@GetPILIPALA

PILIPALA: your thyroid diary helps you understand your illness, track your progress and keep in touch with people like you.

 Cardiff, Wales
getpilipala.com
Joined March 2016
  • Tweets477
  • Following307
  • Followers208
61Media
Enter our free draw to win a £25/ $25/ €25 Amazon Gift Card by completing our new survey: salubrious.typeform.com/to/m… It shouldn't take longer than 10 minutes! #thyroid #hypothyroid #hyperthyroid #hashimotos #graves
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We're delighted to be helping with this initiative
Thyroid UK@thyroiduk_org3 Aug 2020
New Survey addressing the problem of non-adherence to medication for people with @thyroid or other diseases. tinyurl.com/y2f6xhog
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Are any UK patients on long acting T3 from German compounding company Receptura. If you are and would be interested in having FT3 profiles done in Cardiff myself and Prof Dayan would love to hear from u (DM me) one of our patients has an impressive 6 hour profile @britishthyroid
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25th of May! The Day of the #Thyroid! Celebrate the Day—and also stay vigilant, check your thyroid and get connected to your Association. You can never go wrong by staying connected to the @ETA_Thyroid! Leonidas Duntas Secretary of the ETA #ThyroidAwareness
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Probably the meanest tweets in the world... #newbrew
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I find it quite eye-opening to see some doctors weighing in to support VAT on Vitamins/Supplements. Why would any doctor support increasing costs to their patients - in any circumstances? It’s like they’re happy to see people, who don’t agree with them, punished’. Extraordinary
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Focus on what the *patient wants* not what the system wants — consensus of the panel #HIMSS19 #Connect2Health #ptengagement – at Florida, USA
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Thyroid patients, do NOT shoot the messenger, look, having charts with temperature, food intake, weight changes, it is a diagnostic tool and you are helping, if your clinician does not take it seriously, ask for a 2nd opinion, but thyroid is difficult, we need your help
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Switch on Basal Body Temperature recording at your Wake Up time using PILIPALA 1/2 – at Cardiff, Wales
Dr Adrian Heald@DrAdrianHeald3 Feb 2019
I have a little task for all the people that suffer from an UAT, could you get a digital thermometer and take your body temperature every day before you get up and keep a chart? It might help you to sway your Dr or consultant
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2/2 Here’s how: – at Cardiff, Wales
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PILIPALA helps patients prepare for GP appointments with comprehensive thyroid tracking and reports...
Patients Association@PatientsAssoc10 Jan 2019
GP appointment soon? It's a good idea to note down symptoms. But what should you consider? Some tips: Consider changes to appetite, bowel habits or mood When did the symptoms begin? Is everyday life eg working more difficult? More here: bit.ly/2FErZ1T
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#Thyroid Patients called out in 2018, "Optimize our therapy." We climbed uphill despite fatigue, hearts full of hope. History has twisted biology, making TSH a tyrant and forcing T4 to work alone. But TSH and T4 are servants of the Queen of All Thyroid Hormones, mighty #T3.
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It's 2019! Sending everyone our well-wishes for the New Year! 💕🕊️
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The suffering of thyroid patients in the UK should break the hearts of thyroid doctors and thyroid patients everywhere.
Improve Thyroid Treatment@campaign_itt19 Dec 2018
Another great article on the back of the one in the Lancet from @DrPeteTaylor. When will matters over cost and inequality for thyroid patients end? #andmeT3 google.co.uk/amp/s/www.daily…
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symptoms of under treated hypothyroidism often include crippling fatigue and apathy. @TheLancet today shows patients in more deprived areas are not being given access to a medicine which may restore their ability to work and earn a living. thelancet.com/journals/landi…

Liothyronine cost and prescriptions in England

Levothyroxine is commonly prescribed for hypothyroidism and its use is steadily increasing.1 A subgroup of patients are dissatisfied on levothyroxine monotherapy2 and in some clinical trial patients...

thelancet.com
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17-year study of #thyroid therapy #liothyronine #T3 ★ 𝙉𝙊 ↑ risk of #cardiovascular disease HR (hazard ratio) 1·04 ★ 𝙇𝙊𝙒 risk: atrial fibrillation HR 0·91, bone fractures HR 0·79, #diabetes HR 0·83 ★ Only ↑ risk of mental health meds HR 2.26 onlinelibrary.wiley.com/doi/…
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Comms are poor and getting worse for the majority of #thyroid patients, and that’s why we built PILIPALA 😉 – at Cardiff, Wales
ORCHA@OrchaHealth19 Sep 2018
#mHealth apps and other #digital technology could make practitioner-patient communication smoother scoop.it/t/ehealth-14/p/4101…
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New technologies should complement patient-centered care, not define it mobihealthnews.com/content/n… #digitalhealth
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if you'd like to help promote our September London support group Information meeting, download a poster here and put it where it may be seen by anyone affected by thyroid disease. thyroidtrust.org/uploads/3/1…
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“lovely Mike” 😲 That’s a first! – at Caerphilly, Wales
The Thyroid Trust@ThyroidTrust22 Aug 2018
updated our gallery with pics from this weekend and our May event with the lovely Mike from @GetPILIPALA - who has since launched his app for thyroid patients! No endorsement but we find this stuff fascinating :) thyroidtrust.org/gallery.htm…
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