#GenCSM (@GenC_SM) header
#GenCSM (@GenC_SM) profile picture

#GenCSM

@GenC_SM

Community for those interested in #Genetics and #HereditaryCancer syndromes. Co-creators: @MyGeneCounsel @BRCAresponder @_GeorgiaHurst.

 Chat Transcript 9/30/19
wke.lt/w/s/Ue8lfx
Joined March 2015
  • Tweets15.2K
  • Following1.4K
  • Followers2.4K
1KMedia
Photo by #GenCSM (@GenC_SM)Photo by #GenCSM (@GenC_SM)Photo by #GenCSM (@GenC_SM)Photo by #GenCSM (@GenC_SM)Photo by #GenCSM (@GenC_SM)Photo by #GenCSM (@GenC_SM)Photo by #GenCSM (@GenC_SM)Photo by #GenCSM (@GenC_SM)Photo by #GenCSM (@GenC_SM)
#LiFraumeni #HereditaryCancer #GenCSM teapawt.net/nprscottsimon/status/1…
Scott Simon (@nprscottsimon) profile pictureScott Simon
@nprscottsimon19 May 2024
From our show this week, Larry Ingrassia's sad, engrossing story about cancer in his family: "And while we're here, make the most of those connections that you have with people. That's what everybody is going to remember." npr.org/2024/05/18/125230779…
'A Fatal Inheritance' follows a family's struggle with cancer across generations

'A Fatal Inheritance' follows a family's struggle with cancer across generations

NPR's Scott Simon talks to Larry Ingrassia, former managing editor of the Los Angeles Times, about his latest book, "A Fatal Inheritance," which details his family's struggle with cancer.

npr.org
86
Exciting news! My book will soon be available on 50+ audiobook platforms. 🎧 Get ready to listen up. Literally! 📢 INCLUDES new and updated information, including the current 2024 NCCN Screening and Management Guidelines for BRCA1 & BRCA2 carriers. #hereditarycancer #BRCA
Image from Amy Byer Shainman (@BRCAresponder)
1
2
7
421
📢📢We are speaking to advocates, creators & influencers who discuss #LynchSyndrome/#BRCA on social media & it's truly amazing to learn about their work to share information, personal stories and expertise!🤳👩‍🎓 Would you like to know more about our project? Have a look at this👇
1
6
3
10
6,500
Just added to my BRCA/hereditarycancer #booklist! tinyurl.com/BRCAbooks "Nearly Departed" by @Gilapfeffer >>> tinyurl.com/BRCAbooks <<< #BRCA #hereditarycancer #storiesthatmatter #memoir Congrats @Gilapfeffer XO
This Post is from an account that no longer exists. Learn more
1
1
3
115
Roundup of the blogs I’ve enjoyed this week featuring @gabbymot @Martha__Carlson @nancyspoint @Bethlgainer @letlifehappen @crosserriddle @HeartSisters @AudreyBirt @BRCAresponder @6state @drdavidlight @drchrysopoulo @SBC_org @ourmbclife @fitaftercancer journeyingbeyondbreastcancer…
Weekly Round-Up

Weekly Round-Up

Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me something, inspired me, and which I’ve wanted to sh…

journeyingbeyondbreastcancer.com
6
7
3
14
1,438
🌟 Don't miss out! 📲 Download the #BreastAdvocateApp today and gain on-the-go access to exclusive surgeon and patient advocate interviews. Stay informed, empowered, and connected wherever you are! #BreastHealth #YourTreatmentYourChioce #BreastCancer 🎀💪
3
1
5
550
The weekly blog round-up featuring @ourmbclife @Neil_Iyengar @BRCAresponder @sacosw @SBC_org @suerobinsyvr @HeartSisters @crosserriddle @AMJohnston1315 @womenofteal @Bethlgainer @letlifehappen journeyingbeyondbreastcancer…
Image from Marie Ennis-O'Connor (@JBBC)
1
9
1
9
1,708
Ahead of schedule! 🎧 Thrilled to announce the audiobook edition of "Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the Grandmother I Never Knew" is available on Audible, Amazon, Kobo & more. #AudibleApp @JamieHillVoices audible.com/pd/B0D74HRCZX?ac…
Resurrection Lily

Resurrection Lily

Check out this great listen on Audible.com. Resurrection Lily shares a story of inheritance and intuition, of what can surface in the body and the spirit when linked by DNA. As Amy Byer Shainman...

audible.com
1
1
2
299
#Dobbs didn't just impact abortion, but IVF, too. In Alabama, embryos are considered children, and can no longer be discarded even if they carry a fatal genetic disease. Read more in the article by mGC CEO @EllenMatloff: hubs.li/Q02CSDmv0 #genechat #precisionmedicine
Image from My Gene Counsel (@MyGeneCounsel)
2
2
272
Our #LynchSyndrome event gets underway soon! Lovely to see @macmillancancer Notts, @LynchSyndromeUK the NHS Bowel Cancer Screening Programme, @MaggiesCentres and @nuhresearch with information stands. #LSNotts
Image from NHS East Genomics (@East_Genomics)
1
10
1
26
4,623
Bridging the Health Literacy Divide for Informed Decision-Making via @power4patients powerfulpatients.org/2024/03…
Image from Marie Ennis-O'Connor (@JBBC)
1
2
157
We are halfway through the project🥳so we felt it was time for a summary! Have a look at what we have done so far to understand how social media practices may influence experiences and understandings of #lynchsyndrome and #brca #hereditarycancer syndromes!👇
2
7
1
10
2,368
Attention, fellow patient advocates, genetic counselors desperately need our help - @BRCAresponder @GeneticCouns @CMSGov oncodaily.com/90287.html #CMS #HereditaryCancer #NSGC #oncology #oncodaily #CancerCare
Image from OncoDaily (@oncodaily)
2
20
229
Do you or someone you love use #birthcontrol to treat a medical condition? Two years after the #Dobbs decision access to birth control may be threatened. Read more in the article by mGC CEO Ellen Matloff here: hubs.li/Q02DM9Z50 #genechat #precisionmedicine
Image from My Gene Counsel (@MyGeneCounsel)
2
1
209
The 3rd week of October is male breast cancer awareness week. Yes, MEN can get breast cancer. Watch Pink & Blue this weekend. Retweet, share, empower others. “Pink & Blue: Colors of Hereditary Cancer” on #Vimeo On Demand vimeo.com/ondemand/pinkandbl…
Watch Pink & Blue: Colors of Hereditary Cancer Online | Vimeo On...

Watch Pink & Blue: Colors of Hereditary Cancer Online | Vimeo On...

PINK & BLUE takes a profound look into the BRCA world examining what it is and how this genetic mutation puts both women and men at a higher risk for potentially developing numerous cancers.

vimeo.com
4
1
5
Healthy, young, and now, a breast cancer survivor. Cancer got too real @MyGeneCounsel this year. hubs.li/H0ZvHGz0 #breastcancer #breastcancerawarenessmonth #nationalmammographyday #gcchat
1
1
2
8
Men and women are equally likely to inherit or pass on a cancer-predisposing BRCA variant—family history of cancers needs to encompass both sides of the family. Informative @bmj_latest summary of care of men with cancer-predisposing BRCA variants. bmj.com/content/375/bmj.n237…
Image from Muin J. Khoury (@MuinJKhoury)
7
1
14
This Tuesday, October 19th at 8pm ET / 5pm PT. The #BRCA #PancreaticCancer Connection. #PancChat w/@lustgartenfdn @PanCAN @drallysonocean @ShaalanBeg @NirajGusani @Aiims1742
Let's Win Pancreatic Cancer 💜 (@letswinpc) profile pictureLet's Win Pancreatic Cancer 💜@letswinpc9 Oct 2021
Mark your calendar! #PancChat is Tuesday, October 19th at 8pm ET / 5pm PT. We will be chatting about the #BRCA #PancreaticCancer Connection. Joining us for the chats will be co-hosts @lustgartenfdn @PanCAN @drallysonocean @ShaalanBeg @NirajGusani and @Aiims1742.
Image from Let's Win Pancreatic Cancer 💜 (@letswinpc)
10
24
Read below for the top 5 reasons a #CancerSurvivor should consider #GeneticTesting. #GCchat #CancerSurvivorsMonth
5
9
11
LADY PARTS starts filming in one week! The scripted feature film highlights what it’s like to be a BRCA positive female at high risk of developing breast and ovarian cancer. We have an unbelievable cast...stay tuned for film updates! #ovariancancer #breastcancer #BRCA #film
Image from LADY is now Love, Danielle (@LadyParts_film)
3
12
Load more