Geographer/epidemiologist, Map maker, Cyclist. Environment/Health. Sickle cell disease/cystic fibrosis/inequalities. He/him.
England, Europe, World
Joined October 2012
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Fred Piel 💙🖤🌍 retweeted
📣The 5th Global Congress on Sickle Cell Disease is now accepting abstract submissions! 🗓️The deadline for submission is: Wednesday, January 15, 2025, at 11:59 p.m. Pacific time.
More information↪️ tinyurl.com/2h28h4j2
Fred Piel 💙🖤🌍 retweeted
🔔Sharing our last blog post of 2024! Our deepest thanks and appreciation for your incredible response and effort in participating and disseminating our #sicklecell survey @NHS_RHO @FredPiel @SickleCellUK blogs.imperial.ac.uk/uk-sick…
Fred Piel 💙🖤🌍 retweeted
(1/6) Cities bring particular challenges and opportunities for the health of those who live, work and study in them.
This CMO annual report explores what we can do to improve health in cities:
gov.uk/government/publicatio…
Fred Piel 💙🖤🌍 retweeted
🩸 What is the PSP?
The Priority Setting Partnership unites patients, carers & professionals to identify key unanswered questions in Sickle Cell research, focusing on genomics to improve care.📢 Share your insights: buff.ly/41rgyax #SickleCell #PSP #Genomics #PatientVoice
Fred Piel 💙🖤🌍 retweeted
New #EHAUnplugged episode available now: Screening for Sickle Cell Disease
In this engaging episode, Prof. David Rees discusses the present challenges of sickle cell disease screening in Europe and beyond. The conversation explores antenatal and neonatal screening practices and their crucial role in making informed choices and ensuring life-saving early interventions.
Listen now: tr.ee/Hl2BuBtVz8
Fred Piel 💙🖤🌍 retweeted
📣 Help Shape the Future of Sickle Cell Research!
Patients, caregivers & professionals—share your top research priorities through our survey. Together, we can focus on what matters most.
🌟 Have your say: buff.ly/41rgyax
#PSP #SickleCell #PatientVoice #ResearchMatters
Fred Piel 💙🖤🌍 retweeted
Experiences of people with sickle cell are key to our comparative research programme with @imperialcollege. We encourage you to participate in this short survey, or to share the survey with others who may be eligible: imperial.eu.qualtrics.com/jf…
Fred Piel 💙🖤🌍 retweeted
🚨 Dear #SickleCellDisease Community 🚨
We invite patients, caregivers, & families to join a 🌍 global survey on improving #SCD care.
💬 Share your insights!
🔗EUSurvey - Survey
🌐 Available in 8 languages.
Your voice matters—let’s shape the future of #SickleCell healthcare! ❤️
Fred Piel 💙🖤🌍 retweeted
Our survey aims to gather insights on inequalities in sickle cell and is open to adults with sickle cell or caregivers of people living with sickle cell. Please share our survey to those who may be eligible. @SickleCellUK @EHU_ARCNWL @FredPiel imperial.eu.qualtrics.com/jf…
Fred Piel 💙🖤🌍 retweeted
🔔 Delighted to share our latest blog post on our #sicklecell comparative research with @NHS_RHO in which we focus on our patient engagement survey @FredPiel blogs.imperial.ac.uk/uk-sick…
Fred Piel 💙🖤🌍 retweeted
🩸 We need more people of Black heritage to #GiveBlood this #BlackHistoryMonth to grow the number of blood donors with well-matched blood to help those with sickle cell disorder.
Become a donor or book your next appointment ➡️ orlo.uk/0mdD1
#SaveLives #GivingType
ALT A grey and red graphic of a blood bag alongside the quote: "We need 100 blood donors per year to treat just one sickle cell patient".
Fred Piel 💙🖤🌍 retweeted
Sickle cell disease is a lifelong blood disorder, with many patients needing regular blood transfusions.
To help treat thousands of people living with sickle cell disease, @GiveBloodNHS urgently needs more people of Black heritage to donate blood.
blood.co.uk/
ALT 245 babies a year are born with sickle cell. If you're the giving type book now at blood.co.uk. Graphic shows a pram with the number 245 written on it. The NHS logo and the NHS Give Blood logo's are displayed.
ALT Demand for blood donors of Black heritage to help patients with sickle cell has risen by 50%. If you're the giving type book now at blood.co.uk. Graphic show an illustration of a bag of blood filling up, with '50%' shown inside. The NHS logo and the NHS Give Blood logo's are displayed.
ALT Black donors are 10 times more likely to have blood types needed to treat patients with sickle cell. If you're the giving type book now at blood.co.uk. Graphic an illustration of one person in grey, standing in front of 10 people in red. The NHS logo and the NHS Give Blood logo's are displayed.
Our Editorial in @Hemasphere_EHA is published today. doi.org/10.1002/hem3.70033. Lots happening on #sicklecell in #India at the moment. @IcmrNiih @ICMRDELHI
Fred Piel 💙🖤🌍 retweeted
“For more than 20 years, The Global Fund to Fight AIDS, Tuberculosis and Malaria has been at the forefront of efforts… with remarkable success... We urge [them] to make hydroxyurea universally accessible for #sicklecell disease… in LMICs”
New Comment thelancet.com/journals/lanha…
Fred Piel 💙🖤🌍 retweeted
🔔 Excited to share our latest blog post which focused on #sicklecell awareness month and more! @FredPiel @NHS_RHO @SickleCellUK
Click the link below 👇🏾
blogs.imperial.ac.uk/uk-sick…
Fred Piel 💙🖤🌍 retweeted
Our new @MarmotIHE review concludes racism damages health & wellbeing & drives avoidable inequalities between ethnic groups across London @SadiqKhan @DrHNaqvi @LDN_gov @LondonAssembly @UCL
theguardian.com/world/2024/o…
Fred Piel 💙🖤🌍 retweeted
Social justice requires we take urgent action on the evils of racism @DrHNaqvi @profkevinfenton @SadiqKhan @mayorofLDN @LDN_gov @LondonAssembly @UCL bmj.com/content/387/bmj.q213…
Fred Piel 💙🖤🌍 retweeted
Updated #SickleCell research priorities are live! For the next 5 years, we encourage researchers to study unaddressed questions and specific research topics aimed to help #ConquerSCD.
Read the announcement here: ow.ly/MIjA50TvoAV
Fred Piel 💙🖤🌍 retweeted
🩸OFFICIAL TRAILER🩸
SICKLE - The Docufilm
For information on where to view the full film, you have to subscribe to The Red Cell Network Website!
uclh.nhs.uk/theredcellnetwor…
#SickleCellAwarenessMonth
#SickleCellDisorder
Fred Piel 💙🖤🌍 retweeted
📣We are pleased to announce the launch of the second version of the anonymous survey by @ERNEuroBloodNet , @TheLancetHaem, & @ascatconference to gather the perspectives of people affected by sickle cell disease.
Survey: lnkd.in/df5CcGwP
#ERNeu #ERNs #HealthUnion
