 minutes". Proud to get involved in such an high level debate on the new EU strategy to beat #cancer 🇪🇺🎯! Info & registration ➡️bit.ly/37dFO7d
2
3
Εlisabetta Iannelli @EIannelli, Lawyer,cancer survivor,Vice President AIMAC @aimac-Secretary FAVO @FAVO_en,both long standing members of ECPC @cancereu,was nominated by the Italian President Mattarella Commander of the Order of Merit" of the Italian Republic! Congratulations!
Il riconoscimento del Presidente #Mattarella @Quirinale è una grande emozione per una OncoVeterana come me che ha desiderato da sempre di essere motivo di speranza x i #malati di #cancro e che ha potuto impegnare la propria extra life (la vita dopo la diagnosi) nel #volontariato
2
3
⚠️In the fight against cancer being fast and effective is crucial. It is not acceptable that pricing and reimbursement mechanisms cause delays in access to innovative drugs, which can cost cancer patients' life years!
Prof Uuyl de Groot believes that we start by lowering first the prices of the drugs F. de Lorenzo change the model of pricing and reimbursement -
1
2
Now Prof. Francesco de Lorenzo will present now the patient perspective on Prof. Uul de Groot lecture "For the first time we have data for late access to new cancer medicines that may cost life years"
1
2
💥Today join the @cancereu webinar on Head&Neck #cancer. A chance to hear the last news about #EarlyDiagnosis and treatments. 🗣️Speakers: @CristianSBusoi, @licitra_lisa, A. Trama (@IstTumori), @claraz64. The fact that will be chaired by @bobpersio it's of course a plus!🙂. Info⤵️
Honoured to be chairing this webinar for @cancereu on Head&Neck #cancer with MEP @CristianSBusoi , @licitra_lisa , Annalisa Trama (@IstTumori) and @claraz64. We raise awareness for early diagnosis and to improve outcomes for patients. Join us! cc @favo_it @ailar_it @MakeSenseCmpn
1
2
⚠️📢Today is the world #PancreaticCancer Day! It is crucial to promote the awareness of the signs and symptoms, to foster #EarlyDetection and #EarlyDiagnosis. 📽️Watch and share this short video: ⏯️vimeo.com/473081768 @worldpancreatic @worldpcc #ItsAboutTime #WPCD @cancereu
My message to @CancerLeagues 40th annual conference ➡️ With #EUCancerPlan, we are embarking on a journey to improve the life of cancer patients and families across 🇪🇺. We need the support of all cancer organisations in this process. Together we can make a difference #ECL2020 – at Brussels, Belgium
97
41
6
162