Our mission is to cure Hao-Fountain Syndrome. We do this by funding research and identifying more patients. https://teapawt.net/t.co/k9ugviDUKH
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Joined June 2017
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Our latest newsletter is out! Make sure to check it out today. #usp7 #hafous #haofountainsyndrome
usp7.salsalabs.org/november2…
Hao-Fountain Syndrome retweeted
We are proud to announce the 2026 Young Investigator Draft Class!
10 Researchers. $200,000 in seed grants. Endless potential for tomorrow.
Join us to celebrate:
charity.pledgeit.org/YID2026
We are excited to announce our collaboration with @UpliftingAth to award Emilie Korchak a $20k grant in support of her Hao-Fountain Syndrome research! Join us in celebrating Emilie at the Young Investigator Draft on January 31! #YID26 bit.ly/yid2026
We can’t thank our researchers enough! We love you! @TTUVetMed @klementinafontacer #RareDiseaseDay2025 #haofountainsyndrome #RareDiseaseDay #usp7
Hao-Fountain Syndrome retweeted
Very happy to share our new collaborative paper describing a key role for USP7-PRC1.1 in neural differentiation, now in @GenesDev
And congratulations to the PhD student, Axelle, on her 1st research paper.
#USP7 #epigenetics #neural @FoundationUSP7
m.genesdev.cshlp.org/content…
Registration for our 2025 Hao-Fountain Syndrome Symposium and Family Conference is open. usp7.org/register #hafous #usp7 #conference
Hao-Fountain Syndrome retweeted
new international collaborative work incl our group on Hao-Fountain syndrome and the mechanisms underlying USP7 published in Genes & Development
#raredisease #USP7 #epigenetics #drosophila #neurons @JeffreyHaren @YAtlasi, Peter Verrijzer, @druoph @FoundationUSP7 @ErasmusMC
Save the date! Our 2025 Symposium and Family Conference will be held September 18-19 in Nashville. Registration will open in February. #usp7 #hafous #symposium #familyconference
Riley’s Journey is written from her mother's perspective, chronicling the journey to Riley's diagnosis of Hao-Fountain Syndrome. Visit usp7.org/blog/rileysjourney
#raredisease #usp7 #haofountainsyndrome
We still have sponsorship opportunities available for our upcoming Hao-Fountain Syndrome Symposium and Family Conference.
Sponsorships will directly contribute to the success of this event. We are offering five levels of sponsorship. Visit lnkd.in/ekZNBTqT
Attending our Symposium and Family Conference on September 24? If so, make sure to book your hotel room by tomorrow, September 2nd, to get our exclusive rate of just $209 per night! Book now to take advantage of this exceptional rate. hyatt.com/en-US/group-bookin…
#familyconference
Our conference is just around the corner! Make sure to register today and book your room before September 2nd to ensure you get our exclusive room rate of just $209 per night! We can't wait to see you at the Grand Hyatt Atlanta on September 24th. usp7.org/2024-symposium
One of our beautiful Hao-Fountain Syndrome Warriors, an amazing young woman from Australia is running a 10k in honor of Hao-Fountain Syndrome and raising funds for research. Show her your support by making a donation today: usp7.salsalabs.org/tanaefund…
#usp7 #hafountainsyndrome
Just launched in our merch shop - 2024 Hao-Fountain Syndrome conference shirts and tote bag! Order today. #symposium #familyconference #usp7 #haofountainsyndrome
bonfire.com/store/foundation…
Be part of something amazing! Join us for our 2024 Hao-Fountain Syndrome Symposium and Family Conference in Atlanta on September 24. Register today! usp7.salsalabs.org/2024Sympo…
#HAFOUS #raredisease #HaoFountainSyndrome #USP7 #symposium #familyconference #atlanta
Our Lunch and Learn is on the calendar! Join us on June 17 for an amazing session all about precision medicine. Click the link to learn more and to sign up today! You won't want to miss it! usp7.salsalabs.org/lunchandl…
#usp7 #hafous #haofountainsyndrome #lunchandlearn
Calling all Hao-Fountain Syndrome families in the United States! Are you interested in learning more about your child's disease while also helping advance scientific research? Consider donating your child’s blood sample to an anonymous biorepository. usp7.salsalabs.org/researcho…
Recently diagnosed? Sign up for our New Family Orientation and Information Zoom Session on June 2! We will record the session so if you can't attend you'll be able to watch it later, but make sure to sign up so you can receive the recording. Sign up here: usp7.salsalabs.org/newfamily…
Join us this September in Atlanta. Our symposium and family conference will be held on September 24. Now is your chance to hear from leading experts and make connections with other Hao-Fountain Syndrome families. Register today: usp7.salsalabs.org/2024Sympo…
#haofountainsyndrome #usp7
