FND Warrior 💪🇬🇧 Down, but not out! Bringing more awareness to the debilitating effects of Functional Neurological Disorder (FND) Coffees warmly welcomed 👇
London, UK
Joined May 2022
- Tweets597
- Following4K
- Followers1.3K
- Likes740
Fightback Against FND retweeted
"Disabled people should have been at the heart of the matter from the beginning"
Comedian Roșie Jones says the government "never considered the real effect" that the proposed welfare reform would have for disabled people
#BBCLauraK bbc.in/4lqTJud
Fightback Against FND retweeted
Today I submitted the PhD 😱 "Dissociation, Brain Function and Inflammation in FND". It's been a long 6 yrs! I'm so grateful for all of the support I've had through this🥹 Special shout out to the #FND community who supported this to the end!
#fndresearch #phdsubmission
ALT Cheesy shocked picture of me holding a printed copy of the thesis and looking shocked
Have just finished a course of Cognitive Behavioural Therapy (CBT) aimed at treating Non-Epileptic (Functional) Seizures (NEAD), and I honestly don't feel any better.
If anyone else has tried CBT for NEAD/NES, did it help? 🤔
16%Yes
84%No
19 votes • Final results Fightback Against FND retweeted
1/11 I am pleased to share the results of my empirical project from clinical psychology training, which has been published in @EpilepsyBehavi1
@DCGillespie_PhD @jonstoneneuro @KealPsych @greenplanetfish
#FND #Neuropsychology #ClinicalPsychology
doi.org/10.1016/j.yebeh.2024…
Fightback Against FND retweeted
🗣 New FND research💡 update!
After a successful launch in Australia, FND Research Connect is going global 🌐. FND Research Connect aims to bring together 👐 people affected by Functional Neurological Disorder and researchers. By signin🗣 New FND research💡 update!
[1/n]🧵
Fightback Against FND retweeted
Please help me make a disabled sports magazine as nothing exists out there.
I can capture the photos, now I need help in funding the first issue with people and printing cost can you help?
Please share /retweet as far as possible
Thank you
gofund.me/0666340f – at London, England
ALT Michael holding a camera and looking for the next action shot on the pitch wearing a red jacket, white tabard and ear defenders for a 51,000 crowd noise and music
Fightback Against FND retweeted
Each individual living with #FunctionalNeurologicalDisorder (#FND) will experience different symptoms.
Watch our series of videos and learn about the different strategies you can use to help improve your symptoms.
Find out more: buff.ly/40fFdMM #FNDaware @BrainAppeal
Fightback Against FND retweeted
It’s senior neuro OT education time at the Wolfson. This month: FND across the pathway. First up is Aoife Sheehy with the consensus guidelines by @CNicholsonOT and colleagues
Fightback Against FND retweeted
“Cadenza” is my deep-dive essay on the history, biology, and social impact of FND.
Please consider checking it out if you haven’t already.
Many people have this condition and have been abandoned by medicine. This is my best attempt to tell the story.
medium.com/@fndportal/cadenz…
Fightback Against FND retweeted
Congratulations @S_R_Blanco - a powerful step forward for FND
It's official.. TEDx have released my Talk "why is Functional Neurological Disoreer so poorly understood". #fnd community I hope you will join me in sharing this. This one is for all of us with FND. Link here: youtu.be/sRwy8z8Fmww?si=IxY0…
Fightback Against FND retweeted
RESEARCH CALL-OUT 🚨
An Exploration of Self-As-Context in Individuals with Functional Neurological Disorders.
If you’re interested contact the researcher via their email address.
Fightback Against FND retweeted
Can anyone help @GeecheeThreat here with this, is there any research in this area? @AlanCarson15 @jonstone @SelmaAybek @PerezMGHLab @SarahLidstone @Tim_R_Nicholson @ZacharyGrinDPT @painphysio @BibaStanton @DevonOship @LaFaverMD @susannah_pick @popkirov
Fightback Against FND retweeted
📚 Discover the FND Resource Library!
This is a curated selection of journal articles and video lectures in the field of FND - available to all FNDS members! Ideas for learners and health professionals who want additional resources.
Check it out here: fndsociety.org/members/fnds-…
Fightback Against FND retweeted
An excellent collection of new papers on FND. If you can’t access then consider emailing the corresponding author
Sharing our 13-article volume on Functional Neurological Disorder in @ClinicsReviews. Great working alongside #SaraFinkelstein as co-editors, and a MAJOR THANK YOU to our international panel of co-authors! Check it out. 1/14 @FNDSociety @FNDHope @MGH_RI
neurologic.theclinics.com/ar…
For any GPs and Healthcare Professionals out there, this thread is definitely worth a read 🧵
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My latest order from @PaiSkincare arrived completely wrecked during transit. The product had leaked all over the inside of the box so the postie had to stick it in a plastic bag before delivering. A very disappointing (and costly) mess.
Fightback Against FND retweeted
People with FND deserve:
* to have our disorder recognized as real and valid
* to be recognized as peers in the disability community
* to have space to share our experiences so that others may learn
* medical treatment that supports our personal agency and quality of life
Fightback Against FND retweeted
RESEARCH CALL 🚨
Regional disparities in access to FND treatments in the UK and their implications for mental health.
Follow the link below or the QR code on the flyer.
Please share as far and wide across the UK as you can🙏
nupsych.qualtrics.com/jfe/fo…
Fightback Against FND retweeted
There are huge regional disparities in FND care in the UK. But it would be really helpful to have more research documenting that
If you have FND please help with this research whether you’ve been able to access care or not.
RESEARCH CALL 🚨
Regional disparities in access to FND treatments in the UK and their implications for mental health.
Follow the link below or the QR code on the flyer.
Please share as far and wide across the UK as you can🙏
nupsych.qualtrics.com/jfe/fo…