@GDATF

The Graves’ Disease & Thyroid Foundation provides educational and support services for patients with Graves’ disease, thyroid eye disease & related disorders.

 Rancho Santa Fe, CA
gdatf.org
Joined October 2011
  • Tweets8.5K
  • Following675
  • Followers6.1K
385Media
Patients with thyroid eye disease often rely on OTC eye drops for symptom relief, but it seems like there's a new recall in the news every other month. If you have concerns about what's in your medicine cabinet, check out eyedropsafety.org, a project of the @dry_eye_fdn.

Are your eye drops safe?

eyedropsafety.org
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Science can move "gradually, then suddenly"! Just days after we attended the ASOPRS Fall Symposium - which included talks on the SatraGO-1 and SatraGO-2 trials - the FDA has approved Enspryng as the first subcutaneous treatment for thyroid eye disease. optometryadvisor.com/news/en…

FDA Approves Enspryng as First Subcutaneous Therapy for TED

The FDA has approved Enspryng (satralizumab-mwge) for thyroid eye disease in adults, offering the first at-home subcutaneous IL-6 receptor antagonist for TED.

optometryadvisor.com
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If you are attending the #ASOPRS Fall Scientific Symposium in New Orleans, stop by booth #103 in the exhibit hall and say hello!
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USA-based Graves' patients: the GDATF wants to hear from you! As a final step before sharing our survey results, we'll be hosting three focus groups in October, and we'd be honored if you would participate! More info here: gdatf.org/gdatf-focus-group-…
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THANK YOU to the 400+ patients who took the time to complete our Graves' survey. If you are curious how we share survey data, check out this page from our website with highlights from our 2022 TED survey. gdatf.org/resources/ted-surv…
How patients experience thyroid eye disease - narrative comments by category Website screen shot: Personality Changes and Distress over appearance mental health - anxiety, depression and concern for the future Social and family impact Daily functioning and enjoyment of hobbies impact on career and financial stability symptoms

ALT How patients experience thyroid eye disease - narrative comments by category Website screen shot: Personality Changes and Distress over appearance mental health - anxiety, depression and concern for the future Social and family impact Daily functioning and enjoyment of hobbies impact on career and financial stability symptoms

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If you forgot about our survey for USA-based Graves' patients, you still have until midnight to participate! The survey takes about 20 minutes, and once you complete the screening questions, you can save your place and come back: survey.us.confirmit.com/wix/…
Dory Meme: "Oh! The Survey" on the top and bottom of screen

ALT Dory Meme: "Oh! The Survey" on the top and bottom of screen

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REMINDER: Survey closes at the end of the day on Tuesday! Get started here: survey.us.confirmit.com/wix/…
Graves' Disease & Thyroid Foundation@GDATFSep 3
Our Graves' survey for USA-based patients has been extended to Sep. 15th - we'd be honored if you would participate! Check out this video from Exec Director Kimberly Dorris for survey tips & insight on how we use survey data - or jump into the survey here: bit.ly/4h8RRHh
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Our survey for USA-based Graves' patients closes in 3 days. We'd be grateful if you could take 20 minutes to share your experience! survey.us.confirmit.com/wix/…
Spider-man meme: three characters in Spider-man suits pointing at each other.

ALT Spider-man meme: three characters in Spider-man suits pointing at each other.

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FIVE days until our survey for USA-based patients closes. Please take 20 minutes to make your voice heard! survey.us.confirmit.com/wix/…
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SIX days until our survey closes! We'd be grateful if our USA-based Graves' Queens (and Kings) could take 20 minutes to complete our patient survey by Sept. 15th! survey.us.confirmit.com/wix/…
Logo for Six The Musical with 6 Ex-wives in constume

ALT Logo for Six The Musical with 6 Ex-wives in constume

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Graves' Disease & Thyroid Foundation retweeted
American Thyroid Association@AmThyroidAssnSep 8
The countdown is on—less than 2 months until the #atathyroid2026 Annual Meeting in Philadelphia, November 4–7! Preview what’s in store: ow.ly/m9CL50ZKHaw. Come for the meeting & stay for the Philly! #americanthyroidassociation #ThyroidEducation @AmThyroidAssn
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If you have 20 minutes of down time this holiday weekend, we'd be honored if you would take our survey for USA-based Graves' patients. Make your voice heard! survey.us.confirmit.com/wix/…
Photograph of trees reflected in a still body of water.

ALT Photograph of trees reflected in a still body of water.

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Our Graves' survey for USA-based patients has been extended to Sep. 15th - we'd be honored if you would participate! Check out this video from Exec Director Kimberly Dorris for survey tips & insight on how we use survey data - or jump into the survey here: bit.ly/4h8RRHh
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Your Feedback Matters - Survey Extended to Sept. 15th! youtu.be/gs7f3p35wak?si=9XMt… via @YouTube
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Graves' Disease & Thyroid Foundation retweeted
Graves' Disease & Thyroid Foundation@GDATFAug 27
Our Graves' patient survey has been extended to Sept. 15th! If you don't have 20 minutes to complete the survey in one sitting, you can save your place and come back! Get started here: survey.us.confirmit.com/wix/…
Once you complete the initial screening questions (which confirm agreement to participate, age of consent, and a Graves' diagnosis), you don't have to complete the survey in one sitting! You can copy the link at the bottom of the screen to save your place without having to re-enter data. (Followed by a screen shot with an arrow pointing to a clickable blue hyperlink.)

ALT Once you complete the initial screening questions (which confirm agreement to participate, age of consent, and a Graves' diagnosis), you don't have to complete the survey in one sitting! You can copy the link at the bottom of the screen to save your place without having to re-enter data. (Followed by a screen shot with an arrow pointing to a clickable blue hyperlink.)

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Another thyroid medication recall - this one for a desiccated thyroid extract product from Vitruvias Therapeutics that is potentially "superpotent" (contains too much active ingredient). This link from the FDA has more info & a photo of the product label: fda.gov/safety/recalls-marke…

Vitruvias Therapeutics, Inc Issues Nationwide Recall of One Lot of Thyroid Tablets, USP 30 mg Due...

AUBURN, Ala. (August 21, 2026) – Vitruvias Therapeutics, Inc. is voluntarily recalling one lot (Lot. No. 504950) of Thyroid Tablets, USP 30 mg to the consumer level. The product is being recalled...

fda.gov
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Curiouser and curiouser: the company has ceased operations permanently: vitruvias.com/

Vitruvias Therapeutics

vitruvias.com
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Graves' Disease & Thyroid Foundation retweeted
Clinical Thyroidology@clinicalthyroidAug 28
Read/download expert reviews in the June issue covering the latest in Clinical #Thyroid. ow.ly/ZmNj50ZG81E #endotwitter #medtwitter #thyroidcancer #hypothyroidism #hyperthyroidism #Hashimotos #thyroiditis #iodine @ThyCaInc @GDATF @Medscape @EndocrineToday
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Our Graves' patient survey has been extended to Sept. 15th! If you don't have 20 minutes to complete the survey in one sitting, you can save your place and come back! Get started here: survey.us.confirmit.com/wix/…
Once you complete the initial screening questions (which confirm agreement to participate, age of consent, and a Graves' diagnosis), you don't have to complete the survey in one sitting! You can copy the link at the bottom of the screen to save your place without having to re-enter data. (Followed by a screen shot with an arrow pointing to a clickable blue hyperlink.)

ALT Once you complete the initial screening questions (which confirm agreement to participate, age of consent, and a Graves' diagnosis), you don't have to complete the survey in one sitting! You can copy the link at the bottom of the screen to save your place without having to re-enter data. (Followed by a screen shot with an arrow pointing to a clickable blue hyperlink.)

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Graves' Disease & Thyroid Foundation retweeted
European Thyroid Journal@Eur_Thyroid_JAug 26
New Consensus Statement Developed by an expert panel nominated by @ETA_Thyroid, @ThyroidBritish, Society for Endocrinology & @welshendodiab , this document brings together current evidence & expert consensus to support the management of thyroid storm. 🔗doi.org/10.1530/ETJ-26-0043
[European Thyroid Journal logo] [European Thyroid Association logo] Management of thyroid emergencies: joint consensus statement on management of thyroid storm Peter Taylor, Onyebuchi Okosieme, Grigoris Effraimidis, Fraser Gibb, Dhruv Parekh, Carla Moran, Peter Kopp, Kristien Boelaert Figure 1. Overview of treatment strategies for thyroid storm. ATD, antithyroid drug, PTU, propylthiouracil; MMI, methimazole; CBZ, carbimazole; SSKI, saturated solution of potassium iodide; C-XRAY, chest X-ray; ECG, electrocardiogram, HDU, high-dependency unit. Eur Thyroid J (2026) 15 (4): ETJ260043. doi.org/10.1530/ETJ-26-0043

ALT [European Thyroid Journal logo] [European Thyroid Association logo] Management of thyroid emergencies: joint consensus statement on management of thyroid storm Peter Taylor, Onyebuchi Okosieme, Grigoris Effraimidis, Fraser Gibb, Dhruv Parekh, Carla Moran, Peter Kopp, Kristien Boelaert Figure 1. Overview of treatment strategies for thyroid storm. ATD, antithyroid drug, PTU, propylthiouracil; MMI, methimazole; CBZ, carbimazole; SSKI, saturated solution of potassium iodide; C-XRAY, chest X-ray; ECG, electrocardiogram, HDU, high-dependency unit. Eur Thyroid J (2026) 15 (4): ETJ260043. doi.org/10.1530/ETJ-26-0043

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