Rebecca Farr-Barron retweeted
“When we say PANS is hard we mean it is really, really, really hard” #PansPandasHour
Rebecca Farr-Barron retweeted
Having had a child struggling with MH set on wrong treatment pathway for 2.5 years causing exacerbation of symptoms, I'd signpost others, dependent on onset/symptoms to
@PandasPans🤞🏻their child could be saved from unnecessary suffering #PansPandasHour panspandasuk.org
Rebecca Farr-Barron retweeted
Really does illustrate horror our children face with #Pans #Pandas Makes me cry as suffering is unnecessarily prolonged due 2 current issues around diagnosis & treatment resulting in delays that so often cause irreparable damage & childhoods lost🤞🏻change is coming #PansPandasHour
Rebecca Farr-Barron retweeted
This is #Pans #Pandas Change is long overdue leading 2 unnecessary suffering. So much is lost for everyone connected 2 the child but the greatest tragedy is loss of a childhood that can never be replaced or compensated for! Left untreated continues 2 adulthood #PansPandasHour👇🏻😔
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Rebecca Farr-Barron retweeted
Courage is needed 2 bring change!Courageous is
@PandasPans working tirelessly along with a few trailblazers & medical professionals prepared 2 put heads above parapet 2 help families suffering with #Pans #Pandas leading the way for which we are eternally grateful #PansPandasHour
Rebecca Farr-Barron retweeted
Lovely recognition for the
@PandasPans Youth board! Despite their own struggles continue to advocate for others and raise awareness #PansPandasHour Read all about their work here👇🏻 panspandasuk.org/post/recogn…
Rebecca Farr-Barron retweeted
Everything starts with awareness without which the correct treatment can neither be sought or given.Awareness is the key 2 change & with the growth of that awareness resistance 2 change must cease!Further generations should not be allowed 2 succumb 2 #Pans #Pandas #PansPandasHour
Rebecca Farr-Barron retweeted
We need more awareness and education in general around #Pans #Pandas so those suffering and their families can receive greater understanding and support #BeKind #PansPandasHour
Rebecca Farr-Barron retweeted
Wonderful to see @thetimes recognising @PandasPans the childhood condition in need of firm treatment guidelines apple.news/AFoFfktTfSLe8WyAU…
Rebecca Farr-Barron retweeted
Awareness that an infection &/or a Virus can trigger inflammation of the brain & body is vital.
Too many children, adults are misdiagnosed 😢
#Strep #Lyme #Covid #PansPandasHour #MentalHealthAwarenessMonth
Rebecca Farr-Barron retweeted
Media spotlight could signpost parents of children suffering 2 charity @PandasPans where wealth of information/support. Can also find comfort in support group currently lifeline to 6.2K families all with children suffering. Not rare!🙏🏻RT #PansPandasHour panspandasuk.org
Rebecca Farr-Barron retweeted
Important information to share with your viewers @BBCBreakfast @DrNighatArif @sallynugent @TVNaga01 #PansPandasHour
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Rebecca Farr-Barron retweeted
The PANS/PANDAS flowchart does not stop at a diagnosis. Once the evaluation is completed, determine the severity & treat per appropriate treatment chart. pandasppn.org/flowchart
Rebecca Farr-Barron retweeted
Awareness that an infection &/or a Virus can trigger inflammation of the brain & body is vital.
Too many children, adults are misdiagnosed 😢
#Strep #Lyme #Covid #PansPandasHour #MentalHealthAwarenessMonth
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Rebecca Farr-Barron retweeted
Once I heard about #Pans #Pandas & realized my child could be affected by 1 of these conditions I was lucky 2 have a wonderful GP prepared to listen! Sadly for 1000's of families facing this battle they are not so fortunate.They are generally met with disbelief #PansPandasHour👇🏻
Rebecca Farr-Barron retweeted
Awareness imperative! Need media in all forms 2 shine spotlight so all parents can be conscious of #Pans #Pandas so not left bewildered/misinformed as 2 what is happening to their child. Also 2 bring change 2 how conditions are diagnosed/treated #PansPandasHour
Rebecca Farr-Barron retweeted
Wonderful News! #PANS and #PANDAS featured in Contact’s A-Z of Medical Conditions @BBCBreakfast @DrNighatArif @TVNaga01 @sallynugent #PansPandasHour
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